Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for June 2018

Fat Legs

About 2 months ago my GP said to up the PRED to 30mg to "get this of this inflam mation under control once and for all". I am now down to 20mg following...

About 2 months ago my GP said to up the PRED to 30mg to "get this of this inflam...

Maryis80

•6 years ago

14 Replies

Headache 🤕

Good morning woke up with severe headache again. I don’t know if the Med neurontin is actually helping or just puts me to sleep and I wake up with even worse...

Good morning woke up with severe headache again. I don’t know if the Med neuront...

Hali12

•6 years ago

5 Replies

Tapering stuff

Just a query.... If I were to notice a difference in dropping from 60 to 50 pred, when might I notice.

Just a query.... If I were to notice a difference in dropping from 60 to 50 pred...

Angiejnz

•6 years ago

12 Replies

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Waaaah .. ah sure we all have aches and pains!!

Started writing a big long post and decided to wipe it lol life’s too short and Sun is shining ☀️☀️☀️ Don’t you just feel bugged when well meaning people say...

Started writing a big long post and decided to wipe it lol life’s too short and ...

Allsgrandso

•6 years ago

21 Replies

Lower back pain

I have been getting lower back pain for quite a while just wondering if it's this dreaded PMR or arthritis. Been on steroids after diagnosis since July 17...

I have been getting lower back pain for quite a while just wondering if it's thi...

kathyrob

•6 years ago

4 Replies

No pain💥😎

I took my pred early last night, 9 pm. I woke up at 4.30 am and realised NO PAIN - I couldn’t believe it. I thought “this is so good it’s worth staying awake...

I took my pred early last night, 9 pm. I woke up at 4.30 am and realised NO PAI...

Constance13

•6 years ago

5 Replies

doctor wants me to reduce prednisone

on 10 mg of prednisone for PMR that seem to be my magic number, when I try to go lower usually have a flare, doctor wants me to try methotrexate, what are some...

on 10 mg of prednisone for PMR that seem to be my magic number, when I try to go...

Uzziah7

•6 years ago

8 Replies

Pred tapering starts tomorrow

I was diagnosed with GCA/PMR May 7th and started on 60mg of prednisone. I will be lowering that dose to 50mg tomorrow. The doctor wants me to consider...

I was diagnosed with GCA/PMR May 7th and started on 60mg of prednisone. I will ...

kay7954

•6 years ago

32 Replies

1mg and exhausted still...

After 2 years on pred I am finally down to 1mg. However I am very tired and lacking in energy and have stiff joints. Is this normal before heading to zero? I...

After 2 years on pred I am finally down to 1mg. However I am very tired and lack...

kezzybabes

•6 years ago

37 Replies

Thanks again

Thank you all for your very funny replies to my last message to do with our dogs. It is so nice to be able to laugh about our pets and that we all interact...

Thank you all for your very funny replies to my last message to do with our dogs...

morrison

•6 years ago

18 Replies

Making decisions at 5mg., 18months into treatment.

I have been fortunate to date getting to 5mg in about a year and a half without too much difficulty above the norm. But lately my emotions are more erratic...

I have been fortunate to date getting to 5mg in about a year and a half without ...

Hindags

•6 years ago

21 Replies

Android Phone app

I know people use medical alert bracelets, notes in wallets etc. Currently I'm using Medical ID (free) V 6.5.0 on my Android phone. It's just been updated to...

I know people use medical alert bracelets, notes in wallets etc. Currently I'm u...

JulianJ

•6 years ago

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Does this all sound normal?

Hi all, what a magnificent day! Am just wondering if my understanding is right (There has to be a first time! :-) Am still awaiting my first app with Rheumy...

Hi all, what a magnificent day! Am just wondering if my understanding is right (...

Mike1964

•6 years ago

59 Replies

Slow reducing Prednisone Plan

Please can some one give me the website address for the slow pred reducing plan,I seem to have misplaced it.Thank you.

Please can some one give me the website address for the slow pred reducing plan,...

Pieater67

•6 years ago

6 Replies

A delicate question

I have not seen this mentioned anywhere but is anyone having bladder trouble? Since the onset of this deasease in December one of the first things to happen...

I have not seen this mentioned anywhere but is anyone having bladder trouble? S...

Hidden

•6 years ago

52 Replies

Feeling a bit strange

Just feeling a bit strange today for some reason. My feet are cold, but I am getting hot sweats! I also feel quite wobbly today, as though I am on a moving...

Just feeling a bit strange today for some reason. My feet are cold, but I am get...

JanboC

•6 years ago

14 Replies

How Much Is The Shoulder Stiffness Due to Pred. Fat Redistribution?

I feel I have a yoke across my shoulder blades & grinding & crunching sensations at the back of my neck. Burning sometimes too. Minimal stuff compared to real...

