Does anyone have itchy skin: Since my last flare (... - PMRGCAuk

PMRGCAuk

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Does anyone have itchy skin

Footfairy-1 profile image
33 Replies

Since my last flare (9 days ago) I've had itchy skin on my arms and chest. The flare was quickly under control and I'm gradually getting back down to where I was. Just wondered if anyone else had experienced this?

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Footfairy-1 profile image
Footfairy-1
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33 Replies
PMRpro profile image
PMRproAmbassador

Must be an allergy to the forums ;) You are about the 4th person this week to mention itching!!!!!

MhairiP profile image
MhairiP in reply to PMRpro

Strangely, I too have been feeling itchy! It's in the evenings and during the night, around my torso mainly (it's not shingles). Haven't changed my soap or clothes wash. What can it be - can there be some psychic/electronic force at work?!

PMRpro profile image
PMRproAmbassador in reply to MhairiP

It did occur to me earlier - it is well through the winter - which stresses our skin and dries it out with harsh weather and extra heating. A perfect storm maybe?????

Footfairy-1 profile image
Footfairy-1 in reply to PMRpro

Good thought. My skin doesn't feel dry and I always moisturise. Maybe I need to do more.

Marijo1951 profile image
Marijo1951

I had terribly itchy skin for a long time, but in my case it was my legs, especially at the back of my knees. I have been experiencing a flare of sorts during the last 3 weeks or so, and the itching has returned, but not nearly as badly. I've found that Aveeno products really help to relieve the itching. I use the baby bath wash for bath and shower plus the adult moisturiser.

Footfairy-1 profile image
Footfairy-1 in reply to Marijo1951

Thanks Marino

SheffieldJane profile image
SheffieldJane

Yes. I use a base cream that contains menthol recommended by Blearyeyes I think. It worked immediately. Nothing to see ever it was even on my face and scalp. Only at night, and only now and then.

Footfairy-1 profile image
Footfairy-1 in reply to SheffieldJane

There's nothing to see on my skin either 🤓

Danda99 profile image
Danda99

I have a rash all over from Pred. Slightly itchy but mostly just looks like a suntan. It disappeared when I was briefly below 5mg but I've a flare now and back to 10mg. The rash returned next day.

Footfairy-1 profile image
Footfairy-1 in reply to Danda99

I don't have any rash and I'm under 5mg. Never had it before

Danda99 profile image
Danda99 in reply to Footfairy-1

It is something different then. Hope you find the answer..

Hollyseden profile image
Hollyseden

I've had spells of really itchy back but no rash. Also had itchy scalp which was driving me mad. Used sensitive shampoo and that's helped relieve itching but not helped my poor hair which has thinned with pred. 🙄 Can't win eh?

Footfairy-1 profile image
Footfairy-1

It does drive you mad. 😱 My hair thinned but started to improve when I got to 5mg.

jinasc profile image
jinasc

If you are using enteric coated, then wash the dye off before you take them.

That dye can cause itching...............

Footfairy-1 profile image
Footfairy-1

Oh, I didn't know that. I've been taking them since 2017. Thanks for that info

HamishPMR profile image
HamishPMR

Yes, itchy skin with no rash over my upper arms mainly. I have suffered this for perhaps about ten years before developing PMR and often associated with the start of winter and a 10 hour hop from the UK to Florida. It usually goes away after a few days, say up to ten days. I am now a year into PMR and still occasionally have "itchy skin" (good name, thank you) again only for a few days. I am convinced that they are related.

PMRpro profile image
PMRproAmbassador in reply to HamishPMR

My skin dries out visibly on a long haul flight!! Despite drinking loads of water. And if I'm stupid enough to let soap near my body immediately before flying it is 10 times worse.

Footfairy-1 profile image
Footfairy-1 in reply to HamishPMR

Thanks for that 😊

celia81 profile image
celia81

You are not alone I am new to PMR and found the itching was troubling me try Johnson's baby oil only use small amount and gently it helps a lot

Footfairy-1 profile image
Footfairy-1 in reply to celia81

I always have moisturised and my skin doesn't look dry. I'm looking for a different moisturiser that's natural.

Meggie22 profile image
Meggie22

Yes I have itching under armpits and between toes chemist recommended Daktarin cream and it works for me.

Footfairy-1 profile image
Footfairy-1 in reply to Meggie22

Thanks Meggie22. I believe Daktarin is for fungul infections, so I'll give that a miss 😊

Hellyowl profile image
Hellyowl

I have had an itchy back so bad I couldn't bear cloth touching it. Someone on this forum recommended Doublebase Gel I get it from the pharmacy no prescription. OH rubs it on my back every morning. No more itching. Was even good for my red nose when I had a cold.

Footfairy-1 profile image
Footfairy-1 in reply to Hellyowl

I'll have a look at that, thanks Hellyowl. My itching is also worse with clothes covering the skin. Have to walk about nude (or not) 😱

Estellemac profile image
Estellemac

I have an itchy arm and left shoulder it start with a tingle no rash but dives me mad. Then a tiny spot appears and itches even more. No one else including the DR can see it till I’ve made it sore. I scratch in my sleep. I’ve used all sorts but it did go under 4mg Pred. Unfortunately my Pred reduction hasn’t worked and I am increasing again.

Footfairy-1 profile image
Footfairy-1 in reply to Estellemac

I know how maddening it can be Estellemac. Ahhhh. Fingers crossed 🤞it'll all just go away.

Lanakay profile image
Lanakay

Itching has nearly driven me mad this winter. There doesn’t seem to be a rash, just very itchy chest, arms, stomach and sometimes thighs. I’m in the US and I use Cerave or Cetaphil dermatologist recommended creams. It helps some.

Footfairy-1 profile image
Footfairy-1 in reply to Lanakay

I'll check them out, thanks Lanakay. Sounds just like I'm experiencing ☹️

Estellemac profile image
Estellemac in reply to Lanakay

I use Cetraben or Eurax (UK) eases it for a while.

Hellyowl profile image
Hellyowl

The person who posted about the Double base gel called it an invisible rash. If I itch anywhere else I slap on the gel straight away it does seem to work well. The itching gets worse as I reduced. I think mine is connected with steroid reduction.

Footfairy-1 profile image
Footfairy-1 in reply to Hellyowl

Thanks Hellyowl 😊

katiemills profile image
katiemills

I use double base moisturiser all over my body , daktarin for my toes , Hydromol bath and shower emollient and sometimes I top up with E45 intense recovery fast acting24 hour spray moisturiser . Seems to keep the itching at bay .

Footfairy-1 profile image
Footfairy-1 in reply to katiemills

Thanks Katie 😊

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