A Missed Goal

[WIZARD6787]

I made a goal of making it to the winter solstice without being sun energy deprived. I failed.

I did not know I was failing until there were two days in New Hampshire USA that were 4.5 degrees with no wind to speak of. I got two days of good sun and then crashed for three days. Part of the reason for the crash is body temperature regulation with a healing B12 body. Not on the radar of anyone for the most part.

Once I was out in the sun it became apparent I was sun energy deprived.

I injected .75 mg of methyelcobalamin and .75 mg of adenosylcobalamin every 4 hours for 24 hours and that crash is in my rear view mirror as far as I know. Yes that is 36 mg in a 24 hour period. It was the correct amount based on my knowledge base. I am well past concern for following unfounded principles with regards to the amount and frequency of injections.

So I got lots of good data from the crash/failure and do not have much grieving to do as I was successful in treating it for the first time in my life. I also have a much better chance of avoiding the crash and catching it earlier.

So my new goal is to make it to the winter solstice being as minimally sun energy deprived as possible. Given the likely availability of sun it is unlikely that I can avoid being sun/light deprived during that time period.

Note: All forms of B12 are only slightly soluble in water. If they were more soluble in water I find it possible that 1 ml would still be the standard that the medicial field randomly chose 60+ years ago and follows to this day, but the amount of B12 would be higher. Then again maybe not as the false conclusion that the body needs minimal supplementation because very little B12 is needed in a healthy body seems to be the overriding limiting factor in medically designed protocols success for the patient. It is definitely in no way connected to their patients well being and I find no reason that will change.

-I am well versed in D3 and K2 supplementation

-I have studied being sun energy deprived for 10 + years.

-This will be the first winter I have experienced with my current more successful supplementation.

-I have avoided the winter before with travel. Unfortunately not with treatment for my non-functional cellular B12.

-I extremely successfully mitigated my life long body temperature regulation difference my whole life and that knowledge base will be helpful going forward.

-My mitigating my body temperature regulation failed 4 years ago when the symptoms of my non-functional cellular B12 started to be acute.

-I ordered an electric heated coat. I have used an electric heated vest for open water swimming and my knowledge base with that experience may be helpful.

-I have over a $1000 in winter gear and know how to use it.

[Wheat]

Hello Wizard, as usual a very interesting post.

I am so glad for you , and your latest successful treatment of sun deprivation and body temperature regulation measures.

It makes sense, anything that adversely affects the body, depletes B12.

[WIZARD6787 in reply to Wheat]

Thank you!

The neurological system is amazing.

If my neurological system was simple enough to understand my neurological system would be too simple to understand it. 🙂

[Thrones12]

Hi Wizard,I often wonder if buying one of those upright sun cubicles would be of benefit to me , I am a completely different person health wise when I am abroad,my whole being loves the sun I feel so well,the worst thing I ever did was sell up my house in Spain and move back to the U.K. to be close to a family that I rarely see, I’ve genuinely never felt well since and was preparing to go back to my sunny lifestyle when the dreaded Covid reared it’s ugly head and put paid to all my plans.. I must research this and see what the ins and outs of it are you’ve inspired me again lol..x

[WIZARD6787 in reply to Thrones12]

I found no benefit from blue light or tanning.

I lived in Florida for three years and thought I had everything figured out.

The UK is easier for me than New Hampshire in the USA.

If I could have put it together health wise I would be giving Greece a go right now.

If you move back to Spain and need a gardner let me know. 🙂

[Parlay in reply to Thrones12]

I will try and find it as it’s in that “safe place” but I have a Times article on how 5 mins in a sun bed every day can improve your mental well being. I bought a sun bed and i found it to be very beneficial. I did not do long enough to go full on dark brown tan but that 5 mins made me feel amazing throughout the winter.

[Thrones12 in reply to Parlay]

Hi Parlay and Jillymo good ideas there I’ll research later today, my eyes are bad at the moment and everything’s an effort. Many thanks x

[WIZARD6787 in reply to Parlay]

Thank you for that! Who knows my body may have changed enough that now a 'sun bed' might be positive.

I found it weird the first time I used one. I called it a foreman grill and wondered if I was going to have grill marks. 🙂

I use the do not get pink mode when getting sun.

[Jillymo in reply to Thrones12]

Just a thought have you tried one of of those SAD lamps ? They give off a totally diffrent light to tanning and the blue light.

I suffer with hypoparathyroidism so not able to absorb vit D from the sun. I'm prescribed calcium and vit D3 to compensate the deficiency. On a recent endocrine visit my bloods showed that my calcium is low. The consultant didn't test my V it D for some stupid reason ! I have had to up my vit D to bring my calcium up into range.

The dark winter months and lack of sun affect many, my daughter included who simply can not function unless she uses her SAD lamp.

Mind you a lamp is little compensation of not being able to jet off to the sun. 🏖 💡

[Thrones12]

we used to go to Mykonos in Greece a lot but haven’t really been anywhere since Covid and all I’ve seen is my health deteriorate with numerous ailments, latest being coeliac I’ve just been tested after enduring 6-8 weeks of stuffing gluten down me it’s been awful but I’m willing to try and get the answers I so desperately want and I must say the support and info provided from the coleac charity here is amazing. Blood test results tomorrow and say it’s daft but I’m hoping this time the antibodies are high enough to get me a positive then that would help explain some things like why I’m getting no relief from the pain and burning in my feet legs and arms from additional shots with b12, I was shocked to learn that being coleac can also cause this. My fingers are especially bad at the moment ,we live and learn eh?

