In December I posted a discussion I had with my Rheumatologist regarding a sensible pred taper plan. I had been on steroids for 2 years, initially for GCA and then PMR and for the previous 9 months had been up and down with flares and pred dosages. I then discovered your Forum and devised a slowly, slowly taper plan - reducing by 0.5mg every 2 weeks. I started on 20mg and I'm now down to 15.5mg without any flare problems. The Rheumatologist did not agree.
I saw my GP in early February and updated him on how my PMR was progressing. Before our meeting, I sent him some information regarding recent studies on steroid side affects (Matteson, 2017). I asked if he would agree my reduction plan but he said he could not go against British Rheumatological guidelines However, he said he would seek advice. I received this response last week.
QUOTE
"I promised I would get back to you about our discussions recently with regard to steroid reduction and I have taken some legal advice on this.
Unfortunately, their legal advice is quite clear that the British Rheumatological guidelines are the Gold Standard for management in the United Kingdom and indeed many other countries have similar guidelines about steroid reduction. Steroids are not a zero-sum drug and are associated with significant short to medium and long term consequences for patients.
The studies you quoted of course cannot be completely dismissed, but they are out of step with most other highly powered studies published in peer reviewed journals which form the basis of the British Rheumatological Society guidelines. Allied to that, GMC guidelines are quite clear on deviation from accepted practice and it would not be possible for me to to sanction that without being in breach of these guidelines Obviously I cannot prevent you from pursuing the course that you wish to pursue, but I cannot condone it at the same time.
I am sorry I can't be of further consolation here"
UNQUOTE
I've looked on-line for any more recent studies regarding PMR/GCA (apart from the Matteson findings) but there doesn't seem to be anything more recent than 6 years ago. I believe that Kate Gilbert is working with others to update guidelines. I also believe that some Rheumatologists and GPs are coming round to the slowly, slowly approach to pred reduction plans but can't find any articles on this subject. One thing I do know is that the people who post, and reply to posts, on this Forum are overwhelming in favour of a slowly, slowly taper plan, especially if they have gone through a long yo-yo period. Does anyone have any recent information?
As you can probably guess, I'm continuing with my taper plan and will probably reduce even further with the dead slow and stop plan.