Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,476 members•8,330 posts

All posts for February 2014

Hair loss

hi, Has anyone experienced hair loss while on Urso?

Hidden

•11 years ago

25 Replies

I've just started on urso, I've taken it for 1 week now , and I feel terrible. Heart burn, stomach cramps, diarrhea, flatulance

My dr. Didn't really explain anything about side effects, and she suggested I take the whole dose in one go not build up gradually. Thank goodness the...

My dr. Didn't really explain anything about side effects, and she suggested I ta...

Lucylongstockings

•11 years ago

17 Replies

Yes, its me again :) Did any of you have right side pain that would go into your back before you were diagnosed?

The reason I'm asking is that as I sit here in my bedroom this morning, thinking of all sorts of things, I am concerned that these doctors that let me go for...

The reason I'm asking is that as I sit here in my bedroom this morning, thinking...

NotorDJP

•11 years ago

22 Replies

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PS to previous post

I apparently have been in Stage 3 CID / Kidney Failure for many years - only advised this recently - is there a connection with PBC? thanks again

I apparently have been in Stage 3 CID / Kidney Failure for many years - only adv...

Nellasu

•11 years ago

1 Reply

Itching I have been itch free with my PBC but I have had a rashy feel in my neck area; this morning when I woke was very itchy.

I dont really know what to look out for and am wondering if this is the beginning of the itch... where does it usually strike..thanks

I dont really know what to look out for and am wondering if this is the beginnin...

boneytoys

•11 years ago

8 Replies

What grades or stages are people at? Especially in relation to urso.

Hello to you all. Another new PBCer Some of you have had PBC for a long time (surprised). Has taking urso brought liver counts to a normal level I should...

Hello to you all. Another new PBCer Some of you have had PBC for a long time (...

Ellean

•11 years ago

17 Replies

Still being tested for PBC-scared it could be PSC instead.

Does anyone here have any insight into the PBC vs PSC thing? I don't have all my blood work or Ultrasound back yet. I have been told I am AMA positive, but I...

Does anyone here have any insight into the PBC vs PSC thing? I don't have all m...

NotorDJP

•11 years ago

12 Replies

Hi, The past few days I have developed a rash all over my arms its really itchy, has anyone else had this? Also I was told I had PBC last y

Hi, The past few days I have developed a rash all over my arms its really itchy, has anyone else had this? Also I was told I had PBC last year through blood...

Hi, The past few days I have developed a rash all over my arms its really itchy...

Gemma01

•11 years ago

5 Replies

Vegan diet PBC/AIH overlap

I was just diagnosed with PBC/AIH overlap in December. I had my gallbladder out in October. My acupuncturist put me on a vegan diet...has anyone else tried...

I was just diagnosed with PBC/AIH overlap in December. I had my gallbladder out ...

ZiggyBean

•11 years ago

21 Replies

Hello. On diagnosis trail-live in the US

Hello I haven't been definitively diagnosed yet, but my alk phos is high, GGT is high and I am AMA positive. Just looking for some support here. I know that...

Hello I haven't been definitively diagnosed yet, but my alk phos is high, GGT is...

NotorDJP

•11 years ago

26 Replies

I'm passing along information for a new clinical trial for people with PBC and itching (appears to be US based)

From what I can tell, recruiting is beginning soon: http://clinicaltrials.gov/ct2/show/NCT01899703?term=PBC+Itch&rank=1 If anyone is interested they can...

From what I can tell, recruiting is beginning soon: http://clinicaltrials.gov/c...

JennerLayne

•11 years ago

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Does anyone use epsom salt to help flush toxins from their body? (Either by bathing or taking a small amount orally)

I watched a US television show earlier this week that highlighted the positive effects of soaking in epsom salt for 10-20 minutes 2-3 times weekly. It pulls...

I watched a US television show earlier this week that highlighted the positive e...

JennerLayne

•11 years ago

13 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for February 2014

Hair loss

I've just started on urso, I've taken it for 1 week now , and I feel terrible. Heart burn, stomach cramps, diarrhea, flatulance

Yes, its me again :) Did any of you have right side pain that would go into your back before you were diagnosed?

PS to previous post

Itching I have been itch free with my PBC but I have had a rashy feel in my neck area; this morning when I woke was very itchy.

What grades or stages are people at? Especially in relation to urso.

Still being tested for PBC-scared it could be PSC instead.

Hi, The past few days I have developed a rash all over my arms its really itchy, has anyone else had this? Also I was told I had PBC last y

Vegan diet PBC/AIH overlap

Hello. On diagnosis trail-live in the US

I'm passing along information for a new clinical trial for people with PBC and itching (appears to be US based)

Does anyone use epsom salt to help flush toxins from their body? (Either by bathing or taking a small amount orally)

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