Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for November 2018

patiant.co.uk

can anyonr tell me what has happened to patiant.co.uk the site i have been on for years, but not of late. has it joined this site

can anyonr tell me what has happened to patiant.co.uk the site i have been on ...

pollyg263

•5 years ago

3 Replies

Just asking

With a flareup of Polymyalgia can you just get the stiff painful upper thighs when walking and not the neck shoulder stiffness?

With a flareup of Polymyalgia can you just get the stiff painful upper thighs wh...

Oldnets

•5 years ago

7 Replies

Ectopic heart beat

Two more stents fitted but have irregular hear beat most of the time. Feeling anxious particularly at night. Any thoughts on how to stop the heart jumping all...

Two more stents fitted but have irregular hear beat most of the time. Feeling an...

Stavros58

•5 years ago

13 Replies

Want to take advantage of all our features? Just log in!

Bad cat!!

Nothing about pmr just the delinquent cat I share a home with. She is usually very sly about getting on my quilts but tonight she has been really rude and not...

Nothing about pmr just the delinquent cat I share a home with. She is usually v...

Yellowbluebell

•5 years ago

54 Replies

Blood tests

I have been working down on my prednisone to 5 mg, but all of my shoulder and hip pain has come back. But despite 3 blood tests nothing shows the inflammation...

I have been working down on my prednisone to 5 mg, but all of my shoulder and hi...

blueisgreen

•5 years ago

25 Replies

From 15 to 14

I tried my first reduction after a month on 15mg. I only had stiffness from my elbows to the hands in the morning. I guess what I am asking is should I accept...

I tried my first reduction after a month on 15mg. I only had stiffness from my e...

3daysinjuly

•5 years ago

15 Replies

0.5 reduction

Can I possibly feel so bad with a tiny 0.5 reduction?? Aching legs and wrecked tired even more than normal if that's actually possible! Been on 4.5 what...

Can I possibly feel so bad with a tiny 0.5 reduction?? Aching legs and wrecked...

powerwalk

•5 years ago

46 Replies

synacthen test

good morning, just a technical question this time. Yesterday I went to the endocrinologist, after my gp reluctantly gave the green light. she took her time and...

good morning, just a technical question this time. Yesterday I went to the endoc...

Zofitmogelijk

•5 years ago

72 Replies

Query re flares

Since diagnosis I have been attempted to taper - I got down to 9 (from 15 - 12.5 - 10 ) and had 2 flares and started again and that time I got down to 10 mg...

Since diagnosis I have been attempted to taper - I got down to 9 (from 15 - 12.5...

Theziggy

•5 years ago

37 Replies

Toothache after a filling

On Tuesday, I had a replacement filling in a back tooth. The old filling had cracked so something had to be done, but there was no pain. Now, I have pulsating...

On Tuesday, I had a replacement filling in a back tooth. The old filling had cra...

Q-owl

•5 years ago

7 Replies

Zero pred for 6 weeks now PMR returned or never went away

I tapered down to zero with advice from GP but PMR is back with a vengeance. I can hardly get up from sitting down and am getting very little sleep and only a...

I tapered down to zero with advice from GP but PMR is back with a vengeance. I c...

cassie1208

•5 years ago

12 Replies

Aching shoulders, upper arms and neck

I'm into PMR/GCA and gradual reduction of prednisone, plus methotrexate. Does anyone else have aching in the shoulders, uppers and sometimes neck? Not the...

I'm into PMR/GCA and gradual reduction of prednisone, plus methotrexate. Does a...

Hidden

•5 years ago

39 Replies

Be Good To Yourself!

As the holiday season ramps up and those of us who are usually pretty good about not overdoing it, suddenly find ourselves in pain because we completely...

As the holiday season ramps up and those of us who are usually pretty good about...

Nitrobunny

•5 years ago

9 Replies

Movicol v generic Laxido et al

Just wondering what other people think about these drugs to help toilet activities? The much cheaper generic one Laxido has two E numbers in it. E950 and...

Just wondering what other people think about these drugs to help toilet activiti...

prunus

•5 years ago

26 Replies

For our American friends

To our American friends on here. 😃😃😃😃

York54

•5 years ago

13 Replies

'HEALTH', GARDENS AND A PHOTOGRAPHIC TRIBUTE TO AMERICAN WOMEN FOR THANKSGIVING FROM WEST IRELAND

Please permit me to digress (again) from a direct focus on PMR/GCA - but ultimately this is about the 'health' of us all I think .... Recently I posted a link...

Please permit me to digress (again) from a direct focus on PMR/GCA - but ultimat...

Rimmy

•5 years ago

33 Replies

Pain

So, I want to understand this disease and what others are feeling. I have been taking Medrol for about four months now, started at 15 and reduced too fast and...

So, I want to understand this disease and what others are feeling. I have been t...