Ps my Spanish gardener was like my best friend lol

[Parlay in reply to Thrones12]

I tested negative on my coeliac screen even after eating gluten. Mine was diagnosed under endoscopy which apparently is very common! So if Drs say you aren’t coeliac question it!!! Bit like PA where you don’t always have antibodies.

[Thrones12 in reply to Parlay]

Thank you Parlay,apparently since 2020 Covid period the gastros decided an endoscopy was no longer required if the antibodies were over 10,that was music to my ears lol I won’t ever get that done,if it comes back neg I’m just going to assume I do have it because I certainly suffer with gluten same with lactose. I’m Going to avoid them like the plague now..

I know it’s bad but my fingers are crossed for a positive I was the same with P.A it’s just that then you have a name for what your dealing with and I’ve already found a support group near me,the loneliness of all these things does me more damage than the disease itself. Many thanks x

[Showgem]

Hi, your comment regarding body temperature regulation really hit a note with me. I have had difficulty with this for years before being diagnosed with PA and b12 deficiency.

It’s been a few years now since I started injections and your comment made me realise that my body temperature regulation seems at last to have improved.

Maybe I can now enjoy summers and winters, the weather here in the U.K. has so far been very variable.

[WIZARD6787 in reply to Showgem]

The issue with the body temperature regulation medically is it's not severe enough to be measured by a thermometer. So therefore it does not exist for them.

[WIZARD6787 in reply to WIZARD6787]

Actually I miss wrote. I could probably have charted it with a thermometer, but there's no medical personnel competent to interpret it.

[Hockey_player]

Do you have any ski pants? A good pair of ski pants can help keep you nice and warm even when it is much colder outside. It used to go down to -40C = -40 F when I lived in Montreal. It also really helps to have a toque and mittens.

[WIZARD6787 in reply to Hockey_player]

I have ski pants. If it's cold and windy, I wear full insulated coveralls. Baklava hat, boots with liners rated to 70 below. I swap out the liners every day because liners cannot dry out overnight. I never took to goggles as I like to see the world as clear as possible. Same with swimming.

[Hockey_player in reply to WIZARD6787]

I have a boot drying machine for dying out my ski boots. When it's really cold I wear both under armour pants and sweat pants under my ski pants.

[WIZARD6787 in reply to Hockey_player]

The temperature regulation is not about staying warm. It is the differential in temperatures. It is more acute in the summer as the differential is greater.

Go get in a cold car. Drive to post office go in where it is warm. back to the cold car drive to the grocery store and go in warm store. Back outside to load groceries in the cold. Car is warm. unload groceries in the cold to the warm back and forth.

I would be mildly hypothermic but not medicialy. Winter cold symptoms.

In the summer be in a cooler house out to 90 degrees. Cool car ect.

------------------------------------------

I used heated soap stones with newspapers in the 60's. In the 70's I used a boot heater for my ski boots. I find with the removable 'felt' boots they will not dry over night with the boot heater. That is why I swap them out.

In the 60's and 70's I used silk nylons prior to the new wicking materials. My fishnets were for other occasions. Just kidding.

I am a merino wool guy. Top and bottom as a base layer if it below freezing even if inside

Uniut socks with Smartwool over the calf or as I call them knee socks for boys.

Insulated jeans standard.

I made studded flip flops for the spring. Just for fun.

You are north of me where you have 7 months of winter and 3 of bad skiing.

Cool skiing story. I went to Jay Peak in Canada on Thanksgiving day one year. The girl I was dating had been cut off by her father due to her not having good taste in men as in me.

It had snowed for 30 days and there were only 8 skiers on the mountain. The gondola would wait till we all came down. We skied all day on virgin snow.

I had to leave the next day to work a ski show and it rained that night and the area did not open.

[GracePV]

Thank you for bringing up the mystery of temperature regulation. It is something I have but have never discussed with anyone. When my feet started with neuropathy I wasn't even sure whether they felt hot or cold. Small changes in temperature can send me into spasms.. sciatic... especially at night or in the morning before I get out of bed. I can be outside and with a slight temperature shift feel my whole legs get heavy as if they are blocked. I assume it is nerve damage in the spine. The B12 shots are helping slowly.

[WIZARD6787 in reply to GracePV]

I had spasms for years and they have resolved.

I went with with current treatment regarding amounts and frequency than damage might be permanent. That it was not known either way if it would be with higher amounts and frequency.

I also went with the physicians are not concerned with permanent damage and satisfied with the results of their work. I was not.

[Treesong2023]

Hello WIZARD, besides the "good feeling" and Vitamin D synthesis - I find the sun energy thing rather confusing as a contributor to a PA condition..?

I am no doubt missing an observation you might have made? I am keen to take every option for better health I am! I have wondered about melinin being generated and related to B12 in some way....but thats a very long stretch..

Living in SW England, working in Southern France and Northern Italy - where i always had beach and walk times built in - I have not felt a gain from the sun other than the effect of being still and relaxing..

[WIZARD6787 in reply to Treesong2023]

My concept of synergy as described in my original post is not within the medical fields understanding of anything.

Not likely it will in the future. They only gave up the recommendation of full bed rest when so many people did not follow the advice and lived and so many didn't and died.