Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for May 2022

Flare following Prolia?

Good morning, everyone! I wonder if anyone else has had problems following a denosumab (Prolia) injection. I was first diagnosed with PMR in 2015, and at that...

Good morning, everyone! I wonder if anyone else has had problems following a den...

•2 years ago

Flare Up

I've had Polymyalgia since Jan 2019 and was on 20mg Prednisolone. I've gradually tapered to 2mg and 1 mg alternate days and thought I was doing fine. Last...

I've had Polymyalgia since Jan 2019 and was on 20mg Prednisolone. I've graduall...

•2 years ago

Relapsing Polychondritis

Methotrexate and/or Prednisolone side effects? Anyone experiencing tremors with either of these drugs? Unusual hand tremor started in right hand after 3 or 4...

Methotrexate and/or Prednisolone side effects? Anyone experiencing tremors with ...

•2 years ago

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Oh Dear!

On a slow taper reduced to 9mg on Thursday, today I feel like, I've been run over but I simply don't care...had the best weekend ever...my son got married and...

On a slow taper reduced to 9mg on Thursday, today I feel like, I've been run ove...

•2 years ago

Checking in: Rheumy diagnosis GCA

well, dear folks, after all this time working with Neuro-opth and retina specialist they were uncertain if GCA since negative biopsy. Had strongly considered...

well, dear folks, after all this time working with Neuro-opth and retina special...

•2 years ago

GCA/PMR One Year on (?)

Hi everyone. I haven't posted on the site before but find all the questions and answers intriguing. Just over a year ago I suddenly had a very stiff and...

Hi everyone. I haven't posted on the site before but find all the questions and ...

•2 years ago

Thank you

Thank you for all your condolences, messages, guidence, love and prayers which you have sent me. I am so lucky to have all of you. xx

Thank you for all your condolences, messages, guidence, love and prayers which y...

•2 years ago

Biopsy coming up

Just to update… I am hoping to have a temporal biopsy this week. I am absolutely dreading it but realise it may possibly provide some answers. As previously...

Just to update… I am hoping to have a temporal biopsy this week. I am absolutely...

•2 years ago

calcium sclerorsis

I have been diagnosed with Foci of Medial Calcific Sclerosis (VCM) after having a left temporal artery biopsy. Biopsy was negative for GCA. I have been...

I have been diagnosed with Foci of Medial Calcific Sclerosis (VCM) after having ...

•2 years ago

Adrenal Blood Tests

I am getting Cortisol and ACTH blood tests to see how my Adrenals are doing after approx a year on Prednisone. Now at 4 mg daily and struggling a little My...

I am getting Cortisol and ACTH blood tests to see how my Adrenals are doing afte...

•2 years ago

Actemra and chest discomfort

Tomorrow will be my third injection of Actemra as I attempt to taper from 40 mg daily down to 30 mg daily. I have more headaches than usual but nothing I...

Tomorrow will be my third injection of Actemra as I attempt to taper from 40 mg ...

•2 years ago

herpes attacks

I am sorry to bring this topic into the discussion as many feel unwilling to talk about it. As very much part of the liberated 1960's generation, those who...

I am sorry to bring this topic into the discussion as many feel unwilling to tal...

•2 years ago

Research into autoimmune diseases, specifically MS, but maybe further work will look at PMR and GCA.

Researchers at Karolinska Institute in Sweden developed a method for identifying the immune cells involved in autoimmune diseases, and have identified four new...

Researchers at Karolinska Institute in Sweden developed a method for identifying...

•2 years ago

What would you do

Hi, so having seen GP this week and agreed I'd stay on 2mg. I visit pharmacy. My Pred repeat prescription has not arrived from my GP and as such refuse to...

Hi, so having seen GP this week and agreed I'd stay on 2mg. I visit pharmacy. My...

•2 years ago

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