Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for August 2018

PMR OR sTATIN mYOPATHY

The Doc thinks PMR, the rhuemy now thinks maybe, I think statin myopathy. Anyone else been here?

The Doc thinks PMR, the rhuemy now thinks maybe, I think statin myopathy. Anyone...

Celebrant

•6 years ago

14 Replies

A Sunflower to brighten your day!

This is one of my sunflowers in the garden. I hope it brings you joy and happiness x

This is one of my sunflowers in the garden. I hope it brings you joy and happine...

Footfairy-1

•6 years ago

18 Replies

Pain or no Pain?

Hi, I joined this group recently, but don't think I have written on here. I hope people can help me with this question. I do hope I am making sense. When you...

Hi, I joined this group recently, but don't think I have written on here. I hop...

Aussiebird87

•6 years ago

26 Replies

Want to take advantage of all our features? Just log in!

Clicking On Like & It's A Minus! Glitch!

Some glitches to sort for the site brains. Super site but message order all over the place! New one now for me I can't" like" some people! I suppose some truth...

Some glitches to sort for the site brains. Super site but message order all over...

Hidden

•6 years ago

15 Replies

Stress City 2

Well, papers need signing etc, but we have bought our new home. The list of things which need to be done within the next couple of months is daunting. Heat...

Well, papers need signing etc, but we have bought our new home. The list of th...

HeronNS

•6 years ago

46 Replies

Holiday in Italy and Rheumy appointment tomorrow

I had a wonderful holiday in Italy and was able to do far more than I expected, including a day trip to Florence, a 5 hour car journey from Tuscany to Sorrento...

I had a wonderful holiday in Italy and was able to do far more than I expected, ...

Louisepenygraig

•6 years ago

17 Replies

Do vitamins or Aleve interfere with prednisone?

I was diagnosed July 19 but knew back in May that I had this - pain behind knee that moved up leg to other leg and buttocks...both my sister and brother have...

I was diagnosed July 19 but knew back in May that I had this - pain behind knee ...

izzyart

•6 years ago

10 Replies

Help please

Hi Everyone Sorry I haven't been around for a while but things have been pretty bad here and I just seem to be one mass of pain and so so tired it's been...

Hi Everyone Sorry I haven't been around for a while but things have been pretty ...

Dee29

•6 years ago

9 Replies

sorry for spelling errors

meant to say bumps are everywhere and itchy also it should have read thought the heat would help. Its either the heat or the red that has fried my brain today

meant to say bumps are everywhere and itchy also it should have read thought the...

empedrola

•6 years ago

2 Replies

Thank you to everyone for replies and support

Hi I have learnt so much since joining the group, thank you all for sharing your experiences. I was just going to write about the red blobs and sores that...

Hi I have learnt so much since joining the group, thank you all for sharing you...

empedrola

•6 years ago

6 Replies

Split dose tapering below 6 mg pred

I was diagnosed with PMR last October. I tried lower doses of prednisolone but ended up on 24 mg, split 17/7 taken after breakfast and tea. On just a morning...

I was diagnosed with PMR last October. I tried lower doses of prednisolone but ...

Joydeck

•6 years ago

25 Replies

Long time no post!

Can't remember the last time I posted, but I think I had started on my 5.5mg taper. Well, for me it all went well, no issues and I even seem to ache a little...

Can't remember the last time I posted, but I think I had started on my 5.5mg tap...

JulianJ

•6 years ago

33 Replies

Adcal

I’ve just been prescribed Adcal I’ve been on Pred since April started at 15mg currently in 10mg and due to have a blood test next week to see whether I can...

I’ve just been prescribed Adcal I’ve been on Pred since April started at 15mg cu...

JanetT58

•6 years ago

8 Replies

Damn damn and double damn

After feeling quite smug at getting down to 4 and starting to reduce to three along comes a load of personal stress and that started a flare. So back to 7 . So...

After feeling quite smug at getting down to 4 and starting to reduce to three al...

Suetum

•6 years ago

58 Replies

Injury Made Worse by Flare?

I am a little hesitant to write in when it seems there are so many in recent days with really disheartening issues with this PMR/GCA. I wish I had some helpful...

I am a little hesitant to write in when it seems there are so many in recent day...

Klah

•6 years ago

14 Replies

Is it typical for people with GCA/PMR to have low cortisol well still taking 5mg of Prednisone?

I am seeking the wisdom and knowledge of this group to help me understand low cortisol. My blood tests came back as lower than 50 in an afternoon test.

I am seeking the wisdom and knowledge of this group to help me understand low co...

Glennda

•6 years ago

40 Replies

TCA, PMR, Fibro ... Paresthesia: NUMB

You were all so kind to give me great information on the last post. Thank you. Does anyone have numbness and tingling? Before had it at various places on...

You were all so kind to give me great information on the last post. Thank you. ...

Dream21

•6 years ago

55 Replies

Beyond frustrating visit to rheumatologist

So had my first consult with rheumatologist today . The results are frustrating and I feel like its back to square one with my headache. ( began in April in...

