Itching rash with PMR?: Itching rash before PMR... - PMRGCAuk

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Itching rash with PMR?

Pirnilla profile image
10 Replies

Itching rash before PMR?

One month before my PMR pain started I got these itching rashes down the back of my thies. They descended as soon as I started Pred treatment naturally. Now, going towards 3,75 mgs, it’s back. Anyone who has experienced this?

The skin doctor says that it isn’t from my PMR, but I’m curious.

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Pirnilla profile image
Pirnilla
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10 Replies
SheffieldJane profile image
SheffieldJane

I think Pred can mop up things in its wake. I had Psoriasis in my ears, really troublesome with repeated infections. It has gone completely. I sincerely hope it doesn’t return. I am at 4 mgs. I also had a tiny patch of dry skin on my lip. I had tried everything. It went with Pred. I am sorry your rash has reappeared. I wonder if the occasional use of a very low dose cortisone cream (0.01) with a plain moisuriser in between, would scare it off?

PMRpro profile image
PMRproAmbassador

I itched generally with PMR before pred and developed bad patches in specific areas which often got wet and weepy. Trimovate cream was the only thing that dealt with it - canestan didn't so it wasn't purely fungal - but I eventually realised that when I was on a low carb way of eating it improved, returning with a vengeance during and after our trips to Italy. I narrowed it down to wheat - and the starch in wheat at that, gluten isn't a problem. No wheat, no itch. At higher doses of pred I can eat small amounts of wheat which makes it easier to deal with when restaurants look at you as if you have two heads when you ask if there is wheat in something or for gluten-free!

Judging by recent threads I think a lot of people have similar problems, albeit to various things and I think it IS part of the PMR, the malfunctioning immune system finding other things to have a paddy about.

Pirnilla profile image
Pirnilla in reply to PMRpro

I think so to. I had this problem being a teenager so I guess rash is in my system. So when the inflammatory system sent totally crazy 2 years ago, this also occured. My reumy and the "skin doctor" says that those 2 shouldn't be conected. I just hope that I can slooooowly taper my Pred and that my rash returning is not a sign that my PMR is going to take me into a flare.

PMRpro profile image
PMRproAmbassador in reply to Pirnilla

It worries me when doctors have such narrow views. I had a cardiology/rheumatology problem - could they talk to each other? Not on your life.

Pirnilla profile image
Pirnilla in reply to PMRpro

It was actually my reumy who helped me get an appointment with the skin doctor and I saw them at the same time, so they did speak to each other. Still my feeling is that I can get answers here from far more patients with PMR than my reumy meets in a year. Most patients she meets have more severe conditions.

Blearyeyed profile image
Blearyeyed

That's good the skin doctor has ruled out a link to you PMR , so what have they ruled in?

I assume that they have realised that you need some other sort of treatment for it and are doing tests and haven't just sent you on your way.

It is telling in skin issues if they respond to steroid medication and get worse on lower doses, especially if you have been doing the same sort of personal skin care all along but did not have worsening skin itches growing gradually like many of us do.

Have they ruled out Eczema or drug or allergy related skin conditions or some other type of inflammatory skin issue ?

Hellyowl profile image
Hellyowl

Hi this forum told me about double base gell. I had an ' invisible rash,' on my back and occasionally my thighs, which became unbearable, but there was nothing to show a doctor. I am sure it was the pred . double base gell helped loads and below 5 mg it has disappeared as misteriastly as it arrived

in reply to Hellyowl

I agree the double base gel really helps with these transient itchy things!

Pirnilla profile image
Pirnilla in reply to

I guess that won't help me as mine are really visible water filled small blisters and they come when I am tapering below 5 mg. Only cortisone gel will help.

in reply to Pirnilla

It is reminiscent of allergy/irritation (derm/hives thing) type thing. Blisters! If they had just appeared now and not previously I would be saying shingles or the like. I had Reddy brown marks that were up my calves for 20 years that the Dr said nothing to worry about. Then they started at the top of my thighs. No itchiness or soreness. I was DX with hypothyroidism a few years ago and within 3 months of taking thyroxine they were gone. I haven't found images that were the same as anything that is associated with thyroid. The body is a weird fish sometimes.

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