Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,432 members • 38,319 posts

All posts for May 2022

Different symptoms on reducing

I have had PMR for nearly seven years and have been on prednisolone for six and a half. I seem to be beyond adrenal problems as fatigue symptoms which have...

I have had PMR for nearly seven years and have been on prednisolone for six and ...

Mary63

•2 years ago

19 Replies

When does adrenal insufficiency/withdrawal kick in?

I've heard a number of times here that you can start to feel adrenal insufficiency from around 7 mg pred all the way up to 10. My endo thinks that I shouldn't...

I've heard a number of times here that you can start to feel adrenal insufficien...

winfong

•2 years ago

43 Replies

How PMR and / or prednisone affect mood

This forum is a wealth of information on how PMR makes us feel physically. Can you suggest any links that might speak to the emotional side of the disease...

This forum is a wealth of information on how PMR makes us feel physically. Ca...

Mim11

•2 years ago

39 Replies

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Research Future Regarding Covid Vaccine

Hi all wise and wonderful ones. I've been invited to take part in the the safety and effectiveness of an investigational vaccine known as GRT-R910 as a booster...

Hi all wise and wonderful ones. I've been invited to take part in the the safety...

Bcol

•2 years ago

14 Replies

GCA and me

Hi I'm new to this web site and already finding really useful information and advice and most of all feeling much less isolated with this condition. I am...

Hi I'm new to this web site and already finding really useful information and ad...

misnomer

•2 years ago

9 Replies

Forgot my 5mgm Pred pill

I didn’t take my prednisolone pill and was ok Sunday, only noticed this morning felt rather tired yesterday but have a cold so was feeling washed out anyway...

I didn’t take my prednisolone pill and was ok Sunday, only noticed this morning ...

Bachblues

•2 years ago

11 Replies

Just wondering

I go to my ultrasound tomorrow for my prolapse which has become very painful aft.waiting two and a half months to get to an appt.Iam feeling like it's...

I go to my ultrasound tomorrow for my prolapse which has become very painful aft...

Hunter134

•2 years ago

14 Replies

Strange symptoms

Hi all. I am in need of a little bit of advice before I ring my rheumy and make a fuss over nothing! For the past week i have been having some odd symptoms-...

Hi all. I am in need of a little bit of advice before I ring my rheumy and make ...

Lyndalou62

•2 years ago

41 Replies

Pred Taper - Any advice on prednisone reduction?

Hi Folks, I’d appreciate any advice on reducing prednisone. I seem to recall reading a 10% reduction every 2 to 4 weeks worked for some. Are there any other...

Hi Folks, I’d appreciate any advice on reducing prednisone. I seem to recall rea...

MikeVanBC

•2 years ago

9 Replies

Pred and PMR weight loss

Hi, I'm not sure if this has been shared before, but I couldn't find it? I have joined the weight loss group too as I'm tired of lugging my 'steroid baby'...

Hi, I'm not sure if this has been shared before, but I couldn't find it? I have ...

Artnmusiclover

•2 years ago

60 Replies

Going on holiday with PMR!!

After two and a half years I am eventually going abroad on holiday again on Thursday, but this time with PMR. I am currently on 7mg prednisolone having reduced...

After two and a half years I am eventually going abroad on holiday again on Thur...

Rowergirl

•2 years ago

13 Replies

Not receiving email notifications of HealthUnlocked posts (for the last 2 days).

I have reported this to support@healthunlocked.com and to Fran Benson herself. Not sure if changing my Apple ID password has caused this. Does anyone know what...

I have reported this to support@healthunlocked.com and to Fran Benson herself. N...

SheffieldJane

•2 years ago

4 Replies

Sacroliac joint pain and PMR

Just returned from Dr. having been told back/hip pain is my Sacroliac joint causing the problem. She was rather off hand about it all and more or less said...

Just returned from Dr. having been told back/hip pain is my Sacroliac joint caus...

DodiR

•2 years ago

5 Replies

GCA symptoms

Hi. Any comments appreciated. I have had pmr for 2.5 years and found myself to be well and stable at 5mg if Pred. I reduced to 4.5mg and was ok. Following that...

Hi. Any comments appreciated. I have had pmr for 2.5 years and found myself to b...

cmToddy

•2 years ago

16 Replies

CRP and ESR levels

Hello all, been away so long - life takes over big time - forgotten how to post! Trying this.... Does level of CRP and ESR at the diagnosis stage have any...

Hello all, been away so long - life takes over big time - forgotten how to post!...

Poshdog

•2 years ago

4 Replies

Update 2 from 'Shall I or Shan't I" and a small question

It is day 8 today of adding an additional 5mg to my 3mg, total 8mg. The stiffness and aches have been so much improved. Decision now....do I carry on to the...

It is day 8 today of adding an additional 5mg to my 3mg, total 8mg. The stiffnes...

Queenie1901

•2 years ago

7 Replies

Good Planning Can Work.

Yesterday (Saturday) I had one of the loveliest and most memorable days that I've had for some time......I went into London to meet my DIL-to-be, to see her in...

Yesterday (Saturday) I had one of the loveliest and most memorable days that I'v...

