How long to stay on 2 mg

[Theziggy]

I should be tapering to 2 mg next month,

I seem to remember reading here that Professor Dasgupta recommends staying on 2mg for quite a while.

Any recommendations from the forum?

Thanks in advance

[herdysheep]

Others will be along soon, but as I understand it, reducing should be dependent on how you feel and at low doses, the taper should be as slow as poss to reduce adrenal related issues. I am on the way from 4 1/2 to 4 and it is a slow process with slow progress!

[DorsetLady PMRGCAuk volunteer]

Yes he does -but as you have Palindromic Rheumatism rather than PMR not sure the procedures are quite the same… are you tapering to zero, or do you need to be on a low dose of Pred permanently?

[Theziggy in reply to DorsetLady]

I don't know !!! Very few resources for Palindromic Rheumatism on the web. But it is treated with Prednisilone - so I come here to look for advice.

[DorsetLady PMRGCAuk volunteer in reply to Theziggy]

Yes I know you do, but I’m not sure if Palindromic Rheumatism goes into remission like PMR - or it’s more like RA.If the latter then will you always have it, and need to manage the peaks and troughs of it’s activity-and therefore be on a small maintenance dose.

[PMRpro Ambassador]

He said he often kept patients on 2-3mg longer term as it reduced the risk of relapses. I think that was a tacit way to say PMR lasts longer than we admit!!

However - I think you can often get lower than that - 1mg can be enough to keep the wolf from the door and if it is, isn't that preferable? I think creeping on down with the smallest steps you can manage and a very slowed slow taper might even get you to zero. But if it does go pear-shaped, bail out and go back.

[Exflex]

Pertinent to me and others I’m sure. Currently 2.5 and in a weeks time I could start tapering to 2, but I’m now telling myself to s-l-o-w down and extend the interval before attempting another 0.5mg tapered drop. I’m thinking from 2mg I’ll extend DL’s 5w taper to 10 weeks. I’ll see…