Draft NICE B12?: Hi everyone, I was... - Pernicious Anaemi...

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Draft NICE B12?

RoseFlowerDew profile image
5 Replies

Hi everyone, I was checking the NICE site for B12 guidelines in anticipation of Wednesday’s publication and noticed that the release date has been removed and the stakeholders updated. I am praying that this is not another delay as my confirmed diagnosis from 2016 was overturned by a new GP as a false positive and my treatment stopped. I am dependent on the timely publication to be able to have evidence behind reversal of my treatment. Does anyone have any idea what is happening?

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RoseFlowerDew
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Narwhal10 profile image
Narwhal10

Hi RoseFlowerDew,

I just looked at the website and a few other bits and bobs. Sorry, I do not know. Hopefully, someone else can shed some light.

Frankly, I am disgusted that your firm diagnosis from 2016 and all your treatment up until this new GP came along was regarded as a false positive and totally disregarded everything.

Good luck with it all.

helvella profile image
helvella

I suggest you, along with others, contact NICE and ask them what they are doing.

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If you have any queries please email Vitb12over16s@nice.org.uk

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Dancer57 profile image
Dancer57 in reply tohelvella

Thank you helvella.

I have just sent them an email. 😠

LorraineQ profile image
LorraineQ

Hi can you tell me where to find the Nice site? Thankyou

Dancer57 profile image
Dancer57

Hi LorraineQ

I was sent this by a member a few weeks back:-

nice.org.uk/guidance/indeve...

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