calcium sclerorsis: I have been diagnosed with Foci... - PMRGCAuk

PMRGCAuk

20,884 members39,328 posts

calcium sclerorsis

pomeranion profile image
1 Reply

I have been diagnosed with Foci of Medial Calcific Sclerosis (VCM) after having a left temporal artery biopsy. Biopsy was negative for GCA. I have been suffering with PMR for over a year. I had cataract surgery and it instigated the GCA symptoms post-op. PMRPRO has been extremely helpful redirecting me to information about my diagnosis. I had a parathyroid adenoma removed January, 2021 after having calcium levels elevated for 8 years. Went undiagnosed all that time. Now I am suffering with the calcium complications. I am now tapering the Prednisolone dosage from 60Mgs. per my Rheumatologist directions. Down to 30Mgs. He wanted me to return to 9Mgs. I am still experiencing the headaches, jaw and scalp pain although reduced after 3 days. I am scheduled to see a Cardiologist soon because a previous X-ray showed calcification of the aorta. This diagnosis is very rare. My Rheumatologist never heard of it. There are so many knowledgeable people here I just thought I would put this out there. Thank God for this site. I would never have recognized the symptoms of GCA without it and I was able to get help. Thank you all.

Written by
pomeranion profile image
pomeranion
To view profiles and participate in discussions please or .
Read more about...
1 Reply
PMRpro profile image
PMRproAmbassador

All the best - and do tell us how you get on.

As I said to you before - I suppose it is as good a reason for having a TAB even if there is a high chance it will be negative just because iti MIGHT show up something else!

Not what you're looking for?

You may also like...

Dose increase

I have always been on a split dose of methylprednisolone and my latest was 4mcg at breakfast and...

Looking for typical Prednisone reduction schedule new on Actemra

Haven't been around much lately. This has probably been the worst, six months of my seven years...

Slight Pain has started after 5 months

I've been on methylprednisolone since March 2024. Started at 64mg per day and reduced successfully...

Covid and a hive type rash

I’m Day 3 of having Covid (got it from hubby who’s today thankfully tested negative 😃) I’m not...

Symptoms recurring on 3.5 pred.

I have had PMR for two years now and struggled with flares but felt OK and more active again at...