PROM Wiseguy

[WIZARD6787]

This post was created after reading Wiseguy's post "B12 PROM (Patient-Reported Outcome Measure)"

I posted separately as although I find value in the information that may be gained from testing as advised by the medicial field ultimately the only definitive way to determine if I experience B12D is to do a trial of 1 mg EOD and if it has no effect than I am not B12D.

Actually I would go with 1.5 mg per day then evaluate.

That would only serve to establish that I was B12D and then I would have to design the best way possible to treat my B12D.

In short diagnosis of B12D is solved to my satisfaction and that the knowledge is not utilized and likely will not be utilized is not where I will be spending my efforts.

That being said I have concluded that the fault lies not with the patient's inability to communicate symptoms rather the inability of the doctor to understand the communication.

It is in error to think that because a doctor has the intellectual ability to memorize and regurgitate then they also have the intelligence to gather and apply information. Possibility from the concept that doing well in school is given too much importance. Easy for me to say as I did well in the 7 colleges/universities I attended.

That being said it might be helpful for me to create a PROM specifically for symptoms. This might be helpful in evaluating my success over time rather than my propensity to think in terms of daily success. A get away from it is simple to listen to your body methodology.

As an example it might be helpful to have a numerical evaluation of this spring as compared to last spring.

It also might be helpful in evaluating my trials. The ones that are negative are easy. The successful ones are more difficult to evaluate. In part as the effects of a trial sometimes takes 4 weeks to evaluate although usually I can determine in a few days it is positive.

I used to keep track of symptoms for B12D in general this is a big part of how I determined conventional treatment was mediocre at best and I ceased believing in those that promised I would heal if I just waited long enough following what I now know to be inferior self treatment.

I have thought of creating a personal PROM although I did not have a name for it. The reason I have not made that happen is emotional. I find comfort in knowing I am feeling better and am successful and do not want to face what it might take to be more successful.