Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for June 2019

Boosting your adrenals?

Many of us experience problems when we are getting lower in dose and the adrenal glands are supposed to kick in and start giving us cortisole instead of Pred....

Many of us experience problems when we are getting lower in dose and the adrenal...

Pirnilla

•5 years ago

23 Replies

GCA sight

Went into ophthalmologist urgently yesterday. (See I have listened) Pain in other eye & continued back of head pain (not bad level3) DR didn't see anything...

Went into ophthalmologist urgently yesterday. (See I have listened) Pain in othe...

Spanky2019

•5 years ago

21 Replies

Cannot Seem to Taper At All

For many months my GP had me on 10mg of pred, and it was not enough. When I developed troncheric bursitis, I went up to 15mg and that took care of it,...

For many months my GP had me on 10mg of pred, and it was not enough. When I dev...

schmuppy

•5 years ago

13 Replies

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Eye appointment + update on prednisone taper

I am going for an eye appointment tomorrow, I know my vision has changed since a year ago. I don’t know if this is due to being a year older or having been...

I am going for an eye appointment tomorrow, I know my vision has changed since ...

29Pain00

•5 years ago

27 Replies

GCA and Valcyclovir for VZV virus

Hello, Am very keen to know if anyone here has found success with treatment using Valcyclovir to reduce symptoms of GCA or then maybe obtained remission...

Hello, Am very keen to know if anyone here has found success with treatment usin...

Iwillwin123

•5 years ago

13 Replies

Bladder pain...is this PMR?

For the last three weeks I have had a pain when wanting to to urinate and then urinating which goes away till I want to go next time. I have tried a herbal...

For the last three weeks I have had a pain when wanting to to urinate and then u...

PamJCam

•5 years ago

28 Replies

Doing well

I went off prednisone for 2 weeks after taking for a year and felt symptoms coming back, occasional aches in shoulders and difficulty walking and getting out...

I went off prednisone for 2 weeks after taking for a year and felt symptoms comi...

Heinrich7

•5 years ago

5 Replies

Has anyone else had knobbly inner arm muscles.

Could this be proof of PMR? I should be seeing my rheumatologist this month but he is unsure that I have it despite all the symptoms on diagnosis I couldn't...

Could this be proof of PMR? I should be seeing my rheumatologist this month but...

marigolds

•5 years ago

14 Replies

Should I increase my Pred

Hi. As per previous notes PMR for 28 months, up and down with pred, down to 4 mg then raised to 10mg about 4 weeks ago. I am still not in a good place...

Hi. As per previous notes PMR for 28 months, up and down with pred, down to 4 mg...

SRIXON

•5 years ago

13 Replies

Still fighting the dragon

Hi everyone , i have not posted for quite some time but I do check in regularly . My update; got down to 2-5 mg prednisalone , very very slowly , rhummy very...

Hi everyone , i have not posted for quite some time but I do check in regularly ...

Islandgirl50

•5 years ago

10 Replies

Tinnitus and prednisone

Just a quick question, has anyone experienced either an increase or the onset of tinnitus while taking prednisone? In my case I've had tinnitus at a very low...

Just a quick question, has anyone experienced either an increase or the onset of...

Ozark

•5 years ago

38 Replies

When do the adrenal glands 'switch off'?

Hi, i have another question for the experts please! I've read lots of the posts on here and feel I'm so much more informed about PMR, so pleased I've found...

Hi, i have another question for the experts please! I've read lots of the posts ...

Booboos171

•5 years ago

22 Replies

down to one mgm

i am currently down to one mgm a day and seem yo be fine.has anyone else gotten that low should i try to go off it or go to one half a pill

i am currently down to one mgm a day and seem yo be fine.has anyone else gotten...

piping9

•5 years ago

9 Replies

Chronic prednisone use and inflammation markers

I have always been on prednisone the last three years for clinical diagnosis of GCA. The first time my inflammation markers were checked was about three months...

I have always been on prednisone the last three years for clinical diagnosis of ...

kellykel

•5 years ago

19 Replies

The Polymyalgia Rheumatica Diet Paperback – Mar 20 2014by Susan Parker MAT (Author)

Has anyone in the forum read this book, if yes, do you recommend it??? I am relatively new to the forum and to PMR and want to find out as much as I possibly...

Has anyone in the forum read this book, if yes, do you recommend it??? I am rel...

Musiclady18

•5 years ago

12 Replies

For everyone struggling with extra padding

Saw this and it made me chuckle

JulieR2

•5 years ago

26 Replies

Recovered from PMR

Hi , I’m new here. Just thought to share a hopeful message that recovering from PMR can happen, even though it feels like you never will. I was on...

Hi , I’m new here. Just thought to share a hopeful message that recovering from ...

Sniggi

•5 years ago

56 Replies

Any one else got " the shakes"?

I was on Prednisolone all last year, no side effects I couldn't deal with. Unfortunately had to start again 6 weeks ago, now on 10mg ( 15,12.5) . I feel quite...

I was on Prednisolone all last year, no side effects I couldn't deal with. Unfor...

Breconblue

•5 years ago

12 Replies

How to assess tapering if you've never been pain free.

I think some of you, like me, have never been pain free even when on prednisone. My rheumatologist said I could start tapering as my inflammation markers have...

I think some of you, like me, have never been pain free even when on prednisone....

Navion

•5 years ago

33 Replies

PMR

My husband has PMR. Was diagnosed very quickly by GP. At stage of cutting down on steroids as told horror stories of being on them too long. He has had a...

My husband has PMR. Was diagnosed very quickly by GP. At stage of cutting down o...

Eniale

•5 years ago

8 Replies

Pred and breathing

Hi does anyone have problems with breathlessness when exercising.l have only noticed this recently.l was diagnosed in march and rhemy wants a quickish taper...

Hi does anyone have problems with breathlessness when exercising.l have only not...

irisweeder

•5 years ago

15 Replies

Dibeaties.

Has anyone else on our lovely group been told they have diabetes, three taken steroid.also wondering what to eat for sugar levels.thankyou in advance.from...

Has anyone else on our lovely group been told they have diabetes, three taken st...

geordiegirl1947

•5 years ago

13 Replies

Well it looks like I'm here to stay!

Hello all! I've been lurking since my GP suspected PMR on Thursday and sent me off with my first prescription for Pred. Looking back I've been on this road...

Hello all! I've been lurking since my GP suspected PMR on Thursday and sent me o...

Funnyoldworld

•5 years ago

42 Replies

Colonoscopy all good

No issues at all with my colonoscopy. The anaesthetist gave me extra Pred and I was fine. Many thanks for your responses so that I felt a lot more confident...

No issues at all with my colonoscopy. The anaesthetist gave me extra Pred and I...

crafty_grannie

•5 years ago

4 Replies

recurring headaches

I am trying to reduce my preds from 40mg to 35mg but after 2-3days the headaches(temporal) and jaw ache return, sometimes with "fuzzy " vision. Diagnosed with...

I am trying to reduce my preds from 40mg to 35mg but after 2-3days the headaches...

piggypink

•5 years ago

12 Replies

AREAS AFFECTED BY PMR

Having just got over GCA, I now have PMR. I can't believe all this stiffness and pain. Has anyone else had buttock and groin pain? Or I wonder if this...

Having just got over GCA, I now have PMR. I can't believe all this stiffness an...

sookiesue

•5 years ago

20 Replies

Updating profile

I've just tried to update my profile as requested and, though I've completed everything asked, it still tells me my profile is only 90% complete. Can't work...

I've just tried to update my profile as requested and, though I've completed eve...

maria40

•5 years ago

30 Replies

Fatigue

My fatigue is still a problem , can't walk far and any extra jobs seem impossible at the moment. I am still on on 20 mg dose of Prednisolone no confidence to...

My fatigue is still a problem , can't walk far and any extra jobs seem impossibl...

Blues1

•5 years ago

12 Replies

Anyone out their with lymph nodes issues !!!

Now the lymph nodes acting up.!! Any one else ?? With this issue ???

Mjhollywood1

•5 years ago

9 Replies

GCA update from California

I had a consult with new rheumatologist. He agrees to skip arterial biopsies and based on recent placement of stent for 96% Left Descending Artery blockage;...

I had a consult with new rheumatologist. He agrees to skip arterial biopsies and...

Anniegal

•5 years ago

33 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2019

Boosting your adrenals?

GCA sight

Cannot Seem to Taper At All

Eye appointment + update on prednisone taper

GCA and Valcyclovir for VZV virus

Bladder pain...is this PMR?

Doing well

Has anyone else had knobbly inner arm muscles.

Should I increase my Pred

Still fighting the dragon

Tinnitus and prednisone

When do the adrenal glands 'switch off'?

down to one mgm

Chronic prednisone use and inflammation markers

The Polymyalgia Rheumatica Diet Paperback – Mar 20 2014by Susan Parker MAT (Author)

For everyone struggling with extra padding

Recovered from PMR

Any one else got " the shakes"?

How to assess tapering if you've never been pain free.

PMR

Pred and breathing

Dibeaties.

Well it looks like I'm here to stay!

Colonoscopy all good

recurring headaches

AREAS AFFECTED BY PMR

Updating profile

Fatigue

Anyone out their with lymph nodes issues !!!

GCA update from California

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