Manchild

•5 years ago

9 Replies

Positively positive

Two things that lifted my spirits today. First I feel like me, and touch wood my second gentle taper is going OK. But the really great thing was a visit to the...

Two things that lifted my spirits today. First I feel like me, and touch wood my...

Dontwannabesick

•5 years ago

10 Replies

Thankful

On this Thanksgiving Day in the US I'm so thankful for this group! I don't post much, but I read the posts every single day. It helps me so much in this lonely...

On this Thanksgiving Day in the US I'm so thankful for this group! I don't post ...

mo3go7

•5 years ago

5 Replies

20/15 OR 17.5?

Today, on this somewhat grey Thanksgiving Day, I taper down... yet again! Wooooooo Hoooooo! (🤞🏼) The rheumy actually gave me a choice; I can take 17.5mg...

Today, on this somewhat grey Thanksgiving Day, I taper down... yet again! Woooo...

Hidden

•5 years ago

97 Replies

Improvement

Thank you everyone for your help and advice. What’s so wonderful about our little group is that everyone cares about each other, and often more helpful than...

Thank you everyone for your help and advice. What’s so wonderful about our littl...

Kyrenia

•5 years ago

5 Replies

Happy Thanksgiving!

To our American friends. With love from Jane “ thank you for our shared community and all the love and support. Xxx

To our American friends. With love from Jane “ thank you for our shared communi...

SheffieldJane

•5 years ago

15 Replies

2 steps forward 3 steps back

Thanks to the very helpful posts on this site (and a great GP) I now have a much better understanding of pmr, pred, tapering and the like. Knowledge I would...

Thanks to the very helpful posts on this site (and a great GP) I now have a much...

squashie

•5 years ago

4 Replies

It's Thanksgiving Eve in the USA...

...and one of the things I'm most thankful for is this PMR/GCA family. Raising one turkey leg in a salute to all of you, in thanks for everything.

...and one of the things I'm most thankful for is this PMR/GCA family. Raising ...

GOOD_GRIEF

•5 years ago

25 Replies

Please can you give me some advice about seeing my GP?

I'm quite nervous about seeing my ( quite new to me ) GP tomorrow for the first time since he diagnosed PMR 6 weeks ago. He started me on 15mgs then increased...

I'm quite nervous about seeing my ( quite new to me ) GP tomorrow for the first ...

katiemills

•5 years ago

17 Replies

Eye Consultant + Rhuemy feedback. GCA.

Another good' un with eye consultant. Eye's looking ok. Plus prescription for dry eyes. Heaving waiting area but flowed well! Busy the NHS is !! Rhuemy...

Another good' un with eye consultant. Eye's looking ok. Plus prescription for d...

Hidden

•5 years ago

15 Replies

Cramp

Hello you lovely lot, I wondered if any of you suffer with this. it is severe cramp in the upper part of my neck, on the right hand side, leading to my ear. It...

Hello you lovely lot, I wondered if any of you suffer with this. it is severe cr...

jenerino

•5 years ago

12 Replies

scam..second time round....

A while ago I rported this scam and now it's the same woman? again, with a much longer sob-story. I reported it and had it muted.

A while ago I rported this scam and now it's the same woman? again, with a much ...

karools16

•5 years ago

7 Replies

By how much should I taper?

By using DSNS method I managed to get from 8mgs to 7 1/2mgs after a few false starts. I am now on my way to 7mgs. Dr. advised reducing 1mg a month, but I feel...

By using DSNS method I managed to get from 8mgs to 7 1/2mgs after a few false st...

kathleen18

•5 years ago

31 Replies

Learnt my lesson

After my 20 length walk in the pool yesterday.,Woke up this morning in real bad way. Fingers rigid , hands & wrists very painful. My legs aren’t so bad...

After my 20 length walk in the pool yesterday.,Woke up this morning in real bad ...

Stifffingers

•5 years ago

25 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2018

patiant.co.uk

Just asking

Ectopic heart beat

Bad cat!!

Blood tests

From 15 to 14

0.5 reduction

synacthen test

Query re flares

Toothache after a filling

Zero pred for 6 weeks now PMR returned or never went away

Aching shoulders, upper arms and neck

Be Good To Yourself!

Movicol v generic Laxido et al

For our American friends

'HEALTH', GARDENS AND A PHOTOGRAPHIC TRIBUTE TO AMERICAN WOMEN FOR THANKSGIVING FROM WEST IRELAND

Pain

Positively positive

Thankful

20/15 OR 17.5?

Improvement

Happy Thanksgiving!

2 steps forward 3 steps back

It's Thanksgiving Eve in the USA...

Please can you give me some advice about seeing my GP?

Eye Consultant + Rhuemy feedback. GCA.

Cramp

scam..second time round....

By how much should I taper?

Learnt my lesson

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive