Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for June 2023

Has anyone looked at this? It says that B12 /injections / supplements can do harm after all. I hope it’s not true.

https://www.healthline.com/health/food-nutrition/vitamin-b12-side-effects

ACritical

•1 year ago

51 Replies

Iron Deficiency Without Anemia (IDWA)

In my "I'm Alive!" post yesterday I discussed my crashing with effectively no iron in my system with a condition called Iron Deficiency Without Anemia (IDWA)....

In my "I'm Alive!" post yesterday I discussed my crashing with effectively no i...

Rexz

•1 year ago

9 Replies

New batch of panpharma depot expiring 3/26

I ordered some panpharma depot, hydroxo, from marienbrunn and the expiration date is 3/26!! 😱 I noticed this weekend they were back in stock. Other...

I ordered some panpharma depot, hydroxo, from marienbrunn and the expiration dat...

jade_s

•1 year ago

7 Replies

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Should we lobby for modern healthcare to be a blend of Conventional Medicine AND Functional Medicine?

This is my question of the day... We are all suffering, horribly. From ignorance, mainly. Sorry to point it out... Management of B12, of gut health, of...

This is my question of the day... We are all suffering, horribly. From ignoran...

Pickle500

•1 year ago

8 Replies

Frida Kahlo and PA

I've just watched the final episode of a three part documentary on Frida Kahlo, the Mexican painter of the last century.Her painting are vivid and graphic and,...

I've just watched the final episode of a three part documentary on Frida Kahlo, ...

Orchard33

•1 year ago

6 Replies

I'm Alive!

I had heard that some of you were looking for me. I have not been on too much these past few months as I had completely crashed, completely non-functional,...

I had heard that some of you were looking for me. I have not been on too much t...

Rexz

•1 year ago

21 Replies

B12 deficiency and Metformin

The following is likely of interest to people on Metformin...

WiscGuy

•1 year ago

4 Replies

Increasing B12 levels, . . . & effect on FBG ( - fasting blood glucose) - any known relationship or correlation ?

. . . things of course will/may start happening as long depleted B12 levels are begun to be restored. Positive changes, one hopes . . . ! 😊 . . . is this...

. . . things of course will/may start happening as long depleted B12 levels are ...

Sid_Arthur

•1 year ago

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In the US - Looking for a doctor who understand PA & treatment

In Illinois or Wisconsin - Anyone know of a doctor who understands PA & how to treat..

In Illinois or Wisconsin - Anyone know of a doctor who understands PA & how to t...

boisland

•1 year ago

2 Replies

B12 deficiency and NICE guidelines

A finding that NICE guidelines regarding B12 need to be revised: https://www.nature.com/articles/s41433-021-01589-9

A finding that NICE guidelines regarding B12 need to be revised: https://www.nat...

WiscGuy

•1 year ago

7 Replies

Reaction to B12 injection?

Hi there, I was recently diagnosed with PA (April this year) and had my 6 loading doses. Last Tuesday afternoon I had my first injection after 3 months and...

Hi there, I was recently diagnosed with PA (April this year) and had my 6 load...

Amymyla87

•1 year ago

5 Replies

PLEASE STATE YOUR COUNTRY IF YOU ARE NOT IN U.K. WHEN ASKING FOR ADVICE etc.

Very useful to know the country of the member when giving help .Otherwise inappropriate information can be given .

Very useful to know the country of the member when giving help .Otherwise inap...

wedgewood

•1 year ago

Be the first to reply

taking b12 syringes on airplanes

Hi. hoping to fly to Greece next month. Does anyone have experience of customs reactions to needles and cobalamin in cases or hand luggage? Thanks.

Hi. hoping to fly to Greece next month. Does anyone have experience of customs ...

Yervaud

•1 year ago

10 Replies

Just diagnosed with Vitamin B12 and folic deficiency

following my recent blood test for my annual diabetes review I received a text from a doctor at my surgery yesterday afternoon. I was told I have Vitamin B12...

following my recent blood test for my annual diabetes review I received a text f...

JayceeJC

•1 year ago

41 Replies

B12 symptoms return worse a couple months later after first 6 jabs over 2 weeks.

I have b12 deficiency. I’ve had my first set of treatment 6 jabs & 3 months folate acid tabs. After my first 6 Jabs I started to feel better a month later now...

I have b12 deficiency. I’ve had my first set of treatment 6 jabs & 3 months fola...

Daniel_

•1 year ago

3 Replies

advice on b12 travel kit

I’m wondering if anyone has advice on how to organize B12 supplies. I’m interested in a zipper case to keep a couple needles, a few bandages/plasters, alcohol...

I’m wondering if anyone has advice on how to organize B12 supplies. I’m interest...

Purplegirl2

•1 year ago

9 Replies

I was prescribed cyanocobalamin years ago...

I was prescribed cyanocobalamin, I now see comments about meth... does my cyanocobalamin work on my IF test confirmed Pernicious Anemia?

I was prescribed cyanocobalamin, I now see comments about meth... does my cyano...

Lioncreek

•1 year ago

7 Replies

B12 levels while on 8 weekly injections

Hi all I’m in the UK and am wondering what your B12 levels should be when on 8 weekly injections. After loading doses I started on 12 weekly jabs. After a few...

Hi all I’m in the UK and am wondering what your B12 levels should be when on 8 w...

cec57

•1 year ago

6 Replies

Total B12

The NHS is still doing total B12 tests but private labs now only do active B12. As there is no exact relationship between the two I'm trying to find a private...

