Confused

[Popcorn12345]

So I had an active b12 test done in August and it showed borderline normal at the low end. I was told to do am MMA blood test and supplement. The MMA blood test came back normal so assumed I was OK and that the supplement would raise my levels. I was taking cyanocobalamin. I took this for 4 months and then had my levels re tested. My serum b12 had gone way up but my active b12 had gone down slightly. I'm now really worried. I'm just starting to take liquid methylcobalamin and adenosylcobalamin supplement hoping this will help.

How do I work out why I'm having this problem???

[Corney23uk]

Hi Popcorn12345 - what was you Active B12 result and do you have symptoms. The MMA test is not always accurate

[Popcorn12345 in reply to Corney23uk]

My MMA blood test was 179 nmol/LActive B12 was 46 pmol/l

[Corney23uk in reply to Popcorn12345]

The Active is low enough for you to have symptoms - the blood tests could show functional B12 deficiency

[Popcorn12345]

I've been to my doctor today who said they don't even know what active b12 is. Apparently they don't run it on the NHS which is why I had it done privately. Not sure what I do now

[Corney23uk in reply to Popcorn12345]

Do you have symptoms of B12 deficiency? what are they?

[Gillybean1 in reply to Popcorn12345]

Hi Popcorn12345,

For your Doctors information,the Monitor My Health site run by the NHS, within their test kit lists, ONLY include Active B12 in favour of Serum B12 because according to their wording its the gold standard test and that serum b12 does not give much of a picture, maybe print it out and post or email to your Doctor. He /she should know this.

Every best wish to you, G

[Popcorn12345 in reply to Gillybean1]

I spoke to an apparent b12 specialist too who told me not to worry about it as medi checks test are inaccurate. I honestly don't know whst to believe. If you cant get a doctor to listen, what do you do?

[Gillybean1 in reply to Popcorn12345]

Hi Popcorn12345,

I was referring to the NHS run site Monitor My Health, not Medichecks.

Kind regards G

[Popcorn12345 in reply to Gillybean1]

Yeah I know. Thank you very much for that. But what do you do when no one will listen to you? Is it ok to just try the sublingual liquid? At what point should you also take folate?

I'm so overwhelmed and no one will listen. I don't know what to do anymore

[Gillybean1 in reply to Popcorn12345]

oh Popcorn12345 I know only too well how you feel ,when medics are not hearing or listening, and it all becomes overwhelming and lonely. Keep looking, asking and reading on this site. You will have more constructive advice and caring support here.

Im not the best person to ask for when to take what and when, how about posting again and ask what you asked me.

Keep going, we all have a right to optimum health, we may have to shout louder..

Every best wish, G

[Popcorn12345]

This is where it gets tricky. I don't know of you have heard of protracted antidepressant withdrawal? I have a ton of symptoms and don't know which are from that and which could be vit b12

[Corney23uk in reply to Popcorn12345]

Have they done any antibody tests?

[Popcorn12345]

Do you mean intrinsic factor?

[Corney23uk in reply to Popcorn12345]

or Parietal Cell?

[Popcorn12345]

They are going to run intrinsic factor, I dint know how to get the other one