Flare or Adrenals: Hi, I’ve been on 6 mg for a... - PMRGCAuk

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Flare or Adrenals

Carathedog profile image
7 Replies

Hi,

I’ve been on 6 mg for a bout three months now, didn’t want to reduce over the holidays.

I have pain in my shoulders and hips when I get up, this gets much easier as the day goes on, in fact by late morning it’s sometimes gone. I’m also very tired, usually sleep in the afternoon.

What should I do, how can I tell if it’s a flare or adrenals, should I consider reducing to 5.5

Many Thanks

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Carathedog profile image
Carathedog
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7 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

I would say a mixture of both, the morning stiffness which eases sounds like too low a dose (flare) - and the fatigue sounds like adrenals struggling.

Think I would be staying at 6mg a bit longer and see if the mornings improve - but obviously don’t let them get worse. Or even consider splitting dose - 1/3rd in evening to help with the early mornings; 2/3rd usual time…some find that helps.

The adrenals are just a matter of time, very slow tapering, and patience.

Carathedog profile image
Carathedog in reply to DorsetLady

Thanks for your helpful advice

PMRpro profile image
PMRproAmbassador

How to tell the difference? Hard - but at a stable dose, if the symptoms get worse, i.e. mornings are stiffer and it lasts longer, then I would suspect a flare, If they are stable or improve, then adrenals.

You are very much at the borderline - if you could cope with slightly less it might poke the adrenal function a bit harder and it do a bit more. And as DL says - possibly splitting the dose without taking the second part of the dose too late in the day (which might lull the adrenals a bit too much) may improve early morning. Ideal might be trying the whole dose at 2-3am - improves mornings no end!

Carathedog profile image
Carathedog in reply to PMRpro

Thank you, will just stay where I am at the moment

piglette profile image
piglette

I found the tiredness was due to my adrenals. Mine were really bad around 5mg so I just hung on for several months. I am always rather loathe to reduce if I don’t feel pretty OK.

Carathedog profile image
Carathedog in reply to piglette

Thanks, yes, I’ll have to be patient

piglette profile image
piglette

It is worth it just to stay comfortable.

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