Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,227 members • 23,397 posts

All posts for February 2024

I am urging more members to respond. 🙏

I am reposting the link put on by Sleepybunny 5 days ago........ Hi, I've posted about Care Opinion before but look every now and then to see if any...

I am reposting the link put on by Sleepybunny 5 days ago........ Hi, I've post...

Jillymo

•5 months ago

41 Replies

Newbie to this community and wondering about B12 deficiency

Hello, for the past 4 years I've had symptoms of CFS, plus low FT4 and on occasions, low TSH. I've also had my cortisol tested by saliva and short synacthen...

Hello, for the past 4 years I've had symptoms of CFS, plus low FT4 and on occasi...

Jamima

•5 months ago

13 Replies

GP requests blood tests after injections

My daughter has asked her GP for B12 injections (I won't always be around to do them) she has been called in for a blood test, however stating NICE guidelines...

My daughter has asked her GP for B12 injections (I won't always be around to do ...

pinkpaddleboarder

•5 months ago

9 Replies

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Polyneuropathy

so last summer 2023, I woke w severe pain I. My toes, excruciating, tried to stand, took a bit. Then a tried to walk… pain so bad in my toes. So that...

so last summer 2023, I woke w severe pain I. My toes, excruciating, tried to sta...

Skieblue

•5 months ago

2 Replies

flashing lights

hello everyone! I hope this finds you well. I must say I really love this forum it’s the best ! I wanted to ask a question, is it normal that after taking a...

hello everyone! I hope this finds you well. I must say I really love this forum...

Reembow

•5 months ago

4 Replies

Tips on Disc Surgery Recuperation?

I had C4/5 disc replacement surgery 6 months ago, after suffering severe myelopathy for 3 years. Recovery has been brutal and I’m experiencing neurological...

I had C4/5 disc replacement surgery 6 months ago, after suffering severe myelop...

Bellmore2089

•5 months ago

2 Replies

Hydroxocobalamin injections

hi, I’m in Washington, USA, and I can’t get my prescription of Hydroxocobalamin injections anywhere. I was diagnosed with pernicious anaemia in 1992 (inherited...

hi, I’m in Washington, USA, and I can’t get my prescription of Hydroxocobalamin ...

Dawn1015

•5 months ago

34 Replies

B12 Crashing symptoms

can anybody else tell me their symptoms during B12 deficiency crash. I’m trying to figure out how bad I should be in order to request another shot.

can anybody else tell me their symptoms during B12 deficiency crash. I’m trying ...

Skieblue

•5 months ago

9 Replies

not PA, next steps

Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or...

Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had m...

AJackson21

•5 months ago

16 Replies

Liquorice

Good morning everyone, has anyone out there tried liquorice for healing , thanks

Helliborous

•5 months ago

19 Replies

Out of interest......what were you initially (mis)diagnosed with?

I'm just wondering what people were initially misdiagnosed with? When I was at my most unwell my GP at the time wanted to diagnose me with Fibromyalgia. I was...

I'm just wondering what people were initially misdiagnosed with? When I was at m...

BeachArt

•5 months ago

52 Replies

L Glutamine

Hi everyone, could anyone advice me on L Glutamine, I have Intestinal Metaplasia and I don't know if I should take it. I have read it supports the stomach...

Hi everyone, could anyone advice me on L Glutamine, I have Intestinal Metaplasia...

Helliborous

•5 months ago

4 Replies

Zypan?

Hi everyone. Just wondering if anybody here is taking Zypan or have taken it before? Just watched a really helpful video from Dr Berg on YouTube on PA where he...

Hi everyone. Just wondering if anybody here is taking Zypan or have taken it bef...

MLJ2024

•5 months ago

20 Replies

B12 ampules

I have noticed that my B12 ampules are a few months out of date, will they still be effective? I had a fall and brain injury in December and wonder if the...

I have noticed that my B12 ampules are a few months out of date, will they still...

bethmoggie

•5 months ago

9 Replies

are my labs showing anything?

Hi all, wondered if anyone could offer some advice, i started B12 injections a couple weeks ago i only did a few days as i started to get symptoms of severe...

Hi all, wondered if anyone could offer some advice, i started B12 injections a c...

M-usher

•5 months ago

7 Replies

Help with blood results

Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since...

Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Fer...

Lindsayf

•5 months ago

8 Replies

The ratty feeling won't go!

My temper can be pretty short. I got angry yesterday, my husband, who won't take instructions and won't educate himself about gardening was hacking away...

