Pins and Needles

[WIZARD6787]

I made an error in not being aware that I was reading pins and needles and equating that with the agony and debilitating pain I used to experience. Not the same experience.

Part of this error is the treatment protocols are the same no matter the pain and agony level so to physicians the severity is not important. This is not a criticism, it is an observation. Wishing that physicians take into consideration the severity of symptoms is an unrealistic expectation. I did not know that until I did my studying, including how medical personnel actually do their job. Which is not that same as knowing how to do the job.

Another error was made out of my reasonable fear of permanent subacute degeneration of the spinal cord. Made worse as the physicians treating me we doing so with oral only even though I was PA. I thought non-ambulatory was restricted to being wheelchair bound and only due to subacute degeneration of the spinal cord when in fact it can be from shortness of breath, balance issues and fatigue or a combination. Guessing that permanent subacute degeneration of the spinal cord severe enough to be detected with an x-ray is the final result of being undiagnosed/misdiagnosed and that may be able to be prevented by any treatment at all.

Although I love having an alorgritium/checklist to follow, I am not restricted to using them if an appropriate one does not exist. Algorithms/check lists exist for treatment of B12. An appropriate/successful one for many patients does not exist. There is also the reality that all that self-treat are making the decision concerning what is the best they can do and those that follow a physician's advice are having the physicians make that decision for them.

I personally now have only sub clinical symptoms and am morphing into self treating to heal from symptoms I could not know I experienced until they were eliminated.

It feels like I am close to having developed/discovered principles to work with. This is not outside my experience with regards to approaching issues and sometimes is not in keeping with standard principles. Does not make me better just different in ways that are meaningful to me.

Having the freedom to self inject and the freedom of the experience of not injecting IM most of us seem to accept having gone through what it takes to start. Reality is it is very ground breaking if you consider the alternatives. The result of this freedom is reduction of pain and suffering and can lead to personal growth that would not be possible without effective treatment. It is actually quite remarkable when you consider what this freedom makes possible.

So let us take a moment to thank all the professionals that made this freedom possible, all the researchers, those that teach, all the medical practitioners that made this freedom possible. Oh wait they had no part in this freedom or the subsequent success.

This is not to indicate they did not have a role only they were not part of the freedom of SC self treatment.

Hopefully they will use the power we give them to follow and pretend they did have a part in successful treatment by self treatment and not use their power to take away the freedom.

Not unlikely that some diabetics told their physicians I can inject myself and this lead to a private company developing a SC needle. Could be some diabetics used a IM needle to inject SC. That is how I started, I did not find this was outside my ability in any way.

I often think in terms of this vacuum I exist in with regards to self treatment. I am now thinking in terms of the cocoon I am in and hopeful that I will emerge in the spring.

Note: I do not follow the all I can do and all anyone can do is try different things protocol nor that all I can do is manage symptoms protocol. I evaluate which is not limited to trying different things. I can think and heal. The question is what is the ceiling if any.