Kendrew

•2 years ago

162 Replies

Residual pain around biopsy area 11 weeks on

Is it unusual to feel headachy around the area the biopsy for GCA was done after about 11 weeks? It's not unbearable, but comes and goes during the day. They...

Is it unusual to feel headachy around the area the biopsy for GCA was done after...

Dochaz

•2 years ago

10 Replies

My experience with Paxlovid

So my darling OH came home with Covid, and I knew right then I was doomed. Quite sure it 's the Omicron variety. It's going around in our 55+ community like...

So my darling OH came home with Covid, and I knew right then I was doomed. Quit...

orangemax

•2 years ago

17 Replies

Travelling with refrigerated Meds

Hi fellow travellers, Afew weeks ago I asked if anyone had a fool proof way of carrying refrigerated meds internationally, in my case Actemra, from Aus to UK....

Hi fellow travellers, Afew weeks ago I asked if anyone had a fool proof way of c...

Happyexplorer

•2 years ago

11 Replies

Foot and ankle joint pain description with initial weight bearing

For myself my ankles and feet felt like they would shatter like glass until they loosened.up..

For myself my ankles and feet felt like they would shatter like glass until they...

jls93

•2 years ago

4 Replies

Up, Down or Sideways ???

Hello Kind Folks, To provide a brief update, since diagnosis on April 26th I’ve increased my Pred dose from 15 to 20mg given I’m 185 lbs. I guestimate an 80%...

Hello Kind Folks, To provide a brief update, since diagnosis on April 26th I’ve ...

MikeVanBC

•2 years ago

23 Replies

W.H.O. Osteoporosis treatment levels graph?

Hi folks, I'm querying something my GP told me during a telephone appointment about my T scores. I was diagnosed with osteoporosis in 2009 and treated with...

Hi folks, I'm querying something my GP told me during a telephone appointment ab...

strawclutching

•2 years ago

17 Replies

Sleep Apnea

Does any one have issues with sleep apnea with this illness? PMR 20 years, GCA at least 10. Pred 12 years, Actemra 2 years. My blood pressure goes up when...

Does any one have issues with sleep apnea with this illness? PMR 20 years, GCA ...

phebamom

•2 years ago

12 Replies

hands are stiff and hurting in the morning

Its been 3 years since I got pmr and the past several months I feel like its all in my hands now. I do have some upper leg stiffness in the morning . Both legs...

Its been 3 years since I got pmr and the past several months I feel like its all...

Paperroses

•2 years ago

4 Replies

Hand pain/inflammation with PMR???

I was diagnosed PMR 6 months ago. Typical shoulder hip symptoms. As I came down off the pred my right hand got inflamed. (Left hand also but much less...

I was diagnosed PMR 6 months ago. Typical shoulder hip symptoms. As I came down ...

Sparky99

•2 years ago

20 Replies

Nuffield Joint Pain Programme

Has anyone come across this free programme? It's a 12 week course (two separate hours every week for 12 weeks) and offered throughout England. It's free and...

Has anyone come across this free programme? It's a 12 week course (two separate ...

DogAgilityObsessed

•2 years ago

4 Replies

Travelling to South Africa and Australia.

Hi - I am going to SA for 6 weeks and Australia for 6 weeks to visit family and recuperate. I had Covid end Feb. Was on 5.5mg Pred and doing well. I went up...

Hi - I am going to SA for 6 weeks and Australia for 6 weeks to visit family and ...

Slosh

•2 years ago

13 Replies

Flare or normal ?

Morning ! I am sure you amazing humans will be able to advise as I’m not sure what to do . Diagnosed in Feb and put on 15 mg pred . Due to my age (51) both...

Morning ! I am sure you amazing humans will be able to advise as I’m not sure w...

Cysty1

•2 years ago

22 Replies

Is PMR always bilateral?

It’s 2 1/2 years since original onset and diagnosis of PMR with bilateral upper arm pain. I started on 15mg of Pred and have been reducing slowly using Dorset...

It’s 2 1/2 years since original onset and diagnosis of PMR with bilateral upper ...

Exflex

•2 years ago

24 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2022

Different symptoms on reducing

When does adrenal insufficiency/withdrawal kick in?

How PMR and / or prednisone affect mood

Research Future Regarding Covid Vaccine

GCA and me

Forgot my 5mgm Pred pill

Just wondering

Strange symptoms

Pred Taper - Any advice on prednisone reduction?

Pred and PMR weight loss

Going on holiday with PMR!!

Not receiving email notifications of HealthUnlocked posts (for the last 2 days).

Sacroliac joint pain and PMR

GCA symptoms

CRP and ESR levels

Update 2 from 'Shall I or Shan't I" and a small question

Good Planning Can Work.

Residual pain around biopsy area 11 weeks on

My experience with Paxlovid

Travelling with refrigerated Meds

Foot and ankle joint pain description with initial weight bearing

Up, Down or Sideways ???

W.H.O. Osteoporosis treatment levels graph?

Sleep Apnea

hands are stiff and hurting in the morning

Hand pain/inflammation with PMR???

Nuffield Joint Pain Programme

Travelling to South Africa and Australia.

Flare or normal ?

Is PMR always bilateral?

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