Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,244 members • 23,423 posts

All posts for August 2023

JUVIA - anyone any experience?

Hi Guys In a nutshell, gut issues mean if I eat more than once a day I get IBS symptoms, starts with severe groin cramps, then bloating, then diarrhoea etc....

Hi Guys In a nutshell, gut issues mean if I eat more than once a day I get IBS ...

Wwwdot

•11 months ago

33 Replies

Seems to me.

Not a medic nor have the ability to do that job. Seems to me there is no such thing as B12 deficiency without neurological effects. Most notably fatigue. It...

Not a medic nor have the ability to do that job. Seems to me there is no such ...

WIZARD6787

•11 months ago

7 Replies

CBD GUMMIES

I am sure this has been covered previously but I have just seen a promo for Sweet Relief Gummies supposedly backed by Dragon Den? Can’t find anything online...

I am sure this has been covered previously but I have just seen a promo for Swee...

Nonameme

•11 months ago

1 Reply

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B12 injections

I was diagnosed with PA in my 30s. Quite a shock. I was on injections until last year when I was 70. I was told by my PCP that sublingual B12 would work....

I was diagnosed with PA in my 30s. Quite a shock. I was on injections until la...

cdemarsh

•11 months ago

24 Replies

Error posting the amount I was injecting

I discovered last night I made an error in the amount of methylcobalamin I was injecting. The methylcobalamin I inject comes in a vial l dry and I add saline....

I discovered last night I made an error in the amount of methylcobalamin I was i...

WIZARD6787

•11 months ago

11 Replies

B12 Deficiency Video

This video does not address the need for B12 injections, it just recommends oral supplementation but I still thought it was interesting...

This video does not address the need for B12 injections, it just recommends oral...

MoKayD

•11 months ago

9 Replies

SOME POETRY

If by Rudyard Kipling (‘Brother Square-Toes’—Rewards and Fairies) If you can keep your head when all about you Are losing theirs and blaming it on...

If by Rudyard Kipling (‘Brother Square-Toes’—Rewards and Fairies) If you can ke...

Narwhal10

•11 months ago

3 Replies

MrJustatip's diagnosis - FINALLY.

Hello all. Wednesday, 8/2/23 and after 1.5 years and countless doctors, I have finally been officially diagnosed with Pernicious Anemia due to Intrinsic factor...

Hello all. Wednesday, 8/2/23 and after 1.5 years and countless doctors, I have f...

MrJustatip

•11 months ago

24 Replies

ship compounded hydroxyb12 to CA?

Hello, does anyone know of a compounding pharmacy that ships hydroxyB12 to California? I can only get the commercial one with parabens here. I tried cyanoB12...

Hello, does anyone know of a compounding pharmacy that ships hydroxyB12 to Calif...

WiskieLouie

•11 months ago

7 Replies

b12 is low and leg pain

hello I was diagnosed with low b12 about 3 weeks ago. I was asymptomatic for a long time and on occasion get brain fog so I asked for a blood test. I then...

hello I was diagnosed with low b12 about 3 weeks ago. I was asymptomatic for ...

Cassieblu

•11 months ago

27 Replies

A Life Jolted

There is a story posted on substack. It;s about an individual journey through AMAG/PA Gastric Cancer and the dealing with the medical bureaucracy to reach a...

There is a story posted on substack. It;s about an individual journey through A...

Rexz

•11 months ago

10 Replies

Mucousy

Some one on this forum used the term mucousy. I had never read that term and looked it up. Expecting it to be a UK situation. "We should take a wee walk and go...

Some one on this forum used the term mucousy. I had never read that term and loo...

WIZARD6787

•11 months ago

Be the first to reply

Update

I have written here often that I suffer more with less B12 and less with more B12. I heal more effectively with my latest trial of supplementation. (See...

I have written here often that I suffer more with less B12 and less with more B1...

WIZARD6787

•11 months ago

4 Replies

More Folic Acid Safe?

Hello, im trying to get my head hair and other body hair to grow again. As a female that's important to me. My d3, even supplemented, was normal but only 50...

Hello, im trying to get my head hair and other body hair to grow again. As a fe...

Wheat

•11 months ago

25 Replies

Dr Sarah Myhill B12 injections

Hi allI know alot people on the forum get their B12 injections from Germany but I'm just wondering if anyone has bought from Dr Myhills website?

Hi allI know alot people on the forum get their B12 injections from Germany but ...

Hollybushroad

•11 months ago

39 Replies

B12 injections

My needles arrived today and I can’t believe I did my first subcutaneous injection, it wasn’t perfect but I did it! Thank you to everyone who helped me, I...

My needles arrived today and I can’t believe I did my first subcutaneous injecti...

Inishfree

•11 months ago

8 Replies

You can't outsource advocacy

Hi everyone, I ran across this very poignant post on Substack that I thought really described the role of advocacy as best I've seen. Most of us on here...

