Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,470 members • 38,421 posts

All posts for November 2017

Thank you for advice resulting in sig+ difference

Last month I was in trouble and for the first time since pre diagnosis was in despair. The fatigue hit big time, sleep pattern erratic, lethargy etc. Going to...

Last month I was in trouble and for the first time since pre diagnosis was in de...

Marilyn1959

•7 years ago

11 Replies

Question re Legs

Hi - has anyone actually been told by their Consultant or GP that leg pain is part of PMR? I know I've written about my leg pain and how the Steroids help it...

Hi - has anyone actually been told by their Consultant or GP that leg pain is pa...

powerwalk

•7 years ago

63 Replies

Patient Insight opportunity

This came up on my Twitter feed, a great opportunity to give the patient viewpoint re a research project on PMR...

This came up on my Twitter feed, a great opportunity to give the patient viewpoi...

Hidden

•7 years ago

7 Replies

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Private DEXA scans

I have noted a few people reporting they cannot get a DXA scan through their GP. It is of particular concern when they are told to take Alendronic acid to...

I have noted a few people reporting they cannot get a DXA scan through their GP....

nevagivup

•7 years ago

13 Replies

More vit D news:

https://www.theguardian.com/lifeandstyle/2017/nov/21/vitamin-d-may-help-prevent-rheumatoid-arthritis-suggests-study There are the usual discrepancies in the...

https://www.theguardian.com/lifeandstyle/2017/nov/21/vitamin-d-may-help-prevent-...

PMRpro

Ambassador•7 years ago

21 Replies

Tapering the Preds!!!!

I was diagnosed with PMR in November last year ( had it longer than that though) and have been on a course of prednisolone starting at 20 mg and gradually...

I was diagnosed with PMR in November last year ( had it longer than that though)...

66Mac

•7 years ago

29 Replies

PMR - new symptoms

Had a wonderful evening with the family for my granddaughters 7th birthday. Came home went to sleep, I feel I slept well. Well surprise surprise PMR threw me...

Had a wonderful evening with the family for my granddaughters 7th birthday. Cam...

Sunnyd7

•7 years ago

6 Replies

Distorted vision...

Hi all, I had gca confirmed last August and started on 40mg pred.Have tapered to 1mg but recently cpr and esr levels have gone up again so am now on 5mg....

Hi all, I had gca confirmed last August and started on 40mg pred.Have tapered to...

monkeay

•7 years ago

17 Replies

REF: ' If you won't take methotrexate there's no point in you coming back.... '

I saw a consultant rheumatologist early in the year and again in March (GCA diagnosed Nov 2016). He listened attentively + made notes, but then wanted me to...

I saw a consultant rheumatologist early in the year and again in March (GCA dia...

BonnyQuine

•7 years ago

11 Replies

I am new here - awaiting reconfirmation of PMR diagnosis from Rheumatologist after GP already called it that

Hello everyone, I was wondering if there were other “young” patients here - tomorrow is my 42 birthday and on Wednesday I expect to get the diagnosis of PMR...

Hello everyone, I was wondering if there were other “young” patients here - tomo...

Sibylle75

•7 years ago

14 Replies

increased prednisone after injury

on oct 31 i had a hip replacement..all was fine..walking with walker..limping, but walking..limp was from surgery pain..first PT session i did the exercise i...

on oct 31 i had a hip replacement..all was fine..walking with walker..limping, b...

tuningup

•7 years ago

2 Replies

Flu jab

Hi is it possible for the flu jab to cause problems l had flu jab on Monday and Tuesday onwards the pain I had just managed to ease of about came back and it’s...

Hi is it possible for the flu jab to cause problems l had flu jab on Monday and ...

Rusty8

•7 years ago

26 Replies

relapse or withdrawal?

Being an old hand at tapering, and not always successfully, I was just wondering how you know the difference between withdrawal symptoms (I'll grit my teeth...

Being an old hand at tapering, and not always successfully, I was just wondering...

Stkeyna

•7 years ago

20 Replies

Tapering,

Hi all I have successfully reduced from a starting dose of 15mg pred to 12.5mg for four weeks and am now at 10mg I have had no pain but my legs do feel very...

Hi all I have successfully reduced from a starting dose of 15mg pred to 12.5mg ...

Alison300356

•7 years ago

16 Replies

Grace’s problem

About a month ago I went to my rheumatologist as the pain in my arms and neck was preventing to sleep. Immediately she put me on Methylpred 4mgpak for a week...

About a month ago I went to my rheumatologist as the pain in my arms and neck wa...

Graziella

•7 years ago

11 Replies

Tapering at a snails pace but still having withdrawal issues

Hello Everyone I haven't posted for a long time butI keep in touch daily. Thought my story might be helpful as even though on a very gradual taper I am...

Hello Everyone I haven't posted for a long time butI keep in touch daily. Though...

