Sorry I haven't been around for a while but things have been pretty bad here and I just seem to be one mass of pain and so so tired it's been impossible for me to do much beyond what I have to do on a daily basis. I hope that you are all as well as can be expected and have been enjoying the fantastic weather the UK is having.
I have a question for you all.
As some of you might remember I was recently diagnosed with FMR and a strong possibility of GCA too. I was put on 20mg of Pred and whilst it has stopped the headaches and tender scalp it doesn't seem to be helping the aches, swellings and pains much at all. I did ask a GP if she would up my dosage but she refused saying that she could not interfere with what my Rheumy had prescribed, this isn't my usual GP but one I saw on an "emergency" appointment because I was getting very very breathless and it was scaring me. She thought I might have a chest infection because she could hear noises when she examined me, a course of anti-biotics was prescribed along with an inhaler (which made me feel worse so I stopped using it). The anti-biotic course is now finished, it did help a bit ( I coughed up loads of phlegm) but I still have the cough and am still getting breathless, sometimes just when I am sitting doing nothing.
What I would like to know is if I am experiencing the norm for FMR sufferers? Should I still be getting the aches, swellings, fatigue and pains even though I am taking 20mg of Pred a day? To top it all off I forgot to order Pred with my meds this week and have now ran out, I only had 10mg left so took those this morning but I will be without any Pred until Monday at the earliest. My Pharmacy is closed on a Saturday so I can't even get any from them in advance of a prescription.....will this set me back do you think??
Thank you in advance, I know that some of you will be able to tell me what I need to know...even if I don't want to hear it!