Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for December 2023

Second call for anyone using or knows where to buy methyl and adeno for injection

Hi all I seem to be getting nowhere in finding methyl and adeno for injection. This is what we’ve decided on and would really like to try them, in the first...

Hi all I seem to be getting nowhere in finding methyl and adeno for injection. ...

Noelnoel

•5 months ago

34 Replies

cyano or hydroxo ????

which is better? I have been S/I ing with hydroxy cobalamin for just over a month now, made some great progress, no more night sweats, no more itching, better...

which is better? I have been S/I ing with hydroxy cobalamin for just over a mont...

totallyFrustrated

•5 months ago

17 Replies

Links between vaping and B12 deficiency?

Just wondering if anyone has come across any information about vaping being linked to B12 deficiency? I know that there's an established link between the...

Just wondering if anyone has come across any information about vaping being link...

Realtiger

•5 months ago

2 Replies

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Plan of Care

As promised, this can simply be called Plan and the majority of us will see Primary Care Physicians or General Practitioners. There are...

As promised, this can simply be called Plan and the majority of us will see Prim...

Narwhal10

•5 months ago

18 Replies

Vitamin C and B12

Despite weekly injections of b12 my blood results show that I am only mid range and I am still symptomatic. I take codeine for arthritic pain and with this I...

Despite weekly injections of b12 my blood results show that I am only mid range ...

Hectorsmum2

•5 months ago

7 Replies

Please consider signing this petition for better understanding and funding of thyroid conditions 🙏

Good evening all, Occasional poster here, you’ll normally find me lurking on the Thyroid UK forum. I hope you don’t mind me popping over to ask whether...

Good evening all, Occasional poster here, you’ll normally find me lurking on th...

J972

•5 months ago

16 Replies

The saga continues Daughters Bloods

So previously https://healthunlocked.com/pasoc/posts/150272370/daughters-blood-results-advice-please?responses=150276420 had discussion today with the GP...

So previously https://healthunlocked.com/pasoc/posts/150272370/daughters-blood...

Polo22

•5 months ago

4 Replies

JFK - Kennedy and B12

Given the current coverage of the anniversary of the death of President Kennedy, it seems not unreasonable to post about his health issues - specifically the...

Given the current coverage of the anniversary of the death of President Kennedy,...

helvella

•5 months ago

12 Replies

Hypothesis II

My hypothesis is that the antibody that attacks the intrinsic factor and or parietal cell may also bind to B12 rendering it unusable at the cellular level....

My hypothesis is that the antibody that attacks the intrinsic factor and or pari...

WIZARD6787

•5 months ago

19 Replies

New level of 115 before entitled to B12 inj

My sons B12 reading last year was 163. Last week is 139.Now been told new guidance from NorthTyneside is under 115 before being entitled to injections. I am...

My sons B12 reading last year was 163. Last week is 139.Now been told new guidan...

3rdNettydoon

•5 months ago

33 Replies

PA COVID vaccine and atherosclerosis

hi sweet people. I had pa diagnosis 3 month ago and severe atherosclerosis in legs and abdominal vessels. Probably also cardiac vessels All of that started a...

hi sweet people. I had pa diagnosis 3 month ago and severe atherosclerosis in le...

Sissiotto

•5 months ago

7 Replies

Covid and B12

I SI EOD following self diagnosis of B12 deficiency- awful pulsatille tinnitus and I didn’t fit the other reasons I might have it. Covid finally caught me...

I SI EOD following self diagnosis of B12 deficiency- awful pulsatille tinnitus a...

ClareP5

•5 months ago

9 Replies

The Clinical Picture

Dear All, I know many of us have had long journeys to diagnosis or are still trying to be diagnosed. I feel it is important that on this road to explain how...

Dear All, I know many of us have had long journeys to diagnosis or are still t...

Narwhal10

•5 months ago

23 Replies

Biopsy Results

I have had the results of my recent endosendoscopy today. I went privately to see a gastroenterologist as the previous one I had done on NHS stated that I did...

I have had the results of my recent endosendoscopy today. I went privately to se...