Hi everyone, I ran across this very poignant post on Substack that I thought re...

Rexz

•11 months ago

15 Replies

I’m unsure if I have a b12 deficiency?

So for 8 years now my b12/folate has come back low ( e.g - b12 183 and folate 2.2 was my last one last September and it has been them sort of levels for quite...

So for 8 years now my b12/folate has come back low ( e.g - b12 183 and folate 2....

Emmy1991

•11 months ago

4 Replies

Free auto injector : )

Hi all - I am in Germany and have a new, unused Union Medico Needle Guide Assistant with English instructions. I don't need it and don't want to just toss it....

Hi all - I am in Germany and have a new, unused Union Medico Needle Guide Assist...

SigNi

•11 months ago

1 Reply

Jab in thigh

Good morning. I have been injecting in upper outer leg because of problems with reaction on tummy. No reaction on leg but difficult because of my shoulder...

Good morning. I have been injecting in upper outer leg because of problems with ...

smg1950

•11 months ago

14 Replies

MMA result

Hi allJust got medichecks result which shows high lMMA level: 34.8ug/l (less than 32) Previous medichecks active B12 was 48.1 pmol/l (37.5-150) (they advised...

Hi allJust got medichecks result which shows high lMMA level: 34.8ug/l (less tha...

Hollybushroad

•11 months ago

7 Replies

how long after beginning injections did you feel better?

I was diagnosed with pernicious anemia three weeks ago after feeling fatigued and experiencing digestive problems for around a year. I’ve since started weekly...

I was diagnosed with pernicious anemia three weeks ago after feeling fatigued an...

Merlotponty

•11 months ago

5 Replies

Is it safe to inject b12 shots for vitamin b12 level of 165pg/ml?

Hello dear friends My b12 result came back 165pg/ml that lab normal values were 160-950. I visit a internist doctor. She said your values is within the normal...

Hello dear friends My b12 result came back 165pg/ml that lab normal values were ...

Emiroskui

•11 months ago

7 Replies

Range for B12d

Just wondering if I am misunderstanding the use of the the range for B12.My local health centre has a set range of 150 - 1000. 0. How does this work? If...

Just wondering if I am misunderstanding the use of the the range for B12.My loca...

3rdNettydoon

•11 months ago

7 Replies

Global Genes Rare Advocacy Summit 2023

Hi all I will be representing, for my second year, Autoimmune Registry, in San Diego, California USA. 19-21 September 2023. If anyone in USA might be...

Hi all I will be representing, for my second year, Autoimmune Registry, in San D...

Rexz

•11 months ago

13 Replies

Urine versus Serum MMA test?

Hello everyone, Could anyone tell me if there is a reason either way to choose on of these tests over the other? I'm thinking of getting my daughter to do...

Hello everyone, Could anyone tell me if there is a reason either way to choose ...

Sneedle

•11 months ago

5 Replies

Bleeding stomach

Could an administrator advise. A haematologist has just diagnosed me with blood macrocytosis and taken further blood tests. I had a holding dose of B12 from an...

Could an administrator advise. A haematologist has just diagnosed me with blood ...

Meerkat1234

•11 months ago

29 Replies

b12 whilst breastfeeding

I’m spinning out a bit about this and would really appreciate any responses. I have a b12 deficiency issue which predates my pregnancy. After a battle some...

I’m spinning out a bit about this and would really appreciate any responses. I h...

Roo32

•11 months ago

10 Replies

Help would be greatly appreciated

Due to having been very unwell I am struggling cognitively ATM. Could anyone please tell me which cofactors I need to balance. This is so stupid of me but I...

Due to having been very unwell I am struggling cognitively ATM. Could anyone ple...

ellj

•11 months ago

2 Replies

Hope this makes you smile

Beginner1 used to post photos of flowers to us in summer. So I thought I'd send this to all those on the forum who need cheering up this rainy summer; a new...

Beginner1 used to post photos of flowers to us in summer. So I thought I'd send...

Cherylclaire

Forum Support•11 months ago

26 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2023

JUVIA - anyone any experience?

Seems to me.

CBD GUMMIES

B12 injections

Error posting the amount I was injecting

B12 Deficiency Video

SOME POETRY

MrJustatip's diagnosis - FINALLY.

ship compounded hydroxyb12 to CA?

b12 is low and leg pain

A Life Jolted

Mucousy

Update

More Folic Acid Safe?

Dr Sarah Myhill B12 injections

B12 injections

You can't outsource advocacy

I’m unsure if I have a b12 deficiency?

Free auto injector : )

Jab in thigh

MMA result

how long after beginning injections did you feel better?

Is it safe to inject b12 shots for vitamin b12 level of 165pg/ml?

Range for B12d

Global Genes Rare Advocacy Summit 2023

Urine versus Serum MMA test?

Bleeding stomach

b12 whilst breastfeeding

Help would be greatly appreciated

Hope this makes you smile

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