So had my first consult with rheumatologist today . The results are frustrating ...

Maggiemuffins

•6 years ago

15 Replies

Struggling a bit with side effects! Need to get better control over this monstrous condition!

It’s been a long time since I posted anything but I read the forum daily and it always helps. I got off to a great start with my rheumatologist and she is...

It’s been a long time since I posted anything but I read the forum daily and it ...

vnett

•6 years ago

54 Replies

Pred: Hunger/appetite change. Early days, do things get better

Pre PMR diagnosis in early July 2018, I was overweight. First time in my life; I've gained just under 28lbs in past two years. Same diet, hugely reduced...

Pre PMR diagnosis in early July 2018, I was overweight. First time in my life; I...

Hidden

•6 years ago

52 Replies

Still on 6mg Pred

Back from extended holiday in Rhodes and still on 6mg Pred. I really thought the sunshine and relaxation would help me and I would be able to reduce and maybe...

Back from extended holiday in Rhodes and still on 6mg Pred. I really thought the...

jules1955

•6 years ago

24 Replies

Flying high?

This morning I accidentally picked up the 5mg pred bottle instead of th 1mg bottle. I took 3 5mg instead of 3 1mg. Will I a. Feel the best I have felt in over...

This morning I accidentally picked up the 5mg pred bottle instead of th 1mg bott...

Kcartney103

•6 years ago

30 Replies

GCA

I have been treated for PMR since June 2017 and have reduced to 9 mg. Recently I have been having headaches and some jaw and ear pain. Should I be...

I have been treated for PMR since June 2017 and have reduced to 9 mg. Recently...

barbthy

•6 years ago

4 Replies

Late stage reduction?

I've found this site really helpful and probably this question has been answered, but I'm still a bit confused. I have had PMR for nearly 2 years, pretty...

I've found this site really helpful and probably this question has been answered...

ponai

•6 years ago

9 Replies

Hemorroids and PMR

Painful external hemorroids I.e. blood clot in artery, is this a flare?

Berylholley

•6 years ago

4 Replies

GCA Relapses & Flares with Normal CRP ESR

Relapses and flares are the same thing? and can happen without increase in CRP ESR when tapering prednisone. https://www.ncbi.nlm.nih.gov/pubmed/25877501...

Relapses and flares are the same thing? and can happen without increase in CRP E...

gifford7

•6 years ago

4 Replies

Confused carer!

Hello, I'm new to this site. My 88 year old mum was diagnosed with PMR a while ago. Also had had a mini stroke round about the time she was diagnosed. Since...

Hello, I'm new to this site. My 88 year old mum was diagnosed with PMR a while a...

tyga60

•6 years ago

16 Replies

HELP...TCA,PMR, FIBRO Actemra

I went to see the Rheumy today. I am on weekly shots of Actemra and 2mg. Rayos (Prednisone). I have been on Actemra for 1 year. For 6 weeks I had really...

I went to see the Rheumy today. I am on weekly shots of Actemra and 2mg. Rayos (...

Dream21

•6 years ago

22 Replies

Stress City

Okay, think I'm about to enter a tunnel of stress as major as the one which landed me in PMRLand in the first place. I was half hoping for some "no" answers...

Okay, think I'm about to enter a tunnel of stress as major as the one which land...

HeronNS

•6 years ago

55 Replies

The Lighter Side (again..): What is 'Normal'...? Normal is... Do this Self-Assessment to find out.... ;-)

Greetings (again) all First (Important!): a big Thank You to Marilyn1959 whose recent interesting, funny and very relevant Post - 'What Is Pain...? Pain...

Greetings (again) all First (Important!): a big Thank You to Marilyn1959 whose r...

markbenjamin57

•6 years ago

35 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2018

PMR OR sTATIN mYOPATHY

A Sunflower to brighten your day!

Pain or no Pain?

Clicking On Like & It's A Minus! Glitch!

Stress City 2

Holiday in Italy and Rheumy appointment tomorrow

Do vitamins or Aleve interfere with prednisone?

Help please

sorry for spelling errors

Thank you to everyone for replies and support

Split dose tapering below 6 mg pred

Long time no post!

Adcal

Damn damn and double damn

Injury Made Worse by Flare?

Is it typical for people with GCA/PMR to have low cortisol well still taking 5mg of Prednisone?

TCA, PMR, Fibro ... Paresthesia: NUMB

Beyond frustrating visit to rheumatologist

Struggling a bit with side effects! Need to get better control over this monstrous condition!

Pred: Hunger/appetite change. Early days, do things get better

Still on 6mg Pred

Flying high?

GCA

Late stage reduction?

Hemorroids and PMR

GCA Relapses & Flares with Normal CRP ESR

Confused carer!

HELP...TCA,PMR, FIBRO Actemra

Stress City

The Lighter Side (again..): What is 'Normal'...? Normal is... Do this Self-Assessment to find out.... ;-)

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