My temper can be pretty short. I got angry yesterday, my husband, who won't tak...

Oneash

•5 months ago

27 Replies

need advice

Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood...

Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my ...

Tiredycake

•5 months ago

39 Replies

Advice

How long should you supplement b12 before starting folate?

Popcorn12345

•5 months ago

13 Replies

Martin Hooper ‘Announcement’ (I think)?

I seem to remember reading on the PAS website (I think) a sort of ‘heads up’ that he was in collaboration with a lab (again, I think) that would have the...

I seem to remember reading on the PAS website (I think) a sort of ‘heads up’ tha...

B12again

•5 months ago

5 Replies

Info needed before sending letter to GP

Hi, I'll give some background information for you. Diagnosed with Functional B12 deficiency in Dec 2016, after being really unwell, and suffering a multitude...

Hi, I'll give some background information for you. Diagnosed with Functional B12...

BeachArt

•5 months ago

27 Replies

Help For Pernicious Anaemia Injections Effect

I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten...

I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency....

So_Drained

•5 months ago

14 Replies

Update

I no longer experienced severe symptoms associated with B12 deficiency after 6 months of injecting 3 mg of Hydroxocablamin three times a day and supplementing...

I no longer experienced severe symptoms associated with B12 deficiency after 6 ...

WIZARD6787

•5 months ago

3 Replies

Help with intrinsic factor results

hi all i was recently told i tested positive for gastro parietal cells. This is my intrinsic factor results. Im confused is this a positive or negative? And...

hi all i was recently told i tested positive for gastro parietal cells. This is ...

Confused1806

•5 months ago

6 Replies

Wood Butt

Hello everyone. I have recently been experiencing something and wonder if any of you have had this too. A nurse said you can start having build up of hard...

Hello everyone. I have recently been experiencing something and wonder if any o...

MrJustatip

•5 months ago

28 Replies

Experienced powdered Methylcobalamin users; can you help me please?

I don’t understand the premise of this. I purchased a 40ml vial of powdered Methylcobalamin. It tells me to add 10ml saline. Is this correct? If there’s only...

I don’t understand the premise of this. I purchased a 40ml vial of powdered Meth...

dedicatedwife

•5 months ago

7 Replies

Where to buy Feb 2024

Hi eveyone. Until now I have bought my B12 1mg/1ml Depot yearly but now it looks like things have changed. My regular German supplier says they no longer...

Hi eveyone. Until now I have bought my B12 1mg/1ml Depot yearly but now it look...

HecticGem

•5 months ago

16 Replies

Has anybody prior to a Functional B12 deficiency or PA experienced muscle ache in the quads and calves shortly after eating ?

And general feeling that your legs are going to give way? Any thoughts greatly appreciated, Every best wish, G

And general feeling that your legs are going to give way? Any thoughts greatly ...

Gillybean1

•5 months ago

14 Replies

Still no diagnosis and feeling dosheartened

I felt so certain I had PA but my gp has told me both tests done were normal. My B12 has been between 190 and 246 and that was with supplements but it has...

I felt so certain I had PA but my gp has told me both tests done were normal. My...

Curiouselephant

•5 months ago

12 Replies

Rosacea due to B12 deficiency?

Hi, I have been diagnosed with vitamin b12 deficiency and starting the loading doses after firstly being prescribed oral. I had felt unwell for at least a year...

Hi, I have been diagnosed with vitamin b12 deficiency and starting the loading d...

Bebe74

•5 months ago

20 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2024

I am urging more members to respond. 🙏

Newbie to this community and wondering about B12 deficiency

GP requests blood tests after injections

Polyneuropathy

flashing lights

Tips on Disc Surgery Recuperation?

Hydroxocobalamin injections

B12 Crashing symptoms

not PA, next steps

Liquorice

Out of interest......what were you initially (mis)diagnosed with?

L Glutamine

Zypan?

B12 ampules

are my labs showing anything?

Help with blood results

The ratty feeling won't go!

need advice

Advice

Martin Hooper ‘Announcement’ (I think)?

Info needed before sending letter to GP

Help For Pernicious Anaemia Injections Effect

Update

Help with intrinsic factor results

Wood Butt

Experienced powdered Methylcobalamin users; can you help me please?

Where to buy Feb 2024

Has anybody prior to a Functional B12 deficiency or PA experienced muscle ache in the quads and calves shortly after eating ?

Still no diagnosis and feeling dosheartened

Rosacea due to B12 deficiency?

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