Screaming silently with frustration: Hello. I'm new... - PMRGCAuk

PMRGCAuk

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Screaming silently with frustration

BeeEmmBee profile image
13 Replies

Hello. I'm new here. I can't type in a message myself because I am partially sighted. My husband has spent the past 30 minutes or so typing in my questions and worries. He pressed a wrong key and lost it.

He's going to disconnect while he types it differently for me, then I'll be back.

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BeeEmmBee profile image
BeeEmmBee
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13 Replies
PMRpro profile image
PMRproAmbassador

It might be helpful if he types it somewhere else - in Word or some processing option - and then copy and paste it into the forum. It happens more than it should,

But welcome - and see you again soon.

BeeEmmBee profile image
BeeEmmBee in reply to PMRpro

Thanks for that suggestion. Neither of us had thought of that sensible way of doing it.

We've been distracted for the last 23 days. Our grandson (28 years old) became ill in mid-March with suspected Covid-19. He self-isolated for a week but during that time had increasing difficulty breathing. He was taken to the local Covid-90 ITU and placed on a ventilator. After 5 days he was transferred to a major London hospital, 180 miles away. He has been on a lung by-pass machine with other life support. We have the impression that the next 7 to 10 days will be critical for him, that either he will start to recover or his support will be withdrawn so that someone may be given a chance to you.

We are nearly out of our minds with anxiety.

PMRpro profile image
PMRproAmbassador in reply to BeeEmmBee

I'm so sorry - I can understand why the forum hasn't been on your mind! I do hope he will improve - he is obviously very ill. Did he have any underlying disorders? The dicussion on Sky News today has been underlining the fact that this is now affecting young and previously fit and healthy people, not just the old people they expected it to be. I think the early insistence that this was a mild illness for most people has resulted in too many being very dismissive of it, not understanding their lives could be on the line too.

All the best for you all xxxxxx

BeeEmmBee profile image
BeeEmmBee in reply to PMRpro

Back sooner than expected. We'd been hoping to order a few groceries online, either for delivery or click and collect. No slots of either type availble for the next 3 weeks.

Our grandson was a fit and active young man until CV19 hit him. Like so many young people now, he is usually physically active, jogging or in a gym and has never smoked (tobacco or drugs), eats sensibly, etc.

Talking to a friend in the NHS, she said the younger patients who become ill seem to become VERY ill.

PMRpro profile image
PMRproAmbassador in reply to BeeEmmBee

Yes, I think that is emerging as a fact. Which seems strange - my nurse daughter and I were just talking about it: we can see why young poor adults suffer as obesity, poor lifestyle and poor diet are obvious factors in poor health. It will be interesting to see why that is the case - they will find out eventually.

All the best to you all

BeeEmmBee profile image
BeeEmmBee in reply to PMRpro

Thanks!

in reply to BeeEmmBee

I hope you get a slot. Good luck to your grandson. Take care. 🌻

BeeEmmBee profile image
BeeEmmBee in reply to

Thanks

BeeEmmBee profile image
BeeEmmBee in reply to PMRpro

No, no pre-existing conditions, far from it. Now, more than a year later, he is out of hospital and doing relatively well, although there are Long Covid symptoms. He and we look at the positive side of it rather than the negatives such as damage to liver, heart etc. The current thinking is that there a genetic explanation for WHY he was so ill for so long.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

If you have an iPad .. you can use a microphone and dictate your post. No sure how good it is - but as you’re partially sighted it might be worth looking at RNIB website for suggestions for iPad & PC

rnib.org.uk

BeeEmmBee profile image
BeeEmmBee in reply to DorsetLady

Thanks for your suggestion. We don't have an iPad or a microphone and confess to being anything but computer or tech. literate. We even have trouble with the TV zapper!

I'll get my husband to do as you suggest, looking at the RNIB website.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to BeeEmmBee

Please do.

BeeEmmBee profile image
BeeEmmBee in reply to DorsetLady

thanks for that suggestion. We'll follow it up.

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