The reason I'm asking is that as I sit here in my bedroom this morning, thinking of all sorts of things, I am concerned that these doctors that let me go for over 2 years, have now let me in for a later stage once diagnosed. I have had this pain before, but I haven't had until I went to the ER for my fibroid and was shot with intravenous pain meds, then told to take 800mg ibuprofens twice a day. I didn't know anything about possible PBC then. I am thinking maybe my liver is inflamed. Its better than it was, but it seems that if I eat something fatty or too sweet, I get terrible gas. I bloat up and then it pushes on that side and i am sore again. it gets better when I rest, when I wake up in the morning, I have the fullness there, but not the pain. but once I'm up and moving around, my lower back starts to hurt I get that full feeling across my stomach and it starts to hurt.
I have a hiatal hernia too, and acid reflux, which I normally take omeprazole for, but I have been trying to get off it.
I know you aren't doctors, but i was reading over on the american liver foundation's website, on the PBC board and all they talk about is the ones diagnosed in later stages having this pain because their livers were swollen and damaged. can you have an ache over there and the liver not be damaged yet? can it be swollen from inflammation like anything else and not have perm damage yet?
Sorry to pepper you all with so many questions, but I don't see my doctor till friday and I don't have my U/S until wed. thanks