Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,225 members • 23,393 posts

All posts for February 2024

receptionists acting like doctors?

when I last saw my Doctor I asked if she’d read the paperwork I’d left for her but as her surgery was being decorated she said they were probably in her...

when I last saw my Doctor I asked if she’d read the paperwork I’d left for her b...

Beadbuddy

•5 months ago

16 Replies

IFABs Borderline?

Hi I've recently had this result Intrinsic Factor Antibodies 1.33 AU/mL Range <1.2 Negative 1.2-1.53 Borderline >1.53 Positive how can this be?...

Hi I've recently had this result Intrinsic Factor Antibodies 1.33 AU/mL R...

Doeyditdot

•5 months ago

1 Reply

Grain free B12 injections - hypersensitive

Hi, just wondered if anyone has advice re trialling B12 injections which I've just been offered by GP. I am totally grain free, medication and chemical...

Hi, just wondered if anyone has advice re trialling B12 injections which I've ju...

bookish

•5 months ago

7 Replies

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Palve

After suffering from vertigo, years of burning mouth syndrome, being diagnosed with diverticulitis and then 2 yrs of neurological pain, I’ve been told I can...

After suffering from vertigo, years of burning mouth syndrome, being diagnosed w...

Palv

•5 months ago

6 Replies

Alzheimer's

Anyone read this or similar before now https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8774227/

Anyone read this or similar before now https://www.ncbi.nlm.nih.gov/pmc/article...

OldmanD

•5 months ago

73 Replies

Update B12 appointment . help needed

Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website...

Thank you all for your advice . Had an appointment yesterday and despite feelin...

Welshtoffee

•5 months ago

23 Replies

Sterile injectable Saline

Could anyone advise me where I can purchase sterile injectable saline that will ship to the UK please? I’m struggling. Thank you.

Could anyone advise me where I can purchase sterile injectable saline that will ...

dedicatedwife

•5 months ago

42 Replies

B12 storage?

I have just realised that my fridge has gone haywire. Temperature up to 2 degrees.Turned it off!In the bottom were 8 pkts of B12 wrapped up in their packing...

I have just realised that my fridge has gone haywire. Temperature up to 2 degree...

jaybirdxNHM

•5 months ago

22 Replies

B12 Jabs treatment changed again

on my last appt with the GP nurse for my B12 jab, my patient notes were changed back from 8 weekly jabs to 12 weekly. My question is can a nurse change my...

on my last appt with the GP nurse for my B12 jab, my patient notes were changed ...

Meggymoo63

•5 months ago

7 Replies

Confused

So I had an active b12 test done in August and it showed borderline normal at the low end. I was told to do am MMA blood test and supplement. The MMA blood...

So I had an active b12 test done in August and it showed borderline normal at th...

Popcorn12345

•5 months ago

15 Replies

B12 injections and low dose naltrexone (LDN)

I have recently started using LDN (.25mg) w/ positive effects, however it recently seems like I need to increase my B12 injections. I have only been using LDN...

I have recently started using LDN (.25mg) w/ positive effects, however it recent...

boisland

•5 months ago

23 Replies

shocked to my core

I usually just read here, I don’t normally post but this article shocked me because it shows just how screwed the health system is...

I usually just read here, I don’t normally post but this article shocked me beca...

Frankish

•5 months ago

24 Replies

Healing slowed due to lack of sun energy.

I am still healing but it is slower and I need more sleep to heal. It became definitive when there was stronger February sun and there happened to be fewer...

I am still healing but it is slower and I need more sleep to heal. It became de...

WIZARD6787

•5 months ago

2 Replies

Vitamin d

Currently trying to sort out my health after realising my stomach is not absorbing b12 (am SI). I’ve been on a low dose of d3 (500 ug) for years after being...

Currently trying to sort out my health after realising my stomach is not absorbi...

Pepperpots302

•5 months ago

24 Replies

Advice re testing

Good morning everyone, I would really love some thoughts before seeing my GP please! I have had some great advice from Thyroid UK and seems like firstly I...

Good morning everyone, I would really love some thoughts before seeing my GP pl...

KRex

•5 months ago

48 Replies

Pins and Needles - when do they start?

I'm still suffering with some severe pins and needles in one foot and up the leg to the knee (mainly in the shin though). When I first wake in the morning,...

I'm still suffering with some severe pins and needles in one foot and up the leg...

Madman070578

•5 months ago

2 Replies

BananasMakeUHappy

HelloI am waiting on results of intrinsic factor for PA My blood result showed B12 at 151. I don't know what the normal range is. This site has been very...