The NHS is still doing total B12 tests but private labs now only do active B12. ...

tomdickharry

•1 year ago

6 Replies

Panpharma B12 depot (Hydroxocobalamin ) available at the moment.

Above ampoules available at a price of €10.00. packet of 10 — at www.apohealth.de. ( free P&P ) Ref.no. 16199653 Paypal or card ———- SOLD OUT ALREADY !...

Above ampoules available at a price of €10.00. packet of 10 — at www.apohealth.d...

wedgewood

•1 year ago

52 Replies

MTHFR testing

I was wondering how one would test for MTHFR mutation. I'm in England and would like to know about the mutation to gauge how much to supplement. Thank you!

I was wondering how one would test for MTHFR mutation. I'm in England and would ...

EchoWS

•1 year ago

21 Replies

Methylfolate and antidepressants

Some people here might be interested in an article regarding methylfolate and antidepressant efficacy: https://www.medscape.com/viewarticle/992700?

Some people here might be interested in an article regarding methylfolate and an...

WiscGuy

•1 year ago

3 Replies

Sourcing my own B12 injections

Hello all, hope your well. I’m a 52 year old man who suffers with Hashimoto’s syndrome … I take 75mg of T4 (Levothyroxine) + 50mg of T3 (Liothyronine) per...

Hello all, hope your well. I’m a 52 year old man who suffers with Hashimoto’s s...

Quasarlis

•1 year ago

3 Replies

The Royal Society

Interestingly, just stumbled on this : “The Wonderful World of Vitamin B12” https://youtu.be/J64Zl28XZuo

Interestingly, just stumbled on this : “The Wonderful World of Vitamin B12” ...

Polaris

•1 year ago

22 Replies

Timings of 'supra physiologic' B12 doses . . . thru' day ( - for those who can absorb them !).

Taking several divided doses can assist more to be absorbed, & allow blood levels to vary/fluctuate less than taking the same amounts as fewer, larger doses -...

Taking several divided doses can assist more to be absorbed, & allow blood level...

Sid_Arthur

•1 year ago

9 Replies

'Fit for Work' - a new Radio4 series by Jolyon Jenkins

. . . gives a STARK recap of the changes in the disability/sickness benefits system over the past 30+ years: https://www.bbc.co.uk/sounds/play/m001mcjz -...

. . . gives a STARK recap of the changes in the disability/sickness benefits sys...

Sid_Arthur

•1 year ago

Be the first to reply

Llais - for people in Wales

For forum members in Wales. Have you seen this about an organisation called Llais? https://www.llaiswales.org/ It's an independent body set up by Welsh...

For forum members in Wales. Have you seen this about an organisation called Lla...

Sleepybunny

•1 year ago

1 Reply

given up

Drs refusing to admit there’s any need for further B12 injections. So had my loading doses in October and I’m “wishing the reference ranges” Had another...

Drs refusing to admit there’s any need for further B12 injections. So had my loa...

Bumblebee02

•1 year ago

8 Replies

B12 injection 💉 course - for the HCAs & nurses . . .

On browsing on Eventbrite, found there's a 3h ONLINE course: Title: INTRODUCTION TO VIT B12 INJECTIONS Date: Fri 23 June 2023 . . . Time: 12noon to 3pm Cost:...

On browsing on Eventbrite, found there's a 3h ONLINE course: Title: INTRODUCTIO...

Sid_Arthur

•1 year ago

7 Replies

Cooling vests for hot weather -tips or advice?

Hi everyone! I'm looking into cooling vests for some summer activities this year, and I'm just wondering if anyone has experience or advice relating to...

Hi everyone! I'm looking into cooling vests for some summer activities this ye...

Cobalt1312

•1 year ago

5 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2023

Has anyone looked at this? It says that B12 /injections / supplements can do harm after all. I hope it’s not true.

Iron Deficiency Without Anemia (IDWA)

New batch of panpharma depot expiring 3/26

Should we lobby for modern healthcare to be a blend of Conventional Medicine AND Functional Medicine?

Frida Kahlo and PA

I'm Alive!

B12 deficiency and Metformin

Increasing B12 levels, . . . & effect on FBG ( - fasting blood glucose) - any known relationship or correlation ?

In the US - Looking for a doctor who understand PA & treatment

B12 deficiency and NICE guidelines

Reaction to B12 injection?

PLEASE STATE YOUR COUNTRY IF YOU ARE NOT IN U.K. WHEN ASKING FOR ADVICE etc.

taking b12 syringes on airplanes

Just diagnosed with Vitamin B12 and folic deficiency

B12 symptoms return worse a couple months later after first 6 jabs over 2 weeks.

advice on b12 travel kit

I was prescribed cyanocobalamin years ago...

B12 levels while on 8 weekly injections

Total B12

Panpharma B12 depot (Hydroxocobalamin ) available at the moment.

MTHFR testing

Methylfolate and antidepressants

Sourcing my own B12 injections

The Royal Society

Timings of 'supra physiologic' B12 doses . . . thru' day ( - for those who can absorb them !).

'Fit for Work' - a new Radio4 series by Jolyon Jenkins

Llais - for people in Wales

given up

B12 injection 💉 course - for the HCAs & nurses . . .

Cooling vests for hot weather -tips or advice?

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