Sometimes I think I will never understand this illness, 6 years of raised CRP 185 at the onset of GCA, I was told by my first Rheumatologist that it may never return to normal. I have been having regular flares when I attempt to taper. This time just over a week ago got down to 4.5 then the headaches started so upped it a bit but not until I got to 10 was I sorted, should have done that from the onset. As I hadn’t had any bloods done since February and Brave Heart my Rheumatologist had cancelled me, I thought I should have some done. I told my husband that PMRPRO had said not to increase if the markers weren’t raised but when he looked at the results this morning it was CRP 8 and ESR 10, my markers haven’t been this low for at least 3 years. Makes no sense.
Bottom line is I am absolutely fine, back to dead slow tapering again and listening to my body
Take care all of you 🥂🥂