B-12 compounded in the USA: I've been... - Pernicious Anaemi...

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B-12 compounded in the USA

prillyb12 profile image
14 Replies

I've been hearing for some years that the FDA was looking at compounded B-12 and might make it unavailable. I have my B-12 compounded with no preservatives and shipped to me on ice. Today I just reordered and they told me I could only order a one month supply. They can only send me RX for 60 days of treatment, they make it 30 days ahead of time, so I'm getting 30 days of treatment. It also will show an expiration date of 60 days from it's making. Yet it's being made the same exact way as with a 120 day expiration date.

So I told her I do shots every week and please send me 4 vials. My Rx says one shot every three weeks. But she went right along with me.

What have others experienced in the USA?

Priscilla

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prillyb12 profile image
prillyb12
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14 Replies
Rexz profile image
Rexz

Hi prillyb12

I get my methylcobalamin pre-loaded syringes from a compounding pharmacy in New Jersey, also shipped on ice. I've always ordered 8 shots (2 months) at a time. But I usually inject every 4 to 6 days. I will call them tomorrow and just ask how many months supply I can get.

Will let you know.

Rexz

FlyGranny profile image
FlyGranny in reply toRexz

I order mine from Canada. Inject cyancobalamine twice a week.

Rexz profile image
Rexz in reply toFlyGranny

Hi flygranny, can you message on where in Canada you order from?

Rexz

ReallyWondering profile image
ReallyWondering in reply toFlyGranny

FlyGranny, what made you decide to inject twice a week? I brought this up to my NP and she said not to, but I still have tingling in my feet after 3 months of weekly shots.

FlyGranny profile image
FlyGranny in reply toReallyWondering

My doctor and I really don’t discuss it. She’s knows I use more than she thinks I should but doesn’t argue with me about it. My symptoms are pretty much non existent when I inject twice a week. Most people who handle their Pernicious Anemia themselves follow improvements of their symptoms due to injections. I’ve learned over the last 20 years most doctors don’t have a clue as to what it’s like to live with PA. It’s been a huge problem in my family, my grandfather died from it AND it was a secondary cause of my mother’s death.

ReallyWondering profile image
ReallyWondering in reply toFlyGranny

Wow, sorry to hear that. Does your insurance pay for the B-12?

FlyGranny profile image
FlyGranny in reply toReallyWondering

it’s very reasonably priced so I don’t use my insurance.

Hockey_player profile image
Hockey_player in reply toReallyWondering

I just bought some in BC (I live here). I already had enough needles. Without the needles is was about $4 for 10 doses (0.40 per dose).

FlyGranny profile image
FlyGranny

B12-shot.com. Email is order@b12-shot.com. Phone number is 888-595-1393.

prillyb12 profile image
prillyb12 in reply toFlyGranny

I have overnight delivery currently and it's expensive. How is the B-12 shipped from Canada? I'm getting preservative free hydroxocobalamin. I suspect that your B-12 has a preservative in it.

FlyGranny profile image
FlyGranny in reply toprillyb12

Also it’s just mailed, arrives within a week.

FlyGranny profile image
FlyGranny

It does, benzyl alcohol 1.5%. Hasn’t caused any problems in the almost 20 years since I’ve been using it.

prillyb12 profile image
prillyb12 in reply toFlyGranny

I'm glad that works for you. I'm very sensitive to chemical additives in everything. So my B-12 is preservative free.

FlyGranny profile image
FlyGranny

Glad that works for you.

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