Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for October 2023

Catsmud

I had my b12 3 weeks ago but 4 days ago started to have head rushes and dizziness bout 5 times throughout the day really scary especially driving doesn’t last...

I had my b12 3 weeks ago but 4 days ago started to have head rushes and dizzines...

Catsmud

•10 months ago

12 Replies

Grandmother, 88 being denied B12 injections

This group has always been very supportive, particularly when I began my B12 deficiency ordeal. I was hoping I could get some advice on a very specific issue I...

This group has always been very supportive, particularly when I began my B12 def...

TMur1990

•10 months ago

26 Replies

Can't get treatment

Iv been trying to get doctors in my new area to take me seriously but can't even get an appointment.Been trying for over 12 month and still haven't had a real...

Iv been trying to get doctors in my new area to take me seriously but can't even...

Sk3bebb

•10 months ago

7 Replies

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BP and B12 deficiency

have any of you experienced similar symptoms? And hot flashes, and night sweats and insomnia?

have any of you experienced similar symptoms? And hot flashes, and night sweats ...

totallyFrustrated

•10 months ago

11 Replies

No improvement to tiredness after B12 injections

I have been having B12 injections since being diagnosed with pernicious anaemia 18 years ago. I never feel an improvement in energy levels and tiredness after...

I have been having B12 injections since being diagnosed with pernicious anaemia ...

Suesue246

•10 months ago

40 Replies

New to the forum

Hoping anyone can give me guidance, I'm newly diagnosed, after years of just getting on with it, in terms of been tired, i eventually found my fingers and toes...

Hoping anyone can give me guidance, I'm newly diagnosed, after years of just get...

polarbear69

•10 months ago

12 Replies

Correct me if I am wrong. Please

There are four forms of cobalamin commercially available for injection. Cynocabalamin which in tests of a non cobalamin deficient human has been tested for...

There are four forms of cobalamin commercially available for injection. Cynoca...

WIZARD6787

•10 months ago

25 Replies

World Mental Health Day

Today is World Mental Health Day. The CEO of the PAS, Katrina Burchell, has explored in A History of Pernicious Anaemia the socioeconomic changes that...

Today is World Mental Health Day. The CEO of the PAS, Katrina Burchell, has exp...

Narwhal10

•10 months ago

15 Replies

😩 STRESS

I'm due to go to the doctors surgery tomorrow for my IM B12 injectionI looked at my NHS app . A named person has cancelled my repeat prescription of b12...

I'm due to go to the doctors surgery tomorrow for my IM B12 injectionI looked at...

Nackapan

•10 months ago

31 Replies

Deadly facts of b12

There is a guy on tiktok called Gary Brecka giving the 'deadly facts of b12' I looked in the comments he has people terrified of cyanocobalamin. I'm still...

There is a guy on tiktok called Gary Brecka giving the 'deadly facts of b12' I ...

SunnyWorld

•10 months ago

45 Replies

Weak legs and dizziness

Hi I am writing again as my symptoms have changed a bit more and and I'm feeling very concerned. I have obviously done too much and had a crash and ended up in...

Hi I am writing again as my symptoms have changed a bit more and and I'm feeling...

brenanddave

•10 months ago

15 Replies

B12 sources

I'm new here and not sure how it works but the problem is, I have moved house and thus GP practice, I normally have my B12 injections every 28 days and I...

I'm new here and not sure how it works but the problem is, I have moved house an...

tenderloins

•10 months ago

4 Replies

Folate and B12

May I just ask what are the consequences of treating folate before B12? Is it case of results being skewed or symptoms worsening?

May I just ask what are the consequences of treating folate before B12? Is it ca...

HealthStarDust

•10 months ago

13 Replies

How do I start on self injecting?

I have been on B12 injections for years, but since covid they don't last. I get mine every 8 weeks, but symptoms return after only one week now and get...

I have been on B12 injections for years, but since covid they don't last. I get ...

totallyFrustrated

•10 months ago

5 Replies

newbie

Hi everyone After being unwell my B12 was tested as it came back as 51. I was offered 6 doses in 2 weeks and then told to return every three months for top...

Hi everyone After being unwell my B12 was tested as it came back as 51. I was ...

0050

•10 months ago

5 Replies

Apo health website

Hi in trying to put an order through on apo health iv tried twice and it says payment pending. Has anyone else had this problem, not sure if its my bank

Hi in trying to put an order through on apo health iv tried twice and it says pa...

Nic878

•10 months ago

4 Replies

Pernicious anaemia, no stomach acid and pain

I have had pernicious anaemia for 18 years and injections every 10 weeks. I have suffered with reflux, heartburn and congestion for many years. Last year a...

