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Pernicious Anaemia Society

32,094 members • 23,248 posts

All posts for June 2023

Versandapo has panpharma depot

Price is 9.19 euro for a box of 10 https://www.versandapo.de/vitamin-b12-depot-panpharma-1000-mygml-iniecto-lsg-10x1ml-pzn-16199653

Price is 9.19 euro for a box of 10 https://www.versandapo.de/vitamin-b12-depot...

jade_s

•1 year ago

5 Replies

help with diagnosis b12 215 vs 211 reference range GP refuses to treat.

Hi my friend has Elhers Danloss and was recently diagnosed with Hashimotos. She has fatigue brain fog numbness sore tongue etc. She had active private B12...

Hi my friend has Elhers Danloss and was recently diagnosed with Hashimotos. She ...

Hoxo

•1 year ago

12 Replies

Hello, looking for advice please

Hello everyone. I’m not sure if I’m in the right place?! But here goes. Bloods taken (BlueHorizon) in May. Results Iron 10.3 (5.8-34.5) Ferritin 93.6 (13-150)...

Hello everyone. I’m not sure if I’m in the right place?! But here goes. Bloods t...

Auders

•1 year ago

17 Replies

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Palpitations

Does anyone with pernicious anemia from time to time experience palpitations?

25092

•1 year ago

31 Replies

Anyone getting gout?

Hi everyone I am getting regular iron infusions because my ferritin isn’t stable. After the iron infusions I have to inject lots of b12. This has started to...

Hi everyone I am getting regular iron infusions because my ferritin isn’t stab...

Hopefulandpositive

•1 year ago

16 Replies

Why don’t I notice an increase in energy? Have had three b12 injections.

Have very low b12 and iron. Had three injections of b12 and still don’t feel any better? Schedule is for 5 more shots then recheck levels. Taking iron...

Have very low b12 and iron. Had three injections of b12 and still don’t feel any...

84withb12d

•1 year ago

25 Replies

Myelin Sheath Repair

This isn't technically a B12 question but since a lot of us have peripheral neuropathy I thought I'd post it here. Has anyone read about a newly discovered...

This isn't technically a B12 question but since a lot of us have peripheral neur...

MoKayD

•1 year ago

2 Replies

Does anyone else feel buzzing and hyper and dizzy at the same time? My neuropathy is also bad.

Please can anyone help - I feel pretty ill but not sure I can even describe it. My neuropathy in my lower legs is unusually bad, bothering me at night so I...

Please can anyone help - I feel pretty ill but not sure I can even describe it. ...

Mashie44

•1 year ago

29 Replies

B12 Injections

Hello, I am a newbie to this forum. I have just started a maintenance dose of 5 B12 injections. My next injection is due in 3 months time. I suffer with...

Hello, I am a newbie to this forum. I have just started a maintenance dose of 5...

packhorse

•1 year ago

15 Replies

GP comments about B12 levels after injections started?

I’ve been having three monthly B12 injections since January and now GP is saying I don’t have a problem with my B12 as the latest blood test shows a value of...

I’ve been having three monthly B12 injections since January and now GP is saying...

Edso57

•1 year ago

14 Replies

Asthma and B12

Hi Guys Some insight / info for general discussion and rumination! I did not have asthma or hay fever as a child. I developed Asthma in my 30’s and when...

Hi Guys Some insight / info for general discussion and rumination! I did not h...

Wwwdot

•1 year ago

10 Replies

Consistent with b12 absorption problem?

Hi folks This is my b12 journey. For context, I have autoimmune under-active thyroid disease (diagnosed 2017) and eat a diet rich in vitamin b12. In July...

Hi folks This is my b12 journey. For context, I have autoimmune under-active t...

Laundretta

•1 year ago

46 Replies

Help with blood test interpretation for my daughter

Hello Everyone, I'm new here and asking for my 18 year old daughter. I've come over from the Thyroid UK forum at their suggestion. She's been quite unwell...

Hello Everyone, I'm new here and asking for my 18 year old daughter. I've come ...

Sneedle

•1 year ago

9 Replies

Help with B12/Iron/thyroid results

Hi There, looking for some help interpreting some b12/iron/ thyroid blood test results. Based in the UK. Background: Ever since I had my son two years ago I...

