GCA and me : Hi I'm new to this web site and... - PMRGCAuk

PMRGCAuk

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GCA and me

misnomer profile image
9 Replies

Hi I'm new to this web site and already finding really useful information and advice and most of all feeling much less isolated with this condition. I am still trying to understand which aches and pains are actually due to GCA/PMR and which are simply age and activity related. However reading Kate Gilberts book and reading your stories has helped immensely thank you for sharing.

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misnomer profile image
misnomer
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9 Replies
PMRpro profile image
PMRproAmbassador

Hi and welcome - it's why we're here! In the hope of passing on our accumulated knowledge. :)

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Once you get to lower doses it sometimes is difficult to know at times, especially when you’ve been on high doses for GCA….when all pain is masked by the Pred.

Plus if you have other issues, like osteoarthritis they will likely have deteriorated when you were on the high doses without you realising it….

Do you have any specific pains in particular which are causing issues?

If you describe them, we may be able to help…or if you try ordinary painkillers and they help, it’s unlikely to be GCA/PMR. However, if they don’t help, it probably is GCA/PMR….

123-go profile image
123-go

Welcome to the 'club' where we really are all in it together 🙂. Good to have you aboard. Keep smiling.

Nextoneplease profile image
Nextoneplease

Hi misnomer and welcome 😊

It seems you have a lot on at the moment - good luck with your treatment.s 😊

All the best xx

Bcol profile image
Bcol

Hi Misnomer, fortunately for me, I can't help with the GCA, but many here can will. Welcome to the site and don't be afraid or worried about asking questions.

Bridge31 profile image
Bridge31

Love your on screen name 😉

S4ndy profile image
S4ndy

Welcome to the PMR crew! This site is a fabulous source of info. It's really helped me over the last 6 years. When you have more than one pain causing problem it can be hard to tell them apart. Be gentle on yourself is the best thing I can offer x

jinasc profile image
jinasc in reply toS4ndy

"Welcome to the PMR crew! "

Oh you really made me smile. 😊😊 The first site, many moons ago was Arthritis Canada and the person who ran it was the Captain of the Good Ship GCA& PMR. I was the Donkey Man.

S4ndy profile image
S4ndy in reply tojinasc

Glad I made someone smile 😂

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