Helliborous

•5 months ago

12 Replies

Aching legs

I've just started my b12 injections had 2 another due today ,yesterday didn't feel so bad today aching upper thighs.I've heard about b12 injections making...

I've just started my b12 injections had 2 another due today ,yesterday didn't...

gpw61

•5 months ago

7 Replies

changing hydroxo and methyl dosage.

I’ve been taking hydroxo 1500ug one injection a day for 2 years with folic acid and no improvement. A month ago I added methyl 1500ug one injection a day...

I’ve been taking hydroxo 1500ug one injection a day for 2 years with folic acid ...

qwertystar

•5 months ago

28 Replies

alcohol

does having a drink every night (moderational)deplete your b12 even if injection every 3 months .

does having a drink every night (moderational)deplete your b12 even if injection...

Triggert5656

•5 months ago

11 Replies

Daughters blood results, advice please

15 year old daughter has been having lots of time off school. not ideal in yr 10 and now 11. I feel a bit guilty about it all, think I have dropped the ball...

15 year old daughter has been having lots of time off school. not ideal in yr 10...

Polo22

•5 months ago

5 Replies

My B12 Stuffy Head

This came to me in part from my collaboration with Wwwdot utilizing PM. My B12 Stuffy Head is now my sign that I need more B12 which for me is more frequent...

This came to me in part from my collaboration with Wwwdot utilizing PM. My B12...

WIZARD6787

•5 months ago

1 Reply

A Missed Goal

I made a goal of making it to the winter solstice without being sun energy deprived. I failed. I did not know I was failing until there were two days in New...

I made a goal of making it to the winter solstice without being sun energy depri...

WIZARD6787

•5 months ago

20 Replies

B12 def and itchy skin?

Can B12 deficency / pernicious anaemia cause itchy skin.

Whiskymack

•5 months ago

5 Replies

B12 deficiency, Acid Reflux, heartburn

I’ve recently been diagnosed as B12 deficient. My symptoms were tingling in my feet and calves, hair loss, memory loss, ringing in my ears, exhaustion. This...

I’ve recently been diagnosed as B12 deficient. My symptoms were tingling in my f...

ReallyWondering

•5 months ago

23 Replies

Hi I've just had 2 injections this week and my head and vision seem weird is this normal?

Gpw 65 my gp has just stated to arrange b12 jabs after pestering for best part of 3 years

Gpw 65 my gp has just stated to arrange b12 jabs after pestering for best part ...

gpw61

•5 months ago

8 Replies

B12 Frequency

Hi Guys I want to share with you an incredible success story which I hope will offer hope and inspire.. A year ago I was diagnosed with PA - barely able to...

Hi Guys I want to share with you an incredible success story which I hope will ...

Wwwdot

•5 months ago

50 Replies

ALS and B12

I ran across an article that was interesting, if for no other reason, for its quite detailed description of B12 deficiency. Scroll down to the heading,...

I ran across an article that was interesting, if for no other reason, for its qu...

WiscGuy

•5 months ago

4 Replies

90 Days In.

I decided after consideration of safety and what is known or thought to be true about the treatment of B12 along with my experiences to test my hypothesis...

I decided after consideration of safety and what is known or thought to be t...

WIZARD6787

•5 months ago

6 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2023

Second call for anyone using or knows where to buy methyl and adeno for injection

cyano or hydroxo ????

Links between vaping and B12 deficiency?

Plan of Care

Vitamin C and B12

Please consider signing this petition for better understanding and funding of thyroid conditions 🙏

The saga continues Daughters Bloods

JFK - Kennedy and B12

Hypothesis II

New level of 115 before entitled to B12 inj

PA COVID vaccine and atherosclerosis

Covid and B12

The Clinical Picture

Biopsy Results

Aching legs

changing hydroxo and methyl dosage.

alcohol

Daughters blood results, advice please

My B12 Stuffy Head

A Missed Goal

B12 def and itchy skin?

B12 deficiency, Acid Reflux, heartburn

Hi I've just had 2 injections this week and my head and vision seem weird is this normal?

B12 Frequency

ALS and B12

90 Days In.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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