Back from extended holiday in Rhodes and still on 6mg Pred. I really thought the sunshine and relaxation would help me and I would be able to reduce and maybe even be PMR free ! but not to be 😭😭😭 I have been home a month now and GP thinks I should be trying to reduce so I am trying the very slow reduction method to try to get to 5mg but have pain / aches in upper arms and shoulders and low back and struggle to put arms up behind my back, fatigue most days and have felt creaking/tearing like sensation in arms and hands when doing things. I am thinking of going up to 7mg to see if I improve. Do you ever have a time ( apart from the miracle when you first take Pred ) when you are pain free and fatigue free on a low dose ?
Still on 6mg Pred : Back from extended holiday in... - PMRGCAuk
Yes - providing you are on the right dose you can be pain-free. Fatigue is another matter and nothing to do with pred EXCEPT at this level (5mg and below) you are looking for your adrenal glands to stage a gradual return to work. And that can take some time - months rather than weeks. Fatigue otherwise is something to be managed with pacing.
However - what you are describing is more like a flare and that is because you are trying to get to a dose that is lower than you need to keep the inflammation under control - and that is the only thing that keeps you anywhere near pain-free.
I'd go back to 7mg and see if it all calms down. Then try 6mg - and explain to your GP that, no, I SHOULDN'T be trying to reduce if the pain comes back. After a month it isn't due to the flight and hauling luggage around. It's a flare.
Ugh!!! Aches and pains, creaking and tearing==misery==FLARE!
Remember, even the fun stuff is challenging, and your body doesnt know if its a good stress or a bad stress. Holidays take a toll.
...you have received good advice from folks who already responded....
Try the little prednisone bump up to 7 mg, and enjoy a few days of relief.
In my experience, fatigue ebbs and flows. It seems to be expected when I work with my tapers. Always takes a few days,... but eventually eases up.
In the meantime...
be kind to yourself and take a nap every day.. try to relax and dont worry about tapering. This is not a race to ZERO pred.
My words of experience after 5 years in the race.
Kind regards, Jerri
Dx:PMR, 2013, Currently 5 mg pred
Hi Jerri, thank you for reply, I have been on 7mg for 5 days today, still not too good and fatigue is really bad. When having a flare does upping the dose usually help ? I really don't want to go back to the beginning !! I am slowly beginning to accept this is a slow process. Will keep you posted on how I am getting on. How do you feel on 5mg ? do you feel like nothing is wrong with you / normal ? Jx
Difficult to say - preferably you'd stay there until you feel good. The way you felt at the very beginning on the starting dose is your guide - any reduction should never leave you feeling worse at the end than you did at the start of the reduction, however you do it.
If you are at 10mg for only a week or so there is no reason why you shouldn't drop back to the previous dose immediately although you might feel it for a day or two. However, whatever dose you were on before is obviously not enough at present so dropping back to a bit higher dose wouold make more sense.