HelloI am waiting on results of intrinsic factor for PA My blood result showed ...

BananasMakeUHappy

•5 months ago

8 Replies

Needles for B12 self injection

Hi I used to purchase my B12 and syringes & needles from Rotexmedica which I believe no longer exist. I have now found another company in Germany to order...

Hi I used to purchase my B12 and syringes & needles from Rotexmedica which I...

Mariemcdo

•5 months ago

5 Replies

Vital Role of B12 and Folate

https://www.sciencedirect.com/science/article/abs/pii/S0193953X12001001?via%3Dihub This article focuses on the role of b12 and folate in the synthesis of...

https://www.sciencedirect.com/science/article/abs/pii/S0193953X12001001?via%3Dih...

B12life

•5 months ago

3 Replies

hEDS and B12 comorbidity?

Possibly a bit of a long shot but does anyone here also have a diagnosis of hypermobile Ehlers-Danlos syndrome and/or joint problems related to hypermobility...

Possibly a bit of a long shot but does anyone here also have a diagnosis of hype...

MindfulSquirrel

•5 months ago

6 Replies

Folate when SI?

Hi everyone, How much folate is recommended when injecting B12? The folate tablets I have are 400µg. Also, can anyone kindly comment on my sudden lip...

Hi everyone, How much folate is recommended when injecting B12? The folate ta...

J972

•5 months ago

36 Replies

Early signs of PA

I've been giving some thought to how long I've had PA. I was diagnosed about 2 years ago. BUT, when i look back at old photos of myself, my skin colour changed...

I've been giving some thought to how long I've had PA. I was diagnosed about 2 y...

Sailinglady

•5 months ago

18 Replies

Interesting article on more sustainable B12 production

"Research at the Quadram Institute has developed sustainable manufacturing processes for B12, helping address a growing global need for the synthesised...

"Research at the Quadram Institute has developed sustainable manufacturing proce...

Technoid

•5 months ago

25 Replies

Sylvia Plath and B12?

Has anyone else pondered on the links here? Although I can find all sorts of discussion about her early stresses, repeated losses and struggle with...

Has anyone else pondered on the links here? Although I can find all sorts of di...

bookish

•5 months ago

24 Replies

muscle cramping

Any suggestions for relief? Have been relatively well for the past year or so, but still have muscle cramps randomly. Lying in bed at night if I move my foot...

Any suggestions for relief? Have been relatively well for the past year or so, b...

Emmers5

•5 months ago

21 Replies

Ducks in a row

I was first diagnosed with Pernicious anaemia 3 or 4 years ago but thought nothing of it until my legs and arms started going numb and I kept falling round...

I was first diagnosed with Pernicious anaemia 3 or 4 years ago but thought noth...

Whiteways4711

•5 months ago

18 Replies

Autoimmune Diseases

Saw this news article today and found it interesting....

Swift20

•5 months ago

20 Replies

B12 very high with normal blood results?.

hey, hoping someone with some b12 knowledge can give me some advice for when I see my doctor. Last year I was having some b12 injections paid privately, my...

hey, hoping someone with some b12 knowledge can give me some advice for when I s...

Jodie782

•5 months ago

34 Replies

Glaucoma B12 relationship?

Has anyone already commented on this or can anyone make any sense from it? Especially the discussion para which just makes no sense to me at all...

Has anyone already commented on this or can anyone make any sense from it? Espe...

bookish

•5 months ago

4 Replies

further tests after loading doses

my levels were initially 17, following 6 loading does my GPdid a blood test which was 156. My symptoms are getting worse so I have been to see my gp today and...

my levels were initially 17, following 6 loading does my GPdid a blood test whic...

JessB94-

•5 months ago

8 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2024

receptionists acting like doctors?

IFABs Borderline?

Grain free B12 injections - hypersensitive

Palve

Alzheimer's

Update B12 appointment . help needed

Sterile injectable Saline

B12 storage?

B12 Jabs treatment changed again

Confused

B12 injections and low dose naltrexone (LDN)

shocked to my core

Healing slowed due to lack of sun energy.

Vitamin d

Advice re testing

Pins and Needles - when do they start?

BananasMakeUHappy

Needles for B12 self injection

Vital Role of B12 and Folate

hEDS and B12 comorbidity?

Folate when SI?

Early signs of PA

Interesting article on more sustainable B12 production

Sylvia Plath and B12?

muscle cramping

Ducks in a row

Autoimmune Diseases

B12 very high with normal blood results?.

Glaucoma B12 relationship?

further tests after loading doses

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