PMR discussion

[Ladymax123]

Recently diagnosed with PMR.

Anyone have same condition if do how does it affect you.

[HeronNS]

I suppose if you read through the many posts on here you'll get a good overview of the many and various ways PMR affects us! How are you doing?

[Yellowbluebell]

Hi could you please fill in your profile details i.e age, date of diagnosis, dose. This helps us give you advice. YBB

[Ladymax123 in reply to Yellowbluebell]

Ok Thanks I will

[Ladymax123 in reply to Yellowbluebell]

Thanks

[Ladymax123 in reply to Yellowbluebell]

Anyone know what's the advice on prednisolone and covid19 pls

[PMRpro Ambassador]

Welcome! Now then - bit of discrepancy between name and image. Or is that REALLY a pred beard???????

Are there any more of us? There are nearly 200 new members since the New Year - most of whom, according to the statistics, will have PMR ...

[Ladymax123 in reply to PMRpro]

Pre beard

[Ladymax123 in reply to Ladymax123]

Oh you mean steroid beard

[PMRpro Ambassador in reply to Ladymax123]

[Ladymax123 in reply to PMRpro]

Any advice on covid19 and prednisolone

[PMRpro Ambassador in reply to Ladymax123]

I'm sorry - please could you look at past posts? I know there are a lot but there are some discussing pred and Covid. If you want more response then I suggest you try a new thread where others will see the question - and what exactly do you want to know?

[Ladymax123 in reply to PMRpro]

How do I do that pls

[Daffodilia]

Diagnosed Oct 2018 - aged 65 - pred worked like miracle - tapered to 5.5 now - have some aches and pains - had to rest more and find some less physical activities - still do Nordic walk and now Pilates - life is sweet - good luck

[Ladymax123]

Feel lost Not many men with PMR.

[DorsetLady PMRGCAuk volunteer in reply to Ladymax123]

Please don’t don’t feel lost - yes you are in the minority but there are some men about. Maybe they’re not so forthcoming about their illness as women! Nothing new there then.

But many of the problems you have us ladies can still help you with, and we all felt lost at the beginning - but that’s because of the illness as much as anything - so you might get more responses if you asked a specific question rather than a general one.

Stick with us we’ll get you through.

Have you considered attending a group if there is one in your locality. Have a look here and see if there’s one you might be interested in - pmrgca.co.uk/groups/

[Ladymax123 in reply to DorsetLady]

Thankyou.

On top of PMR I've had hip and knee replacements. This wretched condition happened overnight. At worst couldn't lift both arms or move bedding. Both hands were agony with carpal tunnel type symptoms. At moment I only have pain in both shoulders now so much Improvement. I'm Terrified of GCA. My Rheumatologist has assured me Idont have this.

[DorsetLady PMRGCAuk volunteer in reply to Ladymax123]

I’ve had knee & hip replaced - fortunately once clear of GCA and off the Pred. Now waiting for shoulder to be operated on.

Good to hear that pain improved on Pred.

It’s not a given that just because you have PMR you will get GCA - but it’s obviously in people’s minds. In fact most on here don’t have GCA - so they are in the minority! Some do have both but most have PMR.

Don’t live your life in terror of GCA - if may never happen, but if it should - you’re a step ahead - at least you’re in the system and your Rheumy is aware of it.

Take care.

Have a look at this for a bit more info - hope it doesn’t scare you too much - healthunlocked.com/pmrgcauk...

[Purplecrow]

Hi, I had never heard of PMR till my friends father was diagnosed. Within a year, I was also diagnosed...then I found this forum.

I expect there are lots of men living with PMR, who never show up here.

Welcome, please contribute, and maybe more men will find this great source of information.

[Hidden]

Hi, just about all the post over recent days are about the virus and pred/pmr/gca/possible outcomes etc. Just have a read of them and see if you have any fjrther questions. 🌻

[Ladymax123 in reply to Hidden]

Hi.

I'm sorry which articles should I read

Thank you

[Hidden in reply to Ladymax123]

I'm sorry it's a bit of a minefield but the ones easier in the week. I will have a quick glance and see if I can remember!

[Ladymax123 in reply to Hidden]

I read them all. Thanks.

Helped me .

Do you have a name. Pls

[Hidden]

Hi try some of these. They are on and off and filled with general comments but hopefully it will help you determine if you have a specific question.

healthunlocked.com/pmrgcauk...

healthunlocked.com/pmrgcauk...

healthunlocked.com/pmrgcauk....

healthunlocked.com/pmrgcauk...

[Paperroses]

Ive had PMR since last spring ,never heard of it before, read its mostly women who get it but over the past few months talked with 2 gentlemen that had it and are perfectly fine now. They both said it will pass.