Long Covid

[MorningMist]

I just listened to a radio programme about the effects of long covid. A women whose spinal cord was affected- now walks with crutches, intermittent bouts of exhaustion…

Every time I hear of the symptoms people suffer it just screams b12 deficiency. Can’t anyone get the medical professionals to consider it as a cause?

It seems the bigger the elephant in the room the more they look the other way.

[Sleepybunny]

Hi,

I was shouting "What about B12 deficiency" at my radio too this morning.

Today programme - Radio 4 - 28th Nov

bbc.co.uk/programmes/m0025d6g

PAS (Pernicious Anaemia Society) blog post about Long Covid

pernicious-anaemia-society....

I found several relevant articles when I searched for "long covid B12 deficiency".

[MindfulSquirrel]

Well the problem with long COVID is that not all long COVID probably comes from the same cause. There’s that paper which suggests it throws methylation and I’m pretty sure it does that to me. Yet I know someone whose long COVID symptoms are nothing to do with B12, and who gets quite cross when people suggest it as an generalised cause.

My suspicion is that COVID goes for whatever biochemical vulnerability you have and sticks the knife in further (it’s also impacted my collagen tissue).

[MorningMist in reply to MindfulSquirrel]

That’s very likely but I think b12 should at least be offered as a treatment, as many of the symptoms mirror a deficiency. It certainly wouldn’t do any harm and if I suffered from it I wouldn’t exclude any simple remedy. If it is not effective then other solutions can be sought.

Could it be that Covid’s unusual way of permeating cell membranes affects the ability to absorb other substances in some people. And causes longer lasting damage that way?

I too know a few people who are dismissive or even annoyed at the thought that b12 deficiency could be the cause or a contributor to their condition but who at the same time are not irritated by complicated, less plausible and more difficult to treat diagnoses. Why, I can’t imagine.

[Sparklingsunshine in reply to MorningMist]

When we have a condition there's a tendency to see everything through the prism of it. I see this sometimes on the thyroid forum. People assuming all their symptoms are related to their thyroid or being over or undermedicated. In some cases it will be but not all.

I find doctors guilty of it as well tbh,if you have a condition everything gets blamed on that. You wouldnt believe the guff I've heard over the years blaming everything I have on Fibromyalgia.

However anyone with LC should certainly have plenty of tests run to rule out other conditions with similar symptoms. And that should include a full blood test panel.

[Cherylclaire Forum Support]

If I remember rightly, Martyn Hooper also thought the strong similarities were worth further investigation when Long Covid was first being discussed as an issue. He contacted all the main hospitals' medical professional bodies involved, and alerted them to this.

I also remember reading a research paper considering how best to prevent elderly patients admitted to hospital with Covid from deterioration to the stage where they need mechanical respiratory aid - and treatment with DMB was reported as having had positive results in this area. DMB: Vitamin D, Magnesium and Vitamin B12. Sorry, I have had a look but haven't been able to find this paper.

[MoKayD]

I don't remember where, but earlier this year I read something about people with long Covid seem to have low B12 also. So, when my husband and I caught Covid while vacationing in Greece this spring I made sure to give myself a shot as soon as we got back home. I ended up having a very mild case but my husband's bout took over 2 months to finally resolve. We both had our vaccinations at the same time before we left. I don't know, maybe it helped.

[Jeep13]

for Long Covid suffering I would suggest trying the McCullough Detox Protocol. It’s all natural supplements and is not expensive.

[Sparklingsunshine in reply to Jeep13]

Peter McCullough just happens to be a Co founder of a wellness company that sells the supplement he touts as a cure for LC. He is hardly impartial and $119 for his " cure" isnt cheap. He sounds like he is preying on sick and vulnerable people. science.feedback.org/review...

[Jeep13]

consider the alternative

[Topsy33 in reply to Jeep13]

I would suggest caution with any de- toxing protocol.

Methylation problems are very common, especially under- methylation and detoxing can overload an already sluggish system and cause notable side effects.

I would always steer clear of companies selling detox products…they have a strong, invested interest in selling them to you and are not around to help you deal with the repercussions.

[Jeep13 in reply to Topsy33]

They are all natural and over the counter vitamins. There are no side effects.

[Sparklingsunshine in reply to Jeep13]

Just because something is natural doesnt mean it has no side effects.

[Jeep13]

true. But if I had long covid I’d try something natural before I’d let them inject me with anything. I’m not saying you should or shouldn’t, I’m passing information use it or don’t. It’s your choice.

[Oneash]

Covid tipped me over the edge into full PA. The nurse I like the most the doctors definitely thinks there is a covid B12 connection.