Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for November 2017

Enteric Coated 1mg Prednisolone

PMR Pro mentioned you could get the 1mg in the UK, I asked my pharmacist if they had them and he said no but to leave it with him and he would find out. We...

PMR Pro mentioned you could get the 1mg in the UK, I asked my pharmacist if th...

May10

•6 years ago

7 Replies

Sorry to hear about the Oxford Circus events.

This is supposed to be Happy Christmas season with streets full of people who are out and about doing their shopping. This is not supposed to be a season of...

This is supposed to be Happy Christmas season with streets full of people who ar...

Hindags

•6 years ago

13 Replies

Problem in Care Home

I moved into a Care Home two weeks ago and am settling down reasonably well. BUT I am having difficulty with my medication. I have reduced my daily dose of...

I moved into a Care Home two weeks ago and am settling down reasonably well. BUT...

Trenny

•6 years ago

15 Replies

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New Gp

My GP off sick so being due for telephone consult was phoned by duty GP , very helpful but wanted me to drop from 15-12.5 , when I told her I was concerned as...

My GP off sick so being due for telephone consult was phoned by duty GP , very h...

Rosbud

•6 years ago

8 Replies

TAPER QUESTION

Diagnosed 5 months ago. 25mg to start for about a month. Tapered 1 mg every 2 weeks. Fine until 15mg. Stayed at 14 for 3 weeks then tried to alternate 14...

Diagnosed 5 months ago. 25mg to start for about a month. Tapered 1 mg every 2 we...

Sandy1947

•6 years ago

42 Replies

Alternative Medicine ( late..) update

Looked into Bowen treatment which was recommended over here. Sounded really great but.... I contacted a person who does Bowen and was told it costs £90 per...

Looked into Bowen treatment which was recommended over here. Sounded really grea...

mepoly20

•6 years ago

18 Replies

Worried

Sorry for the late text. Went to bed around 10.30pm. Fine. Just got up to the loo. Fine. Then all muscle's just disappeared in my legs. I managed to get myself...

Sorry for the late text. Went to bed around 10.30pm. Fine. Just got up to the lo...

morrison

•6 years ago

31 Replies

Random numbness

At hairdresser today and realised that around the side of my head where I had biopsy done in September is still quite numb. When washing my hair myself, not so...

At hairdresser today and realised that around the side of my head where I had bi...

Hollyseden

•6 years ago

4 Replies

ballyboy

i am down to 3 mlof steroids now from 60 it has taken 1 and half years but i have back ace now it comes in evening what shoulw

i am down to 3 mlof steroids now from 60 it has taken 1 and half years but i hav...

ballyboy

•6 years ago

10 Replies

Red blemishes

Has anyone got dark red blotches, I have on both my arms looks awful and I have now started to get small pea size red marks on my breasts, I'm presuming it's...

Has anyone got dark red blotches, I have on both my arms looks awful and I have ...

Jamie345

•6 years ago

16 Replies

Considering increasing dose of pred for PMR

Hi, What are peoples views on increasing the amount of pred taken daily without seeing a GP first? The reason I ask is that I am struggling on my current does...

Hi, What are peoples views on increasing the amount of pred taken daily without ...

Purplegirl70

•6 years ago

26 Replies

Denosumab problems

Just read about this on the bone health community this morning. Discontinuing denosumab (Prolia) can lead to vertebral fracture, apparently not related to the...

Just read about this on the bone health community this morning. Discontinuing d...

HeronNS

•6 years ago

11 Replies

If you think it’s a Flare

I have been happily slow tapering down to 4mgms and other than low magnesium , I have been fine. We went Ona transatlantic cruise and 3 nights in Florida. I...

I have been happily slow tapering down to 4mgms and other than low magnesium , I...

EdithWales

•6 years ago

9 Replies

Thanksgiving Day USA

Taking a moment from all the craziness surrounding preparations to thank everyone on this forum for the help, advice, compassion, encouragement and good...

Taking a moment from all the craziness surrounding preparations to thank everyon...

GOOD_GRIEF

•6 years ago

19 Replies

How long to stay on 10 mg

Happy Thanksgiving to all. I have been following the slow taper method and will start 10 mg next week. I split my dose and am doing well working my way from...

Happy Thanksgiving to all. I have been following the slow taper method and will...

barbthy

•6 years ago

5 Replies

PMR

Today is Thanksgiving Day in the USA and believe me I am Thankful for all of you on this site. !!! Happy Thanksgiving.

Today is Thanksgiving Day in the USA and believe me I am Thankful for all of you...

yogabonnie

•6 years ago

26 Replies

Myasthenia Gravis

Hello Friends, I have MG, been two years. Underwent IVIG and 13 months of Plasma Pherfesses(sp). I have been on Cellcept for 22 months. I started a prednisone...

