Gabapentine

[Melwoods]

Has anyone tried this to get rid of the horrific itch.

I have tried questran,rifampin and naltrexone.

My liver specialist has now prescribed this as the itch is destroying me x

[Lisa15]

I have been on gabapentine for four years for nerve pain. I didn't know it could be used for the itch. It doesn't help me with itch. I do take hydroxizine for the itch. It doesn't help much either. I hope you have better good luck with it. It may help if the itch is the only reason you are taking it. Keep us posted on how it goes.

Lisa

[Melwoods in reply to Lisa15]

Thanks will do x

[Ktltel in reply to Lisa15]

Lisa 15,

Why are you having nerve pain? Is that a PBC thing? I was just put on Gabapentin last Friday. Been on it a week. Numbness in mid back and a shocking burning sensation in my left breast and under my right arm along my upper side when I lean or bend forward. I mean ouch!! The Gabapentin has helped immensely! I can do my house work and reg. stuff. My doc thinks it's inflammation from my RA. So, waiting on RA drugs to fully kick in before I can get off the Gabapentin. Could he be wrong and it's a PBC thing?

Stella

DX PBC 10/16

DX RA 4/17

[Melwoods in reply to Ktltel]

No

Just itching

[Lisa15 in reply to Ktltel]

I have nerve pain in my neck and back from herniated discs. When I am up moving around for very long it gets worse and causes a migraine. It helps me with not getting the migraines as often. I used to get them 6 or more times a month and could last few days, since I've been taking it I get them about 3 times a month. I am glad to hear it is helping with your pain. I don't know if it is PBC related or not. I have constant muscle pain and joint pain (I do have osteoarthritis) but I have deep bone pain. I don't have a clue why the bone pain and my GP doesn't really know either. I would like to know if that could be PBC related. Sorry, to have rambled on. I hope you get some relief with your RA meds. Please keep me posted.

Lisa

[cfsummerford72]

This medication destroys your bones. With PBC we are susceptible to osteoporosis. As for the itch prevalite and hydroxyzine is recommended bc of the condition of filtering through your liver. The itch is different from normal itch. I slather my body with coconut oil when i get out of the shower. It seems to soak into my skin. I also suffer from dry everything mucus related. Ive found it helpful to keep those areas moisturized eye drop ear drops nassl spray and vaginal lubes.

Connie

[Ktltel in reply to cfsummerford72]

Cfsummerford72,

Which medication destroys your bones... Urso? OR Gabapentin?

What do you do to counter act this?

Thank you,

Stella

[cfsummerford72 in reply to Ktltel]

Gabapentin eats your bones up.

[Ktltel in reply to cfsummerford72]

Cfsummerford72,

Wow, that's not good news. It's downright scary. Can you send me a link or tell me where you got that information about Gabapentin? My doctor didn't tell me this. I may have to be on it a while. I've heard prednisone isn't good for bones.... but, I didn't know this about Gabapentin.

Thanks

Stella

[cfsummerford72 in reply to Ktltel]

ehealthme.com/ds/gabapentin...

[Ktltel in reply to cfsummerford72]

Thank you for that link. I found a few of my own too. Don't know what to do now. I'm only on 200 mg a day split morning and evening. Still, this is upsetting. I'll be talking to my doctor about it.

Stella

[daleen]

Hi there. The itch use to drive me up the wall untill my specialist pescribed Bezalip. The itch is gone. Talk to your doctor about it. Good luck.

[Melwoods in reply to daleen]

I've been on it a few months

Helped with my levels

Not with the itch

[Shulsey]

I recently stopped taking this medication. I was not on it for the itch & it didn't help that either. I was on it for pain but all it done for me was make me pass out

[dollydaydreams]

Same here Shulsey it did nothing for me either, was given to me as a painkiller and i just swelled up like a balloon to the state where i could not even get up from a chair

[Cat19]

I take Gamapentin for my nerve pain, but funny my itching has been much better. Good luck take care.

[Melwoods in reply to Cat19]

Can I ask

What had you tried for the itch before ?

[Cat19 in reply to Melwoods]

Hi Melwoods I still take the antihistamine Fexofenadine 120 mgs I take one daily but also now take 600 mgs of Gamapentin x3 times a day but as I said for nerve pain, and it wasn't till I was reading on here how it's used for itching that I realised mine was I proved ,hope that's helped. Take care Cat19 🤗