Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for October 2023

Have you found sub-lingual B12 tablets or sprays effective?

It seems to me that the NHS treatment I am getting is aimed at keeping me out of B12 deficiency, not about giving me the optimum level for health. So in the...

It seems to me that the NHS treatment I am getting is aimed at keeping me out of...

Permexpi

•10 months ago

32 Replies

PAS SEMINAR 14 October 2023

the Pernicious Anaemia Society is running a seminar on Saturday 14th October 2023, you have to be a member to attend but there is time to sign up and register...

the Pernicious Anaemia Society is running a seminar on Saturday 14th October 202...

PAScomms

•10 months ago

8 Replies

HISTORY OF PERNICIOUS ANAEMIA

our new CEO has written a blog post about the history of Pernicious Anaemia and you can read it here...

our new CEO has written a blog post about the history of Pernicious Anaemia and ...

PAScomms

•10 months ago

4 Replies

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Deficiency vs Broken

Hi Guys As usual I have been mulling over my recent GP experience of rolling eyes (aka “looking for their brain” courtesy of Narwhal!). I don’t think GPs...

Hi Guys As usual I have been mulling over my recent GP experience of rolling ey...

Wwwdot

•10 months ago

28 Replies

frustrating!!

so I posted my sons blood results being concerned over his very low active b12 and having to wait weeks for an appointment with Gp. Finally seen Gp who...

so I posted my sons blood results being concerned over his very low active b12 a...

Blister4

•10 months ago

12 Replies

Low folic acid taking Metformin

Hi thereI'm new to the forum. Looking for some advice. Iv felt very ill. Tiredness. Shortness of breath mouth ulcers tingling in my mouth. My head feels full...

Hi thereI'm new to the forum. Looking for some advice. Iv felt very ill. Tiredne...

Olliedog01

•10 months ago

10 Replies

Belligerant, sneering GP

Hi guys Hubby update. His heart is fine 😅😅😅😅 the abnormalities shown in the stress ECG we’re not replicated on the debutinine echocardiogram so all is...

Hi guys Hubby update. His heart is fine 😅😅😅😅 the abnormalities shown in th...

Wwwdot

•10 months ago

38 Replies

Disposal of used syringes from SI (Cardiff)

Hi all, I was self injecting every month until my GP took my B12 levels (along with other tests) pre-summer and they were over 1000. She basically said they...

Hi all, I was self injecting every month until my GP took my B12 levels (along ...

Squirrel_enthusiast

•10 months ago

15 Replies

skin reaction to B12 injections

Hi, I was prescribed the 6 injections every 2 days. Soon after the fourth injection I developed red bumpy skin on my forehead some of which looked like spots....

Hi, I was prescribed the 6 injections every 2 days. Soon after the fourth injec...

Sparkleros

•10 months ago

13 Replies

Update GP lied to our faces and some links for purchasing b12 please

So I updated you all last week on the visit to go last week where I believed she was gaslighting myself and my partner. Since then we have managed to access...

So I updated you all last week on the visit to go last week where I believed she...

Nic878

•10 months ago

10 Replies

Folate levels

Hi I recently started SI twice a day thanks to the advice of the wonderful people here I recently had surgery and this seems to have thrown my B12 levels out...

Hi I recently started SI twice a day thanks to the advice of the wonderful peopl...

SKYROCKET123

•10 months ago

5 Replies

Depression and PA

HelloI started the PA journey in 2021, positive intrinsic factor and gastric parietal cell antibodies. I am hypothyroid. I thought my low mood would resolve...

HelloI started the PA journey in 2021, positive intrinsic factor and gastric par...

Aumshantii

•10 months ago

9 Replies

Should I push for a test?

Update - I have realised that a few more results have come through. He ordered dsDNA but apparently the sample was lost or there wasn't enough? He ordered ENA...

Update - I have realised that a few more results have come through. He ordered ...

EllsBells591

•10 months ago

8 Replies

Postpartum depression

A recent release described a newly-developed drug for postpartum depression. Effects of the drug are said to last 45days. Cost is greater than $10,000 USD. No...

A recent release described a newly-developed drug for postpartum depression. Eff...

WiscGuy

•10 months ago

10 Replies

online PAS seminar 14th October

I found this online seminar on the PAS members page. It was mentioned at the AGM but I hadn’t seen anything about it, anyway hopefully this helps others find...

I found this online seminar on the PAS members page. It was mentioned at the AGM...

Loupharm

•10 months ago

2 Replies

Raising funds - Brighton Marathon places

still looking for some volunteers - please like and share the below information We have secured three places for Brighton Marathon Sunday 7th April 2024 in...

still looking for some volunteers - please like and share the below information ...

PAScomms

•10 months ago

4 Replies

B12 specialist South Wales

Hi, first time to post anywhere about condition, thanks in advance for any advice as I am pretty desperate. Diagnosed circa 2007 with P.A and after b12...