I have had pernicious anaemia for 18 years and injections every 10 weeks. I have...

Suesue246

•10 months ago

8 Replies

Misdiagnosis

I have written here often that I was misdiagnosed many times since 1962. I have come to understand it is more accurate to say I was given a diagnosis as I...

I have written here often that I was misdiagnosed many times since 1962. I hav...

WIZARD6787

•10 months ago

8 Replies

Numb fingers when I wake up

Good Morning people. Just a quick question - I've been having bimonthly injections with the gp, then bimonthly si. Recently I've been waking up every morning...

Good Morning people. Just a quick question - I've been having bimonthly injectio...

luckymaria

•10 months ago

4 Replies

5K walk

In the last 90 days my trials resulted in a protocol that I am confident will lead to continued improvement. I had to interrupt that protocol due to...

In the last 90 days my trials resulted in a protocol that I am confident will le...

WIZARD6787

•10 months ago

39 Replies

wired after b-complex

I’ve been self injecting for a month now (plus low dose methylfolate and Spatone) and while some of the pins and needles type symptoms have reduced, the...

I’ve been self injecting for a month now (plus low dose methylfolate and Spatone...

Pepperpots302

•10 months ago

9 Replies

Correct needle size for subcut si

Thanks to the advice from this community I have been s I for about 2 yrs. A question rre needle size I normally draw down wising a blue needle then inject with...

Thanks to the advice from this community I have been s I for about 2 yrs. A ques...

Monbretia

•10 months ago

7 Replies

Increased cancer risk?

History of breast cancer here, so get my b12 level and others checked every 7 weeks. Now, I have read in some cancer fora supplementing with B-vitamins, in...

History of breast cancer here, so get my b12 level and others checked every 7 we...

indywindy

•10 months ago

39 Replies

Lost in Translation

Often I pass, Aneurin ‘Nye’ Bevan’s statue, quietly thinking, ‘Nye, look what they have done.’ When I read recently of a G.P. who had to take 3 months...

Often I pass, Aneurin ‘Nye’ Bevan’s statue, quietly thinking, ‘Nye, look what th...

Narwhal10

•10 months ago

16 Replies

Delivery Today

🥳🥳🥳My delivery arrived today-or should I say was left on my doorstep? Two big lovely boxes-glad people are more interested in nicking the lead from my roof...

🥳🥳🥳My delivery arrived today-or should I say was left on my doorstep? Two big...

EyesWideNow

•10 months ago

2 Replies

Low stomach acid

Very random question but could those of you with low stomach acid tell me what this feels like please

Very random question but could those of you with low stomach acid tell me what ...

Nic878

•10 months ago

22 Replies

Anyone has this issue

I was given my B12 injection today and told I need to book a review with a GP as my B12 level is good and that I could now take oral B12 instead. My experience...

I was given my B12 injection today and told I need to book a review with a GP as...

1998cd

•10 months ago

8 Replies

petition?!

hello, I was just online trying to find anything about IM v’s SC B12 and came across a post response to the question of do the NHS fund B12 injections-the...

hello, I was just online trying to find anything about IM v’s SC B12 and came ac...

EyesWideNow

•10 months ago

8 Replies

Do I have P.A

Hi,good day all,I am confused whether I have P.A.or not.My intrinsic factor test came back as negative but reading other people's post I am not sure is that...

Hi,good day all,I am confused whether I have P.A.or not.My intrinsic factor test...

Ralphylyn123

•10 months ago

10 Replies

Newbie--shifting symptoms?

New here and wondering if symptoms can shift or if I need to go make myself a tinfoil hat. :( Background: vegan with long-term IBS. Two years ago I wound up...

New here and wondering if symptoms can shift or if I need to go make myself a ti...

Maypo

•10 months ago

29 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2023

Catsmud

Grandmother, 88 being denied B12 injections

Can't get treatment

BP and B12 deficiency

No improvement to tiredness after B12 injections

New to the forum

Correct me if I am wrong. Please

World Mental Health Day

😩 STRESS

Deadly facts of b12

Weak legs and dizziness

B12 sources

Folate and B12

How do I start on self injecting?

newbie

Apo health website

Pernicious anaemia, no stomach acid and pain

Misdiagnosis

Numb fingers when I wake up

5K walk

wired after b-complex

Correct needle size for subcut si

Increased cancer risk?

Lost in Translation

Delivery Today

Low stomach acid

Anyone has this issue

petition?!

Do I have P.A

Newbie--shifting symptoms?

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