Irldino

•7 years ago

3 Replies

Matteson study - my experience

PMRpro, I'm glad you brought up the Matteson study. I brought the article to my rheumatologist a couple of weeks ago and it changed everything. No more...

PMRpro, I'm glad you brought up the Matteson study. I brought the article to my ...

Littlesky

•7 years ago

10 Replies

Confused

If there are still symptoms of pmr when on a low dose should one keep reducing? Is the idea of reducing whilst symptoms are still there and blood tests above...

If there are still symptoms of pmr when on a low dose should one keep reducing? ...

Deemar

•7 years ago

12 Replies

Hi im 45 and new in here

Im currently waiting for ultrasound on both wrists and fingers too see if i have RA as i have had swollen ,tender wrists and family history and history of a...

Im currently waiting for ultrasound on both wrists and fingers too see if i have...

Rachelwalsh1972

•7 years ago

5 Replies

Guidance

Hello everyone I was diagnosed with PMA in June im 66. It started behind my knees then spread to my legs, arms, shoulders and neck. Took 3 Doctors and 4...

Hello everyone I was diagnosed with PMA in June im 66. It started behind my kn...

Beretta-700

•7 years ago

5 Replies

Yeast medication.

The Troche my doc gave me for the mouth yeast is worthless. Just curious which medications your docs give you that have this issue.. I have Nyastatin in house...

The Troche my doc gave me for the mouth yeast is worthless. Just curious which ...

Leeleep

•7 years ago

9 Replies

Pain in ribs

I had a very bad cold and chesty cough three weeks ago. The cold has gone and the chesty cough but I have been left with an irritating thickly cough. My ribs...

I had a very bad cold and chesty cough three weeks ago. The cold has gone and th...

Jeanjean16

•7 years ago

6 Replies

Is it a flare or not?

Not sure whether I'm having a flare. For about 5 weeks now have been having pain & some stiffness in both Hips & Legs (right worse usually). Seems different...

Not sure whether I'm having a flare. For about 5 weeks now have been having pai...

podo

•7 years ago

18 Replies

First day of tapering to 12.5mg and pain has returned already. Help please!

I've been on 15mg Pred for 6weeks. It took 3.5weeks for pain to go. Dr said to taper now to 12.5 for 4weeks (standard dr advice). I told him I wanted to do...

I've been on 15mg Pred for 6weeks. It took 3.5weeks for pain to go. Dr said to t...

Footfairy-1

•7 years ago

31 Replies

Spacing medications

I know I have read on here before about the best way to space medications throughout the day but can't seem to find it now. I have had an irritable hard cough...

I know I have read on here before about the best way to space medications throug...

Wenben

•7 years ago

19 Replies

New pain around knees

No sooner than you think aches and pains are ‘normal’ ones something new appears. I’m currently tapering from 11 to 10mg of Prednisolone. A few weeks ago my...

No sooner than you think aches and pains are ‘normal’ ones something new appears...

Lochy

•7 years ago

15 Replies

Starting dose of pred?

I was until two weeks ago a healthy active 60 year old women who suddenly developed PMR and luckily went straight to a practice nurse and two days later the...

I was until two weeks ago a healthy active 60 year old women who suddenly develo...

Cela

•7 years ago

42 Replies

PMR - Facial numbness

Hi all! I am new to this community but have received many answers and information that helped me to believe I was not imagining the things happening to my...

Hi all! I am new to this community but have received many answers and informati...

Sunnyd7

•7 years ago

13 Replies

Change Health Care to get Actemra?

I have been a patient at Kaiser for 28 years. I have had no complaints to speak of. Easy access to treatment. Easy communication with my doctors. Not...

I have been a patient at Kaiser for 28 years. I have had no complaints to speak ...

Hindags

•7 years ago

25 Replies

DIAGNOSIS

Are there any definitive tests....labs or otherwise that can diagnose PMR for certain? Or, is it more symptomatic? I was diagnose 4 years ago after 2-3 years...

Are there any definitive tests....labs or otherwise that can diagnose PMR for ce...

chiwawaa

•7 years ago

28 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2017

Thank you for advice resulting in sig+ difference

Question re Legs

Patient Insight opportunity

Private DEXA scans

More vit D news:

Tapering the Preds!!!!

PMR - new symptoms

Distorted vision...

REF: ' If you won't take methotrexate there's no point in you coming back.... '

I am new here - awaiting reconfirmation of PMR diagnosis from Rheumatologist after GP already called it that

increased prednisone after injury

Flu jab

relapse or withdrawal?

Tapering,

Grace’s problem

Tapering at a snails pace but still having withdrawal issues

Matteson study - my experience

Confused

Hi im 45 and new in here

Guidance

Yeast medication.

Pain in ribs

Is it a flare or not?

First day of tapering to 12.5mg and pain has returned already. Help please!

Spacing medications

New pain around knees

Starting dose of pred?

PMR - Facial numbness

Change Health Care to get Actemra?

DIAGNOSIS

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