Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,274 members • 37,962 posts

All posts for November 2018

Cardiff Meeting

The next meeting is on Thursday 29th November at 11.30 in the Central Library.

slewis

•5 years ago

5 Replies

Looking for cure for extreme fatigue

Lately I've experiencing extreme fatigue. When I first came down with PMR I had pain but after starting pred the fatigue was minimal. Now it is the reverse, I...

Lately I've experiencing extreme fatigue. When I first came down with PMR I had ...

Ozark

•5 years ago

14 Replies

Can Pred reduction make cuts and grazes take longer to heal?

Have small cuts in my finger tips as result of wood chopping and similar.Used to heal quickly but now have some unhealed after weeks. Down to 4 pred a day and...

Have small cuts in my finger tips as result of wood chopping and similar.Used to...

Marotic

•5 years ago

12 Replies

Want to take advantage of all our features? Just log in!

not sleeping

Hello again. Just wondered if other folks on here suffer from just not sleeping. Over active brain kicks in the moment I try and sleep. Am averaging about 4-6...

Hello again. Just wondered if other folks on here suffer from just not sleeping....

jenerino

•5 years ago

87 Replies

GCA and black outs?

Hi I'm new to this forum. Dx with pmr April this year. CRP 106. 20mg prednisolone. Worked well so slowly down to 7mg by beginning of November when all...

Hi I'm new to this forum. Dx with pmr April this year. CRP 106. 20mg prednisolo...

Devonspinner

•5 years ago

4 Replies

Understanding PMR!!!

Is it possible? PMR mostly effects the muscles we are told. At the moment the worst pain I have is in my shoulders, wrists and knees where there are very...

Is it possible? PMR mostly effects the muscles we are told. At the moment the...

Constance13

•5 years ago

26 Replies

Club Zero - I think...

Hi all. It’s 18 months since I began Pred and 4 months since almost zero turned into a flare that sent me back up to 5 mg briefly. I’ve now been at 0 for about...

Hi all. It’s 18 months since I began Pred and 4 months since almost zero turned ...

Littlesky

•5 years ago

10 Replies

Pred tapering ... from 10 to 9

Not feeling pain in arms, hips, only in neck and TMJ, and veeeery tiiiiireeed... exhausted... could it be the beginning of a flare? How soon after first new...

Not feeling pain in arms, hips, only in neck and TMJ, and veeeery tiiiiireeed......

Alliswellforever

•5 years ago

13 Replies

Meaning of “a flare”

Does it mean you feel the way you felt before diagnosis and pred? Or just somewhat in pain/stiffness?

Does it mean you feel the way you felt before diagnosis and pred? Or just somewh...

3daysinjuly

•5 years ago

52 Replies

Update on pmr and osteoporosis

Hello everyone. I have not posted anything for awhile but have been thinking of you all & hoping that things are going ok with you. As for me, time has just...

Hello everyone. I have not posted anything for awhile but have been thinking of ...

Mitziecat

•5 years ago

22 Replies

adrenal gland over working?

Hi this is my first post although I read most posts every week. I was diagnosed with pmr two and a half years ago. Started on 30mg pred & now on 4.5mg. I have...

Hi this is my first post although I read most posts every week. I was diagnosed ...

195536

•5 years ago

5 Replies

Translation "Not too bad"

Husband is the one wih PMR/GCA - not very computer literate and I chart his Pred reduction rate on simple spreadsheet. When I ask him how his limbs and joints...

Husband is the one wih PMR/GCA - not very computer literate and I chart his Pred...

Nuff1

•5 years ago

8 Replies

Kefir - Leeds Meeting

If anyone going to the Leeds meeting on 6th Dec would like some kefir grains I have enough spare to get one lot started. Please let me know so I can bring...

If anyone going to the Leeds meeting on 6th Dec would like some kefir grains I h...

Marlenec

•5 years ago

2 Replies

Feeling down

Went on Saturday for my follow up appt with my consultant ( Private). He was a little perplexed that I was really no better. Felt that maybe my gut was not...

Went on Saturday for my follow up appt with my consultant ( Private). He was a l...

Stifffingers

•5 years ago

17 Replies

PMR or not?

Hello, I am new to this disease (I think). I have been put on 15mg of Prednisolone a day, still experiencing a bit of soreness, very stiff in the mornings and...

Hello, I am new to this disease (I think). I have been put on 15mg of Prednisolo...

vlrdngh

•5 years ago

14 Replies

Temporal Artritis

Should I still get symptoms when reducing. Nothing painful just bruits inside upper arm muscles and temples. I am currently at 7.5mg.

Should I still get symptoms when reducing. Nothing painful just bruits inside u...

Berylholley

•5 years ago

5 Replies

My lovely GP!

