Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,269 members • 37,944 posts

All posts for June 2019

Shingles Vaccination concern

Has anyone had the shingles vaccination after ceasing to take steroids? I tapered to zero successfully 6 weeks ago but I still have to take 15mg of...

Has anyone had the shingles vaccination after ceasing to take steroids? I taper...

Paulamac77

•5 years ago

24 Replies

Blue badge - I'm to be assessed by an independent physiotherapist.

Well here I am in the hot sun of Minorca. I used Airport Assist to get me here and the warmth of the sun is doing wonders for my well being. Made the mistake...

Well here I am in the hot sun of Minorca. I used Airport Assist to get me here ...

Oxford8

•5 years ago

8 Replies

My battle with Osteoporosis and PREDNISONE

I am a 73 year old Male. Started taking Pred 2 years ago. Started at 20mg then had to go to 30mg then tapered back down to 10mg where I am now. I also have...

I am a 73 year old Male. Started taking Pred 2 years ago. Started at 20mg then ...

Sadie1024

•5 years ago

3 Replies

Want to take advantage of all our features? Just log in!

Now I’m told it might be Palindromic Rheumatism

I...

Devedaaee

•5 years ago

25 Replies

Catch 22

When I was diagnosed in March 2016, with PMR, one of the most cheering things was that I learnt via the forum that for most people the disease burns out...

When I was diagnosed in March 2016, with PMR, one of the most cheering things wa...

SheffieldJane

•5 years ago

80 Replies

Black tongue

Hi I have just been diagnose with pmr I am still not sure what it is and is it serious one thing I forgot to tell the doctor my dentist said I have a black...

Hi I have just been diagnose with pmr I am still not sure what it is and is it s...

Doubter

•5 years ago

9 Replies

Down to 10 mg and experiencing this. Anyone else?

I am down to 10 from 20. Everyday it gets harder and harder for me to get out of bed. Not hurting yet, just exhausted for hours after getting up. Start...

I am down to 10 from 20. Everyday it gets harder and harder for me to get out o...

Hidden

•5 years ago

16 Replies

has anybody divided their Prednison into 3 parts?

I started with 20 mg Pred 4 month ago and by going to fast reducing and not being mindful of my new limitations,had to start over. Per your advise have taking...

I started with 20 mg Pred 4 month ago and by going to fast reducing and not bein...

km5yx7

•5 years ago

3 Replies

Third nerve palsy and PMR

In November 2018 I developed double vision and the ophthalmologist via A&E diagnosed third nerve palsy and said it would correct itself despite me telling her...

In November 2018 I developed double vision and the ophthalmologist via A&E diagn...

Fishponds50

•5 years ago

8 Replies

A great book

I’m taking an age to read a very good book about how the body is affected by trauma and stress. Written by a psychiatrist who wanted to see beyond the standard...

I’m taking an age to read a very good book about how the body is affected by tra...

SnazzyD

•5 years ago

20 Replies

Things Come in 'Threes'

It's a silly saying really - but like many of these little aphorisms - it contains some grains of 'truth' I guess - after all we do tend to notice when more...

It's a silly saying really - but like many of these little aphorisms - it contai...

Rimmy

•5 years ago

17 Replies

Drug interaction

Does no one take Omniprazole with their prednisolone? I also have to take tamoxifen, calcium. Omega 3 and vitamins D3 and K2. So far I take my omniprazole and...

Does no one take Omniprazole with their prednisolone? I also have to take tamoxi...

Mimma

•5 years ago

61 Replies

Flare Ups do and don’t please help

Need help had flares ups with PMR Flare up Saturday woke up hands very hard to move and both arms very hard to move I am currently taking 7 mg and overall...

Need help had flares ups with PMR Flare up Saturday woke up hands very hard to m...

jensen0518

•5 years ago

4 Replies

Do Quinine, Prednisone and Prilosec play nice?

My rheumy advised me to drink tonic water with quinine every day to relieve foot and leg cramps. I read differing opinions about safety and efficacy regarding...

My rheumy advised me to drink tonic water with quinine every day to relieve foot...

Blurry62

•5 years ago

25 Replies

Does anyone have experience of coping with a flare up of PMR without resorting to prednisolone?

This is my second flare up since ‘beating’ PMR in 2010. The first time it came back, I took prednisolone as my GP advised but was able to taper down and come...

This is my second flare up since ‘beating’ PMR in 2010. The first time it came b...

redteach

•5 years ago

23 Replies

Is there any proven research to link stress with a likely increase in PMR symptoms?

Hi I'm having problems with my employer who was refusing to make reasonable adjustments to allow me to return to work. I want to be able to tell them that all...

Hi I'm having problems with my employer who was refusing to make reasonable adju...

PMRfacebook

•5 years ago

24 Replies

Caring Rheumy Required

Can anyone suggest a Rheumy ideally in the East Midlands area as I require a second opinion urgently. Thank you.

Can anyone suggest a Rheumy ideally in the East Midlands area as I require a sec...

Cherubim

•5 years ago

13 Replies

Fragile skin pred related

Sent from my iPad Hi. I have been on pred since jan 2019 when diagnosed with PMR. Totally ignorant of this and every other rheumatic disorder, I was so...

Sent from my iPad Hi. I have been on pred since jan 2019 when diagnosed with...

Lejazzhot

•5 years ago

19 Replies

Adrenal insufficiency?

I'm dropping from 1.5mg to 1mg and I'm feeling fine... Working full time and doing lots of walking when time permits. My question is this... I'm suspecting my...

I'm dropping from 1.5mg to 1mg and I'm feeling fine... Working full time and doi...

JanetRosslyn

•5 years ago

19 Replies

Rusty Robot Legs

Rust Robot Legs. Are these heavy awkward legs caused by the PMR or the Prednisone?

Rust Robot Legs. Are these heavy awkward legs caused by the PMR or the Predniso...

Noosat

•5 years ago

35 Replies

Best time to take PRED

Im wandering is thier any benefit in taking my 13mg Pred at night instead of in a morning with my other meds for high BP and type 2. My PMR ia worse early...

Im wandering is thier any benefit in taking my 13mg Pred at night instead of in...

SRIXON

•5 years ago

33 Replies

Methotrexate

I've been taking 20 mg methotrexate for about 6 months in an effort to reduce my prednisolone intake. I've tried several times to reduce below 7 mg, all...

I've been taking 20 mg methotrexate for about 6 months in an effort to reduce my...

Jancorb

•5 years ago

26 Replies

Magnesium Malate

Morning all, Just wondered if any of you had used Magnesium Malate, someone advised I use it but side effects are tummy probs and bloating apparently? Many...

Morning all, Just wondered if any of you had used Magnesium Malate, someone adv...

lesley2015

•5 years ago

18 Replies

Results from visit to eye doctor

I want to thank all of you that responded to my last post. My appointment went very well. The doctor did every test imaginable. My eyes are in good shape....

I want to thank all of you that responded to my last post. My appointment went ...

29Pain00

•5 years ago

1 Reply

Flare of GCA after 4 yrs on Pred ?

Is it possible to have a flare of gca efter 4,5 yrs on pred ? I have had pmr and gca since nov. 2014. Tapered from 50 mg. to 5 in 10 months. Then a virus and...

Is it possible to have a flare of gca efter 4,5 yrs on pred ? I have had pmr and...

miss-philosopher

•5 years ago

13 Replies

PMR and exhausted!

I am currently on 9mg of prednisone after starting on 20mg. At first it has helped with all joint stiffness but it seems like I am completely exhausted all the...

I am currently on 9mg of prednisone after starting on 20mg. At first it has help...

Blue1943

•5 years ago

10 Replies

Breaking Up is Hard to do......with Prednisone that is.

Hello all, I am breaking the dark surface of a GCA flare. Several of you will remember about ten days ago I said I was depressed, frustrated, and trying to...

Hello all, I am breaking the dark surface of a GCA flare. Several of you will r...

Blurry62

•5 years ago

30 Replies

My 7 Month Nightmare With GCA?

In Nov 2016 I was diagnosed with PMR with a CRP of 45 and prescribed 20mg Prednisolone reducing over a year and was discharged in Nov 2017. The symptoms...

In Nov 2016 I was diagnosed with PMR with a CRP of 45 and prescribed 20mg Predni...

Cherubim

•5 years ago

43 Replies

Prednisone query

It seems Prednisone has a time span and it’s not 24 hours .I have been well informed by all the discussions here that this is not a race and that life is short...

It seems Prednisone has a time span and it’s not 24 hours .I have been well info...

Darcy2000

•5 years ago

28 Replies

Update on pmr?! Symptoms

I wrote around 6wks regarding pmr symptoms eg burning pain in shoulders and glutes,no muscle strength.turning moving in bed torture.high crp and esr,rapid...

I wrote around 6wks regarding pmr symptoms eg burning pain in shoulders and glut...

Mollieharry

•5 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2019

Shingles Vaccination concern

Blue badge - I'm to be assessed by an independent physiotherapist.

My battle with Osteoporosis and PREDNISONE

Now I’m told it might be Palindromic Rheumatism

Catch 22

Black tongue

Down to 10 mg and experiencing this. Anyone else?

has anybody divided their Prednison into 3 parts?

Third nerve palsy and PMR

A great book

Things Come in 'Threes'

Drug interaction

Flare Ups do and don’t please help

Do Quinine, Prednisone and Prilosec play nice?

Does anyone have experience of coping with a flare up of PMR without resorting to prednisolone?

Is there any proven research to link stress with a likely increase in PMR symptoms?

Caring Rheumy Required

Fragile skin pred related

Adrenal insufficiency?

Rusty Robot Legs

Best time to take PRED

Methotrexate

Magnesium Malate

Results from visit to eye doctor

Flare of GCA after 4 yrs on Pred ?

PMR and exhausted!

Breaking Up is Hard to do......with Prednisone that is.

My 7 Month Nightmare With GCA?

Prednisone query

Update on pmr?! Symptoms

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