Has anyone tried Robuvit?: Has anyone tried... - PBC Foundation

PBC Foundation

9,404 members8,053 posts

Has anyone tried Robuvit?

12 Replies

Has anyone tried Robuvit for fatigue? It appears to be a wonder supplement fir cfs and liver detox.

12 Replies
Jo_Br profile image
Jo_Br

What is this miracle you talk of? Hehe!

in reply to Jo_Br

Well I've ordered it, will let you know how I get on. How's your itch? Anything helping it? I've had itching for many years. So this supplement is French oak wood extract. Link: supplementpolice.com/robuvit/ link: ncbi.nlm.nih.gov/pmc/articl...

Jo_Br profile image
Jo_Br in reply to

Well, I just read it and sounds good, a proper research, there is always a question for me, so mine is the test has been on healthy volunteers, I would say their liver's would obviously do the job it should for them, maybe not for ours? I would like to see it tested on those with chronic fatigue. I am a scaredy cat when it comes to what goes into my body more now than ever.

I am between meds for itch, thanks for asking. I need a confirmed diagnosis still and well a hepatologist, if you read my post yesterday, my saving grace Mary (hep) retired 4 weeks after we found each other. No more heps in my hospital so back to my GP for a referral to outside my area. This time a liver unit, so there will be always a good knowledge.

Let us know how you get on with the Robuvit?

Jo_Br profile image
Jo_Br in reply to Jo_Br

Actually a google of 'is it dangerous?' and my usual hunt for negative reports failed and I found this hopefully translated minervamedica.it/en/journal... nutraingredients-usa.com/Re...

in reply to Jo_Br

Hello Jo_Br. Having just read in more depth the link you posted, noticed (as I had something that was 'bugging' me re the article originally) this study was in fact mentioned with referral to alcohol consumption. Given with PBC it is said to be auto-immune and our bile ducts start vanishing, I am certain I am right in stating that in alcohol abuse this wouldn't be the case and unlike someone with PBC if one was to stop drinking alcohol the liver could start to repair if not cirrhotic. Unlike with PBC if there is bile ducts damaged it surely wouldn't be the same. I did read the final sentence of the article and it does state that this supplement was thought to be safe for temporary use and mentions alcohol.

Sorry to say but it looks like, well another thing that could be all hype. Never heard of it scoutfinchlondon and I often think if this product was so wonderful (it's some wood oak extract from what I can gather), wouldn't it be more wildly known.

It might decrease liver function or help with fatigue but I sometimes wonder in the long run...could it contribute to something else?

in reply to

I've actually seen several scientific reports from legitimate sources. I feel your reply was quick to judge without actually investigating first.

in reply to

Hello scoutfinchlondon.

Well I have 'investigated' further and found that this product you have mentioned is actually polyphenols and in a good diet they are present. So to me it means that just maybe this product is not required and I still stand by my opinion that a well-balanced diet is perhaps the best way to go. Since being diagnosed with PBC over 6 years ago now I think that by a goo diet it could stave off additional health issues. So far it seems to have worked for me. One issue I have is that I cannot afford to go out and buy so-called health supplements and also I have often wondered if it might be some- thing that is unnecessary.

Only yesterday I watched a programme on tv here in the UK where I reside and it featured herbal teas and medical professionals who gave their input as to how I thought anyway, they more than likely won't do harm but they are expensive for what they are claiming to do. One doctor stated that these products and others on the market cannot detoxify or cleanse. But on an amusing note a doctor stated that dandelion tea won't do as it states on the packet but given dandelion is a duiretic it will more than likely make you visit the loo more frequently (which gives credit to the 'old wives' tale about dandelions making you 'wet the bed').

I've got a UK link here on polyphenols if anyone is interested in reading a bit.

water-for-health.co.uk/our-...

in reply to

I find your replies to be incredibly negative. I do understand if you don't have the money to go out and purchase supplements. I don't have a lot of money either and I rarely buy supplements. This is an issue and it's not fair. I have never in my life gone out and bought lots of vitamins and supplements. I don't spend tons of money on supplements. But sometimes you have to take supplements because your body no matter how much you eat of something, you simply cannot take in enough to make any difference at all. My diet couldn't get any better. Fresh fish and greens for breakfast. I eat greens constantly. All foods are inflammation fighting. I take Omega Eye (superior fish supplements because I have severe dry eye disease (sicca/Sjogrens syndrome) which has helped incidentally. There is no way that you could eat enough fish/nuts/seeds to get the amount of Omega 3 that you need when you have sicca problems, severe dry eye. I live by the sea and I get fresh fish straight from the fishing boats every day. My diet could not be any healthier, therefore I have to look for something else that might help. My throwing out the question was aimed at anyone who may have tried it and helped. It wasn't aimed at someone coming back with a negative response who hadn't even looked up the scientific trials that have been highly positive. Sorry but we need positiveness here. You cannot get everything you need from diet, especially if your immune system is compromised in terms of being able to absorb nutrients like me. I'm willing to try anything that might help that has ethical and scientific evidence, which this does. If you had tried it and it didn't work for you, that would be very useful information.

in reply to

No not being negative. I just think that once diagnosed with PBC I personally and I say 'I personally' do not want to start taking certain products that could maybe add to an already compromised liver.

I've had blood checks in the last 7 years and apart from a short course of iron tablets several years ago for nose bleeds I've not had any vitamin/mineral deficiencies so far.

You mentioned this product for fatigue. I did have fatigue back in 2010 prior to being diagnosed by in my case mine vanished at some point during 2011. Think due to taking the urso since December 2010 and altering lifestyle (less rushing about, more relaxing times) could have perhaps been why, I don't know.

I also think one has to be very careful what they may take. A product might seem to be OK early days but long-term, that is why I am wary.

Might be fine, I'd be interested to read a reply in future if you take this supplement.

Out of interest when were you diagnosed with PBC. Just a thought it could perhaps be a case this product maybe more helpful early days of PBC. The only product I have experimented myself with a few years ago was milk thistle but that was back before cerain herbal products had to be licensed in the UK so I was taking a much stronger strength than is available now. I thought at first I was having good results but then I stopped and didn't find any difference. I had already got a gauge of my bloods and it seems that certain part of the year mine go up a bit and another time down. I did take milk thistle again to see after a break but I have to say in my case didn't make any difference at all. I was concerned about the fillers in them as I don't like the fact urso in some of the brands/generics have talc for instance, one even has colourants that are not marketed now for children! I did read that milk thistle can be used in hospital rooms for a mushroom poisoning but it seems that the use of milk thistle isn't that widespread so this is why I am sceptical.

Another point to make is that when you have something that is with you for remainder of life, I do think we have to be careful of what is 'out there' as any company offering something that appears to be some miracle in my mind could well be doing a bit of exploiting knowing that some of us would give things a go in that hope we have some relief.

navitra profile image
navitra

The reports are very positive.

Pamela4475 profile image
Pamela4475

never heard of it but definitely going to check it out

You may also like...

Has anyone tried CBD oil for cirrhosis?

can grow new liver cells - Im actively looking in this but want to know if anyone else has learned...

anyone tried milk thistle

made for healthy liver function it has dandillion in it whixh is also a good for the liver I drink...

Has this ever happened to anyone

I’m going to my liver specialist tomorrow . First time in many years i’m somewhat concerned, my bili

Has anyone stopped taking Ursodiol for a short time?

Has anyone stop taking your Urisidol for two weeks if so what happened or what was the longest you...

Has anyone ever \"gotten off\" Urso?

Danielle Walker) . Since PBC is also inflammatory, has anyone managed the disease through diet and...