Hi, first time to post anywhere about condition, thanks in advance for any advi...

shoeshopper

•10 months ago

6 Replies

Is it helpful to try to 'fight' fatigue?

I am going to an appointment later today to discuss my test results and begin B12 injections. The doctor's surgery is 3 minutes walk away but still the thought...

I am going to an appointment later today to discuss my test results and begin B1...

Permexpi

•10 months ago

21 Replies

hair thinning/loss

Hello everyone l was wondering does hair thinning/loss have anything to do with B12 deficiency and PA?

Hello everyone l was wondering does hair thinning/loss have anything to do with ...

Ooopsy

•10 months ago

5 Replies

Global Genes Summit

Hi all, I had posted that I was attending the Global Genes Summit and representing Autoimmune Registry on 19 to 22 Sept in San Diego and would provide...

Hi all, I had posted that I was attending the Global Genes Summit and represent...

Rexz

•10 months ago

2 Replies

Hope needed

I’m nearly one month into starting SI (had 9 injections and am now EoD + taking cofactors) and I’m finding this so very incredibly hard. The exhaustion is...

I’m nearly one month into starting SI (had 9 injections and am now EoD + taking ...

Pepperpots302

•10 months ago

15 Replies

The P.A./B12 Journey

To All of the Community, Our own stories are individual. There are many people that I am eternally grateful to wedgewood, Sleepybunny, Cherylclaire,...

To All of the Community, Our own stories are individual. There are many people...

Narwhal10

•10 months ago

28 Replies

Sore cracking lips reaction to b12 injections

Has anyone had sore lips, cracking and dry skin around top lip as a reaction to b12 injections? I never had this problem before treatment for low b12 began,...

Has anyone had sore lips, cracking and dry skin around top lip as a reaction to ...

Sandytango

•10 months ago

8 Replies

Anti inflammatory pain killer

I am looking for recommendations for tolerable pain relief for hip bursitis please? So far I have only tried buprenorohine patches that did not help and turned...

I am looking for recommendations for tolerable pain relief for hip bursitis plea...

davina70

•10 months ago

17 Replies

Nurse Querying My Need for B12 Injections

Hi, I’m wondering if anyone can help me please. I'm a 43yr old female in the UK and I’ve been treated with B12 injections for Pernicious Anaemia for the...

Hi, I’m wondering if anyone can help me please. I'm a 43yr old female in the ...

Kc1199

•10 months ago

29 Replies

Hello guys I’m a new member and wasn’t sure that this site wasn’t a pop up that I’d accidentally gotten onto ha ha total dinosaur that I am

My story is a long one-I developed a squint and then mono-occularism around 5yrs otherwise fit and healthy though shy, quiet but determined. At the age of 13 I...

My story is a long one-I developed a squint and then mono-occularism around 5yrs...

EyesWideNow

•10 months ago

35 Replies

Seems to me.

That frequency of injections is as important if not more than amounts. That B12 injections are seen as a medication by physicians and researchers for the...

That frequency of injections is as important if not more than amounts. That B1...

WIZARD6787

•10 months ago

8 Replies

B12 and anxiety

Hi Guys I have been doing well recently and got in a position where I felt confident enough to move from every day B12 injections to every other day. I also...

Hi Guys I have been doing well recently and got in a position where I felt conf...

Wwwdot

•10 months ago

11 Replies

Keeping track

Silly questions but, I have noticed a lot of people mentioning keeping track of symptoms and on other pages also keeping track of blood tests results on ....

Silly questions but, I have noticed a lot of people mentioning keeping track o...

Polo22

•10 months ago

21 Replies

high blood pressure

Hi marg here ,was on 1.25 of Ramipril for a year have recently had it raised to 2.25 . Iam 68yrs and recently had a serious viral infection which put me in...

Hi marg here ,was on 1.25 of Ramipril for a year have recently had it raised to ...

methornton

•10 months ago

3 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2023

Have you found sub-lingual B12 tablets or sprays effective?

PAS SEMINAR 14 October 2023

HISTORY OF PERNICIOUS ANAEMIA

Deficiency vs Broken

frustrating!!

Low folic acid taking Metformin

Belligerant, sneering GP

Disposal of used syringes from SI (Cardiff)

skin reaction to B12 injections

Update GP lied to our faces and some links for purchasing b12 please

Folate levels

Depression and PA

Should I push for a test?

Postpartum depression

online PAS seminar 14th October

Raising funds - Brighton Marathon places

B12 specialist South Wales

Is it helpful to try to 'fight' fatigue?

hair thinning/loss

Global Genes Summit

Hope needed

The P.A./B12 Journey

Sore cracking lips reaction to b12 injections

Anti inflammatory pain killer

Nurse Querying My Need for B12 Injections

Hello guys I’m a new member and wasn’t sure that this site wasn’t a pop up that I’d accidentally gotten onto ha ha total dinosaur that I am

Seems to me.

B12 and anxiety

Keeping track

high blood pressure

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How Often do you feel you actually need your B12 injection?

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