Hello Friends, I have MG, been two years. Underwent IVIG and 13 months of Plasm...

Mgsucks

•6 years ago

4 Replies

Early Days

I'm not yet diagnosed but am suffering terrible shoulder pain especially at night. Gp going down physio route first. Physio isn't sure what's going on but...

I'm not yet diagnosed but am suffering terrible shoulder pain especially at nigh...

E-wan

•6 years ago

25 Replies

FIRST TAPER

I will have been on 30mg for 3 weeks when I return to the doc. He says he will drop it to 20mg then. is that big jump okay ? Is it only after you have been on...

I will have been on 30mg for 3 weeks when I return to the doc. He says he will d...

yogabonnie

•6 years ago

32 Replies

Nothing much to report 👍

That’s good eh. Don’t think it is dry eye drops didn’t help,probably age and me abusing them. Never off tabs & phone for long. I was wondering if it could be...

That’s good eh. Don’t think it is dry eye drops didn’t help,probably age and me ...

Rocketronzy

•6 years ago

16 Replies

Dead Slow plan

I will be starting the 5 week plan on Sunday. My question is do I repeat the process every 5 week with a new dose being introduced?

I will be starting the 5 week plan on Sunday. My question is do I repeat the p...

MaryA_

•6 years ago

3 Replies

Rheumatologist

I have my first visit with rheumatologist tomorrow not very good at asking questions could I please have some advise on what to ask him please

I have my first visit with rheumatologist tomorrow not very good at asking quest...

Christi2

•6 years ago

15 Replies

Hemp oil - Benefit?

After watching Gone to Pot with Pam St.mClement, who suffers with PMR, m wondering if anyone has any experience of taking Hemp oil. I know that the programme...

After watching Gone to Pot with Pam St.mClement, who suffers with PMR, m wonderi...

Griggser

•6 years ago

12 Replies

I'm new here!

HI. I'm 71 years old. Fairly fit before this and a little frightened. Thank you for this forum. Had a bike/ car accident, badly banged ribs then 2 days later...

HI. I'm 71 years old. Fairly fit before this and a little frightened. Thank you ...

yogabonnie

•6 years ago

3 Replies

Forgot to take my preds

Hi, A common enough title I guess!!! I'm down to 5 to 4.5mg now, taking 2.5 in the morning and the balance when I go to bed. This morning, when I woke up, I...

Hi, A common enough title I guess!!! I'm down to 5 to 4.5mg now, taking 2.5 in t...

Charlie1boy

•6 years ago

18 Replies

Vitamin C

High friends I've not posted for quite a while, I've got extra problems going on at the moment but will leave my queries about them until after I've had some...

High friends I've not posted for quite a while, I've got extra problems going on...

Sandybo

•6 years ago

9 Replies

Muscle cramps

I woke up with a severe pain in my thigh, it felt like a muscle cramp , excruciating pain.when it subsided, I tried to stretch it and the back of my thigh...

I woke up with a severe pain in my thigh, it felt like a muscle cramp , excrucia...

Gaijin

•6 years ago

27 Replies

2017 sees several new drugs for rheumatic illnesses - including GCA

2017 has been a good year for new drugs for inflammatory rheumatoid conditions, and at last tocilizumab has been approved by the FDA in the US for Giant Cell...

2017 has been a good year for new drugs for inflammatory rheumatoid conditions, ...

Polywotsit

PMRGCAuk team member•6 years ago

4 Replies

New Rheumy - Breath of Fresh Air

My wife, Estela, was diagnosed with PMR 18 months ago. The rheumatologist started her at 15mg prednisone per day. It took her about 2+ weeks to feel relief....

My wife, Estela, was diagnosed with PMR 18 months ago. The rheumatologist start...

navejasjoe

•6 years ago

11 Replies

Quick Question about the site.

Occasionally, usually PMRPro, brings to our attention something relevant, say on the Lupus site. I find that if I follow up the information i.e. Click on the...

Occasionally, usually PMRPro, brings to our attention something relevant, say on...

SheffieldJane

•6 years ago

20 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2017

Enteric Coated 1mg Prednisolone

Sorry to hear about the Oxford Circus events.

Problem in Care Home

New Gp

TAPER QUESTION

Alternative Medicine ( late..) update

Worried

Random numbness

ballyboy

Red blemishes

Considering increasing dose of pred for PMR

Denosumab problems

If you think it’s a Flare

Thanksgiving Day USA

How long to stay on 10 mg

PMR

Myasthenia Gravis

Early Days

FIRST TAPER

Nothing much to report 👍

Dead Slow plan

Rheumatologist

Hemp oil - Benefit?

I'm new here!

Forgot to take my preds

Vitamin C

Muscle cramps

2017 sees several new drugs for rheumatic illnesses - including GCA

New Rheumy - Breath of Fresh Air

Quick Question about the site.

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