Went to my GP this morning re my Pred dose. Currently 8mg. I told him that Rheumy was fussing to get me to 5mg! He was so nice! He said 'I'd rather you were...

Went to my GP this morning re my Pred dose. Currently 8mg. I told him that Rheu...

stellafmdm

•5 years ago

11 Replies

New here; undiagnosed; suspecting PMR

I am 63; recently experienced pain and stiffness I buttock/hip area and shoulders. Symptoms are always worse in the am. I went to a nurse practitioner who did...

I am 63; recently experienced pain and stiffness I buttock/hip area and shoulder...

Duffer55

•5 years ago

18 Replies

Pred head?

So our furniture moved into the uninhabitable condo on Friday, which reading this forum I am now reminded was "Black Friday" a modern ritual of overindulgent...

So our furniture moved into the uninhabitable condo on Friday, which reading thi...

HeronNS

•5 years ago

32 Replies

How many people get this, yearly, I wonder?

I wonder how many people in the US/ Uk, other countries, come down with PMR or GCA in a year. My Rheum says it is common but what does that mean?

I wonder how many people in the US/ Uk, other countries, come down with PMR or G...

3daysinjuly

•5 years ago

48 Replies

Thank you for all lovely Thanksgiving wishes

Was a splendid day and totally wore me out. Was happy to spend Black Friday resting in my comfy chair watching Hallmark movies and napping on and off. Hope...

Was a splendid day and totally wore me out. Was happy to spend Black Friday res...

Mks9558

•5 years ago

5 Replies

GP Visit

Today is a God awful day on the pain scale. I have an appt with my GP tomorrow to discuss my current situation. This is at her request as she is now sharing my...

Today is a God awful day on the pain scale. I have an appt with my GP tomorrow t...

Laurapc

•5 years ago

2 Replies

Full Blood Count Test Results!

Some markers certainly there for myself ! A years clinical measurement of my bloods given. Well done NHS. No effect of Pred. it seems!

Some markers certainly there for myself ! A years clinical measurement of my blo...

Hidden

•5 years ago

8 Replies

PMR and urinary incontinence

Has anyone else noticed an increase in urinary incontinence while taking prednisone for PMR?

Has anyone else noticed an increase in urinary incontinence while taking prednis...

blueisgreen

•5 years ago

22 Replies

Back again - going backwards!

Have had PMR since 2008 and moved from prednisolone to methotrexate and was down to 7.5mg in June this year and reducing to 0mg, but my world imploded and I...

Have had PMR since 2008 and moved from prednisolone to methotrexate and was down...

Bulwark091273

•5 years ago

8 Replies

Leaflet I was given after my synacthen test.

Others may be interested.

York54

•5 years ago

5 Replies

Sick day rules....Sheffield Jane

Took a pic for you from my leaflet.

York54

•5 years ago

1 Reply

Pain in torso front and rear of rib cage

Diagnosed with pmr started on 15 mg then reduced to 12.5 then 10. Started to get pain in front and rear rib cage area and slight discomfort in thighs, reduced...

Diagnosed with pmr started on 15 mg then reduced to 12.5 then 10. Started to get...

Jizer

•5 years ago

5 Replies

Reduced from 2mg Pred to 1.5

My rheumatologist wanted me to reduce from 2 mg with a view to getting off Pred. I did an incredibly slow reduction (1 day new dose 6 days old dose). When I...

My rheumatologist wanted me to reduce from 2 mg with a view to getting off Pred....

Bobbikins

•5 years ago

26 Replies

more pred

i am down to 2.5 and 3mg. but still have shoulder pain during the night. which is the best advise, go back uo to 4.5 mg, or take pain...

i am down to 2.5 and 3mg. but still have shoulder pain during the night....

pollyg263

•5 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2018

Cardiff Meeting

Looking for cure for extreme fatigue

Can Pred reduction make cuts and grazes take longer to heal?

not sleeping

GCA and black outs?

Understanding PMR!!!

Club Zero - I think...

Pred tapering ... from 10 to 9

Meaning of “a flare”

Update on pmr and osteoporosis

adrenal gland over working?

Translation "Not too bad"

Kefir - Leeds Meeting

Feeling down

PMR or not?

Temporal Artritis

My lovely GP!

New here; undiagnosed; suspecting PMR

Pred head?

How many people get this, yearly, I wonder?

Thank you for all lovely Thanksgiving wishes

GP Visit

Full Blood Count Test Results!

PMR and urinary incontinence

Back again - going backwards!

Leaflet I was given after my synacthen test.

Sick day rules....Sheffield Jane

Pain in torso front and rear of rib cage

Reduced from 2mg Pred to 1.5

more pred

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive