Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,594 members • 38,695 posts

All posts for September 2019

Update from Rheumy

Dismissed my request for a slow taper. Wasn’t even prepared to listen to how it worked . Wants me on 10 for another 3 weeks ( done 10 days up to now ) 4 weeks...

Dismissed my request for a slow taper. Wasn’t even prepared to listen to how it ...

Bridge31

•5 years ago

45 Replies

Changing my name

Name change- how do I change from Russell 49 to another heading as this implies I am a 49 year old man and I am a 76 year old woman?

Name change- how do I change from Russell 49 to another heading as this implies ...

Tiramisu76

•5 years ago

14 Replies

HOT HOT HOT

Hi , me again when I do sleep ,I keep waiting up sweating cobs 4times last night . Is this the pred or.a combination of PMR? lot worse than menapause ....

Hi , me again when I do sleep ,I keep waiting up sweating cobs 4times last nigh...

Lancashirelass07

•5 years ago

41 Replies

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Steroids for the rest of my life?

Re. GCA. Has anyone here been told that they will have to remain on a low dose of steroids for the rest of their life because their GCA reoccurred? The...

Re. GCA. Has anyone here been told that they will have to remain on a low dose o...

LindaKent

•5 years ago

10 Replies

Hip Bursitis

I think I have seen a few comments regarding hip bursitis and wondered if this is common with PMR. Bursitis in my left hip became acute right after PMR hit me...

I think I have seen a few comments regarding hip bursitis and wondered if this i...

fishingnut

•5 years ago

12 Replies

Is my mind playing tricks on me???

I'm sure this has been addressed, but thought I would just go ahead and ask since I'm on anyway. I was diagnosed with GCA last November. I started on 60 mg...

I'm sure this has been addressed, but thought I would just go ahead and ask sinc...

luv2read

•5 years ago

19 Replies

Raised urea at blood test

Has any one out there had raised urea levels at blood test? I have RA and am on methotrexate.

Has any one out there had raised urea levels at blood test? I have RA and am on ...

Missfitt

•5 years ago

3 Replies

Just diagnosed with osteoporosis,and prescribed AA,

I dexa scan few weeks ago and results show osteoporosis in spine and neck,, I’ve only been on pred since June so must have had it for quite a while, can’t...

I dexa scan few weeks ago and results show osteoporosis in spine and neck,, I’ve...

Freshmimt

•5 years ago

16 Replies

Question about symptoms

I've been doing very well in the last few months, slowly stepping down. I'm at 3.75mgs of methylprednisolone -- I have to cut the pill to do this, but this...

I've been doing very well in the last few months, slowly stepping down. I'm at ...

SanRaphaela

•5 years ago

16 Replies

Up or down?

I am in a full blown flare after a couple of stressful weeks and think I should go up from my 15mgs to 20mgs. How long can I stay on 20mgs before dropping back...

I am in a full blown flare after a couple of stressful weeks and think I should ...

Chrissiedon

•5 years ago

14 Replies

experience with bophosphonate infusions

My doctor says I need to have biphosphonate infusions ( she has given me a pamphlet referring to zolendronate infusion, a form of biphosphonate), as I have...

My doctor says I need to have biphosphonate infusions ( she has given me a pamph...

Tiredcat

•5 years ago

20 Replies

Suspected PMR

I’ve had 4 spinal fusions but over the last 18 months I’ve been suffering with severe cramp and pain in my neck shoulders and hips I was tested for rheumatoid...

I’ve had 4 spinal fusions but over the last 18 months I’ve been suffering with s...

pold68

•5 years ago

33 Replies

Possible lupus

I’ve had PMR/GCA since May 2016, started at 60 mg. Prednisone, now down to 3.5 mg. I’ve developed a face and scalp rash and the Dr. will do a biopsy Oct. 9 to...

I’ve had PMR/GCA since May 2016, started at 60 mg. Prednisone, now down to 3.5 m...

Mgeorge

•5 years ago

9 Replies

When to stop your taper

Hello dear fellow sufferers, I was diagnosed April 2017, have followed the slow taper advice and am now between 3 and 3.5 mg prednisone. However, I have been...

Hello dear fellow sufferers, I was diagnosed April 2017, have followed the slow ...

Notaddi

•5 years ago

13 Replies

Bowen therapy

Has anyone had good results with Bowen Therapy?

Summerrental

•5 years ago

8 Replies

Charlie boy. Off piste

Just wanted to thank all of you who replied to my original post for all your lovely messages which I really appreciated. Life goes on now, but it felt very...

Just wanted to thank all of you who replied to my original post for all your lov...

Charlie1boy

•5 years ago

12 Replies

Hunter 134

Does anyone else have raised white blood cells being on prednisone?

Hunter134

•5 years ago

9 Replies

Hunter134

Hi.Had a relaose in Apr this year.Started on 15 mg prednisone in early June.At 10 mg now and when o try to go to 9.5 my symptoms reappear.Got my bloodwork back...

Hi.Had a relaose in Apr this year.Started on 15 mg prednisone in early June.At 1...

Hunter134

•5 years ago

3 Replies

Just when I thought I had had everything....

73 year old male with GPA 2 weeks ago, at the weekend, I had some pains in my legs and feet. These were different pains than I had experienced before. I went...

73 year old male with GPA 2 weeks ago, at the weekend, I had some pains in my l...

lfu2

•5 years ago

9 Replies

Reducing

I have come down from 8mg of pred since July. I am now at 6mg. On 8mg I was taking 5mg in morning and 3mg evening. My Reumy is wanting me off the evening dose...

I have come down from 8mg of pred since July. I am now at 6mg. On 8mg I was taki...

Robinsnest72

•5 years ago

18 Replies

Lightning Process...anyone tried it?

Has anyone used/ heard of the Lightning Process developed by Phil Parker? I mention it because a friend of mine has a daughter with chronic fatigue and tried...

Has anyone used/ heard of the Lightning Process developed by Phil Parker? I men...

Daisyfield

•5 years ago

19 Replies

No wonder I was in pain!

Some of you will recall that when I returned from Minorca on 4th July I had a burnt foot, despite having worn Factor 50. Ever since then, I have been telling...

Some of you will recall that when I returned from Minorca on 4th July I had a bu...

Oxford8

•5 years ago

32 Replies

Hit a snag..

Initially diagnosed in April this year and 15mg Prednisolone sorted the pain quickly. Stayed on 15 mg for 7 weeks and have been reducing by 1mg per month since...

Initially diagnosed in April this year and 15mg Prednisolone sorted the pain qui...

jaycee444

•5 years ago

6 Replies

How do I know when my own immune system kicks in?

I have tapered from 30 mg prednisone (August 2018) to 4.5 mg and would like to know when my own immune system “wakes up”. How will I know? I have been really...

I have tapered from 30 mg prednisone (August 2018) to 4.5 mg and would like to k...

Cairocat

•5 years ago

6 Replies

Reducing for 2nd time

I was diagnosed about 4 and a half years ago and thought my PMR had burnt itself out. I reduced to zero using the very slow method and was ok without pred for...

I was diagnosed about 4 and a half years ago and thought my PMR had burnt itself...

margiebell4

•5 years ago

6 Replies

Now down to 2mg of prednisone--how fast should I go from here?

I was diagnosed with PMR 22 months ago, started on 20mg of prednisone, which worked like magic. Side effects including weight gain, bone loss,sleeeplessness,...

I was diagnosed with PMR 22 months ago, started on 20mg of prednisone, which wor...

Moralis

•5 years ago

6 Replies

Any Ideas of What is going on with me?

This is a curious question for me: why does my SED rate go high when I try to reduce pred. from 25 and yet my symptoms seem to be more arthritis than PMR....

This is a curious question for me: why does my SED rate go high when I try to re...

Trevgrrl

•5 years ago

15 Replies

Thank you

Thanks to all who replied to my question about exhaustion.

Summerrental

•5 years ago

Be the first to reply

Very sore neck

I’ve had a very sore neck for over a month now and have wondered if PMR is involved.

I’ve had a very sore neck for over a month now and have wondered if PMR is invol...

Wayfair

•5 years ago

9 Replies

Anxiety whilst reducing

Has anyone experianced feelings of anxiety and churning stomach when reducing below 5.5mg of Preds? Is the reason for this that my adrenal glands start to...

Has anyone experianced feelings of anxiety and churning stomach when reducing be...

195536

•5 years ago

30 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2019

Update from Rheumy

Changing my name

HOT HOT HOT

Steroids for the rest of my life?

Hip Bursitis

Is my mind playing tricks on me???

Raised urea at blood test

Just diagnosed with osteoporosis,and prescribed AA,

Question about symptoms

Up or down?

experience with bophosphonate infusions

Suspected PMR

Possible lupus

When to stop your taper

Bowen therapy

Charlie boy. Off piste

Hunter 134

Hunter134

Just when I thought I had had everything....

Reducing

Lightning Process...anyone tried it?

No wonder I was in pain!

Hit a snag..

How do I know when my own immune system kicks in?

Reducing for 2nd time

Now down to 2mg of prednisone--how fast should I go from here?

Any Ideas of What is going on with me?

Thank you

Very sore neck

Anxiety whilst reducing

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