Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,920 members • 39,407 posts

All posts for August 2021

Pred in the sunshine

Hi all, I’m in a sunny country at the minute and have developed a purple blotchy rash at the bottom of my legs. Dr Google tells me it’s a skin reaction because...

Hi all, I’m in a sunny country at the minute and have developed a purple blotchy...

Hidden

•3 years ago

14 Replies

Tapering or what?

A year ago, when I was at 10mg pred. PMRPro helpfully said :. “And the next stage of reduction is likely to add in the fatigue of waiting for adrenal function...

A year ago, when I was at 10mg pred. PMRPro helpfully said :. “And the next stag...

ChinaWuntoo

•3 years ago

14 Replies

Tocilizumab and coming off prednisolone

Just looking for current advice as regards the usage of tocilizumab as an aid to getting down and off prednisolone. I met a helpful person on this site and he...

Just looking for current advice as regards the usage of tocilizumab as an aid to...

Stkeyna

•3 years ago

35 Replies

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Taking prednisolone before or after regular blood tests for ESR and CRP

For the last year I've been having blood tests every 2 months to check my ESR and CRP levels (among other things). I take my prednisolone every morning...

For the last year I've been having blood tests every 2 months to check my ESR an...

Pr0jection

•3 years ago

11 Replies

Cant seem to taper

Hi All, started on 15mg Pred in March, tried reducing slowly to 12.5, then pains returned in July. hospital put me back up to 13 for a month but still not pain...

Hi All, started on 15mg Pred in March, tried reducing slowly to 12.5, then pains...

Hidden

•3 years ago

4 Replies

ESR rate

Hello, as always I refer to this page as it gives me more information and help than I can get anywhere else with fellow sufferers. This is for the more...

Hello, as always I refer to this page as it gives me more information and help t...

Southmead

•3 years ago

8 Replies

Deeply grateful to all the replies about agonising shoulder pain

Many thanks to all of you Kind people for your advice regarding my agonising shoulder pain. I am currently trying my Tens machine which I had forgotten about...

Many thanks to all of you Kind people for your advice regarding my agonising sho...

butterflyfarm

•3 years ago

7 Replies

Steroid increase?

Hi there, I’ve been on steroids now for 4-5 years for PMR. I managed to gradually get down to 5mg successfully and then very slowly decreased from there down...

Hi there, I’ve been on steroids now for 4-5 years for PMR. I managed to gradual...

Suzan62

•3 years ago

9 Replies

Covid and predisolone

Have had a positive test result for Covid. Feel like I have a nasty cough and cold! So far. Just keeping to my pred 12.1/2 dose. Have same giddy bleary...

Have had a positive test result for Covid. Feel like I have a nasty cough and co...

Bedwell

•3 years ago

67 Replies

Private rheumatologist

Hi everyone, Back again, GP has referred hubby to a rheumatologist and he tried to see the one in question privately. Here in the North West of England (we...

Hi everyone, Back again, GP has referred hubby to a rheumatologist and he tried...

piggylovesgolf

•3 years ago

8 Replies

Sodium / potassium

Sodium intake . Hi a question regarding sodium intake and potassium .I’m on pred 15 mg - I have noticed the days I am not paying attention to diet ( most days...

Sodium intake . Hi a question regarding sodium intake and potassium .I’m on pred...

Ballywilliam

•3 years ago

2 Replies

Oh my goodness - stress

I have been quiet for a while but am still reading and following daily posts and gain so much comfort and encouragement from other people's experiences. I...

I have been quiet for a while but am still reading and following daily posts and...

Poshdog

•3 years ago

2 Replies

Results of the Octave trial and news of a further study on response to vaccines in the immuncompromised

I thought people would be interested in reading these links: https://www.vasculitis.org.uk/news/octave-study-initial-findings The OCTAVE trial is one of the...

I thought people would be interested in reading these links: https://www.vasculi...

PMRpro

Ambassador•3 years ago

7 Replies

Hearing has improved

Thanks again for your support and advice re: my sudden severe hearing loss. I went to Charing Cross Hospital Audiology & Otology. I have to say I felt I was...

Thanks again for your support and advice re: my sudden severe hearing loss. I w...

whitefishbay

•3 years ago

2 Replies

Social Contact

Hi, I've just been just diagnosed with PMR, on 15mg pred per day. Can I ask about social contact? My GP says social distance, keep to large, well ventilated...

Hi, I've just been just diagnosed with PMR, on 15mg pred per day. Can I ask abou...

AshPen9

•3 years ago

15 Replies

Reducing prednisolone

Can someone please let me know the schedule for the dead slow reducing method. I did have a copy but can’t find it. Thank you

Can someone please let me know the schedule for the dead slow reducing method. I...