I feel I have a yoke across my shoulder blades & grinding & crunching sensation...

Hidden

•6 years ago

16 Replies

Suffolk tea and chat

Just a reminder that there will be tea and chat at Wyevale Garden Centre, Grundisburgh Road, Woodbridge On Thursday 7th June at 2.00pm. Looking forward to...

Just a reminder that there will be tea and chat at Wyevale Garden Centre, Grund...

Soosie56

•6 years ago

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Thank you

Thank you all for bringing me up. I am still a bit down but tomorrow is another day after all. Had a long walk with my dog this morning. He rolled inot fox...

Thank you all for bringing me up. I am still a bit down but tomorrow is another ...

morrison

•6 years ago

25 Replies

Consultants in the North West

Wondering if anybody can recommend the name of a good consultant in the North of England or Southern Scotland. I am thinking of getting a private appointment...

Wondering if anybody can recommend the name of a good consultant in the North of...

merryway

•6 years ago

13 Replies

A few days away and the joys of a mobility scooter.

I'm just back after nearly a week away. The first couple of days were spent at a conference in quite a nice hotel near Kenilworth. I enjoyed it even though I...

I'm just back after nearly a week away. The first couple of days were spent at a...

Louisepenygraig

•6 years ago

21 Replies

I've Been in Hot Water...

... but this past week was rediculous! Too many Max baths, hand dish washes, counter top disinfecting, and washing hands after nappy changes! My fingertips...

... but this past week was rediculous! Too many Max baths, hand dish washes, co...

Hidden

•6 years ago

66 Replies

Increasing exercise while on low dose prednisolone

Hi evryone. Hope you are all managing to fight this dreaded illness. I have a question and would welcome any experience on the matter. Is it OK to do a fairly...

Hi evryone. Hope you are all managing to fight this dreaded illness. I have a q...

Mitziecat

•6 years ago

31 Replies

IS IT ME or HU???????site.

On HU, I used to be able to click on the incoming email and then be connected direct to the posit that mail referred to. ie New Post or one I had answered...

On HU, I used to be able to click on the incoming email and then be connected d...

jinasc

•6 years ago

8 Replies

Prednisone and osteoporosis

Good Morning and I mean good morning. This is One of those rare ones that I don't get out of bed crying. So I am joyful today. I wonder if anyone is dealing...

Good Morning and I mean good morning. This is One of those rare ones that I don'...

Lin6075

•6 years ago

8 Replies

Where can I find the link to the Bristol Paper?

I want print it up to give to my rheumi this week. She is trying to make me submit to adding plaquenol because I am not tapering prednisone successfully.......

I want print it up to give to my rheumi this week. She is trying to make me su...

damasio

•6 years ago

13 Replies

Wondering where to go from here

I came across this site last year when I was despately searching for an answer to my continual temporal headaches plus other circulatory symptoms and neck...

I came across this site last year when I was despately searching for an answer t...

merryway

•6 years ago

26 Replies

GCA, Actemra and feeling exhausted

I have been so much better since taking Tocilizumab but I still get days of aching all over and feeling really exhausted. I am really not my old self and...

I have been so much better since taking Tocilizumab but I still get days of achi...

christine2715

•6 years ago

7 Replies

Out of the frying pan and into the fire!

First diagnosed with fibromyalgia, looked at all the information about it which frightened me to death. Saw the registrar at next visit to clinic who went...

First diagnosed with fibromyalgia, looked at all the information about it which ...

Hidden

•6 years ago

15 Replies

All Good things...

We laughed, we cried, we ran through the house... We cuddled, we kissed and looked deep into each others eyes... We touched every rock, twig, shell, plant,...

We laughed, we cried, we ran through the house... We cuddled, we kissed and loo...

Hidden

•6 years ago

40 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2018

Fat Legs

Headache 🤕

Tapering stuff

Waaaah .. ah sure we all have aches and pains!!

Lower back pain

No pain💥😎

doctor wants me to reduce prednisone

Pred tapering starts tomorrow

1mg and exhausted still...

Thanks again

Making decisions at 5mg., 18months into treatment.

Android Phone app

Does this all sound normal?

Slow reducing Prednisone Plan

A delicate question

Feeling a bit strange

How Much Is The Shoulder Stiffness Due to Pred. Fat Redistribution?

Suffolk tea and chat

Thank you

Consultants in the North West

A few days away and the joys of a mobility scooter.

I've Been in Hot Water...

Increasing exercise while on low dose prednisolone

IS IT ME or HU???????site.

Prednisone and osteoporosis

Where can I find the link to the Bristol Paper?

Wondering where to go from here

GCA, Actemra and feeling exhausted

Out of the frying pan and into the fire!

All Good things...

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