i am down to 3 mlof steroids now from 60 it has taken 1 and half years but i have back ace now it comes in evening what shoulw
ballyboy: i am down to 3 mlof steroids now from 6... - PMRGCAuk
ballyboy
It may just be the return of old arthritic pain.
Are you feeling very tired, craving salt, feeling cold?
I just ask because at your dosage the Adrenal Function can be problematic and actual failure of the Adrenals can be heralded by excruciating low back pain ( kidneys). I know you chaps tend to understate your symptoms. Now you'll tell me you're female!
You can ask to be referred to Hospital to have your Adrenals tested via a Synacthen Test ( a blood test following an injection) if you think it might be that.
Or perhaps you've overdone things. It doesn't sound like a flare. You've done well!
How fast have you reduced from 8mg? And where is the pain?
I would have said exactly same as SJ so won't repeat it.
Ballyboy yes i am tired .pain in back is more like ace .i am comming down one mg,a month.bot i am on steroids for 15 years and can not get past 3 mg.
Then stop pushing it and stay where you feel most comfortable. This is a low dose and will do little longterm harm:
ballyboy i have been to see g.p sent me for blood test did not get the result yet he wants toput me up on steroids i do not want to go up again .what do you think.
If you don't want to go up again to be pain-free that is up to you. But if you leave things when the dose is slightly too low, eventually you will be back where you started with a lot more pain as the inflammation mounts up. Then you will have the choice of the pain or a much higher dose.
If 4 or 5mg manages your symptoms then I would take it - after 13 years the likelihood of you getting off pred altogether is small so you might as well take enough to be comfortable.
ballyboy Thank you for all the replys .I am going to go up to 5mg for christmas i do not want to be at my daughters in pain .Hope all have anice christmas
Ballyboy thank you all for your help and a very happy christmas to all ,and pain free new year.
ballyboy i have terriable pain in back and going down my leg.it comes in spasioms can any one help