Amber1955

•3 years ago

4 Replies

Arms back shoulders really aching

Not sure if a flare on the way but my arms shoulders neck aching. How long should I wait to change prednisone please

Not sure if a flare on the way but my arms shoulders neck aching. How long shoul...

Uglow

•3 years ago

38 Replies

Covid and predisoline

I have posted something somewhere!!! But can’t see anything in faq about having Covid and pmr! There must be something somewhere!

I have posted something somewhere!!! But can’t see anything in faq about having ...

Bedwell

•3 years ago

4 Replies

Scan Results

I have just received my results from my Dexa scan done two years after taking steroids forPMR The hip is +2.4 and spine is +1.3 I am 70 in a few weeks and I...

I have just received my results from my Dexa scan done two years after taking st...

Iamfedup

•3 years ago

8 Replies

Tired of being Tired!

I have had GCA for 12 years now and my latest scan showed a residual amount left. So my consultant thinks it is just a case of getting off the prednisolone. I...

I have had GCA for 12 years now and my latest scan showed a residual amount left...

Stkeyna

•3 years ago

21 Replies

Carpal Tunnel Syndrome - What Now?

Morning all. l was fairly happily bumbling along on 5mg when the Carpal Tunnel Syndrome that has been slowly making itself more known over the last few months...

Morning all. l was fairly happily bumbling along on 5mg when the Carpal Tunnel S...

Bcol

•3 years ago

21 Replies

Large study finds having Covid is far more likely to cause blood clots than the vaccines.

https://www.theguardian.com/world/2021/aug/27/blood-clot-risk-greater-after-covid-infection-than-after-vaccination "The chances of developing dangerous blood...

https://www.theguardian.com/world/2021/aug/27/blood-clot-risk-greater-after-covi...

PMRpro

Ambassador•3 years ago

2 Replies

Finished my Flucloxacillin course.

Following a chest Infection & hospital stay then release, I completed a course of Flucloxacillin tablets, (4 x 2, 55mG per day), yesterday. Last night I was...

Following a chest Infection & hospital stay then release, I completed a course o...

Hidden

•3 years ago

2 Replies

Agonising shoulder pain

Just reduced to 10 mg of Prednisolone and the pain in my left shoulder is like a knife but my blood test last week showed a normal ESR and CRP. My...

Just reduced to 10 mg of Prednisolone and the pain in my left shoulder is like a...

butterflyfarm

•3 years ago

41 Replies

Delta variant and theory of evolution

Interesting read on how evolution explains what is happening to original virus and mutations. https://www.alternet.org/2021/08/delta-variant-2654767486/

Interesting read on how evolution explains what is happening to original virus a...

pmr_nikola

•3 years ago

5 Replies

Wondering about Dupixent.

My granddaughter 17, has eczema. Longterm problem. They are considering starting her on Dupixent. Any where on the site that would be of help? Thanks

My granddaughter 17, has eczema. Longterm problem. They are considering starting...

Manderson

•3 years ago

2 Replies

Benefits?

Is there anyone on here that claims benefits for PMR? I’m struggling to work to be honest only work three days a week I resigned today. I have headache again!...

Is there anyone on here that claims benefits for PMR? I’m struggling to work to ...

Hidden

•3 years ago

12 Replies

Some advice, please

I have not posted for a long time but have been following the daily thread and have often picked up some very helpful information. I have been tapering using...

I have not posted for a long time but have been following the daily thread and h...

Billswife

•3 years ago

15 Replies

No more Calcium supplements

Having done quite a bit of research on the effectiveness of calcium supplements in improving bone health, I discovered that the thinking around this is...

Having done quite a bit of research on the effectiveness of calcium supplements ...

Kendrew

•3 years ago

68 Replies

Quite fed up now.

I've had a vague illness for 2 weeks plus. Raging temps at night (now diminished thankfully), uncomfortable bowel movements but not diarrhea. Lethargy,...

I've had a vague illness for 2 weeks plus. Raging temps at night (now diminishe...

IdasMum

•3 years ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2021

Pred in the sunshine

Tapering or what?

Tocilizumab and coming off prednisolone

Taking prednisolone before or after regular blood tests for ESR and CRP

Cant seem to taper

ESR rate

Deeply grateful to all the replies about agonising shoulder pain

Steroid increase?

Covid and predisolone

Private rheumatologist

Sodium / potassium

Oh my goodness - stress

Results of the Octave trial and news of a further study on response to vaccines in the immuncompromised

Hearing has improved

Social Contact

Reducing prednisolone

Arms back shoulders really aching

Covid and predisoline

Scan Results

Tired of being Tired!

Carpal Tunnel Syndrome - What Now?

Large study finds having Covid is far more likely to cause blood clots than the vaccines.

Finished my Flucloxacillin course.

Agonising shoulder pain

Delta variant and theory of evolution

Wondering about Dupixent.

Benefits?

Some advice, please

No more Calcium supplements

Quite fed up now.

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