Hi There, looking for some help interpreting some b12/iron/ thyroid blood test r...

Llan12

•1 year ago

7 Replies

interesting find

has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in...

has anyone tried grass fed beef liver supplements. I’m wondering if these freeze...

Thrones12

•1 year ago

39 Replies

Antineutrophilic cytoplasmic antibody (ANCA) Vasculitis

Hello everyone. I hope everyone's been hanging in there. I haven't been feeling very good lately. I have all the regular PA symptoms and the B12 has helped...

Hello everyone. I hope everyone's been hanging in there. I haven't been feeling ...

EllaNore

•1 year ago

35 Replies

B12 Ampoules back in stock

Panpharma Vitamin B12 Depot 1000 µg/ml Injektionslösung, 10 St. Ampullen back in stock at apoheath. Grab them quick🤣

Panpharma Vitamin B12 Depot 1000 µg/ml Injektionslösung, 10 St. Ampullen back in...

Reemy

•1 year ago

33 Replies

b12 and Anxiety

Why does b12 injections make my anxiety worse for a few days?I have anemia. Have had 3 injections and have 5 more to go.

Why does b12 injections make my anxiety worse for a few days?I have anemia. Have...

84withb12d

•1 year ago

15 Replies

Iron low

Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had...

Hello, I just got back my blood work test and the iron read a little low, so I w...

25092

•1 year ago

26 Replies

?Allergy

I have injected sc about a dozen times into tummy over a period of about 6 months . I have 8 weekly jabs IM with no reaction. My sc jabs always cause redness...

I have injected sc about a dozen times into tummy over a period of about 6 month...

smg1950

•1 year ago

4 Replies

COVID

Am fully vaccinated for COVID. Had close contact with two people who had positive COVID self tests. Determined self testing if positive is reliable. Was not...

Am fully vaccinated for COVID. Had close contact with two people who had positiv...

WIZARD6787

•1 year ago

21 Replies

Codeine

Sorry if this is wrong place but need some urgent advice. Diagnosed with ‘probable’ PA and b12 deficiency along with diverticular disease diabetes 2. Female...

Sorry if this is wrong place but need some urgent advice. Diagnosed with ‘proba...

Nonameme

•1 year ago

5 Replies

How many injections before scarring

Hi All Me again!!! I am in thinking mode today ! Over last 6 months approx 150 injections sc in tummy - it’s was already a battleground of scars and stretch...

Hi All Me again!!! I am in thinking mode today ! Over last 6 months approx 150...

Wwwdot

•1 year ago

13 Replies

Help! How do people get Sheaths off 1/2” needles??

Hi All This sounds a silly question but it’s foxing me! Just changed from 1” needle to 1/2” needle and I am having trouble removing the sheath to the needle...

Hi All This sounds a silly question but it’s foxing me! Just changed from 1” n...

Wwwdot

•1 year ago

22 Replies

Everything you always wanted to know about vit B12 metabolism but were afraid to ask

Ran across this paper from 2022. Gives an impressive but understandable overview of B12 metabolism from ingestion to cellular uptake, including a...

Ran across this paper from 2022. Gives an impressive but understandable overview...

jade_s

•1 year ago

3 Replies

Update and Feeling Kicked…..

Thank you to everyone who helped me with my last post on this board regarding DNR. I’m relieved to say that my father was released and is possibly back on...

Thank you to everyone who helped me with my last post on this board regarding DN...

RoseFlowerDew

•1 year ago

8 Replies

B12 levels over 2000

Hi, I got call today from nurse after getting bloods done to ask if I have been take b12 oral supplements because my b12 is over 2000 doesn’t know exactly how...

Hi, I got call today from nurse after getting bloods done to ask if I have been ...

Ebonner

•1 year ago

17 Replies

1.5mg vs 1mg pascoe

Our GP refused to continue to prescribe so we ordered b12 hydroxo using Amazon prime from Amazon.de. Haven’t started using the German product yet as I’m...

Our GP refused to continue to prescribe so we ordered b12 hydroxo using Amazon p...

Loupharm

•1 year ago

51 Replies

little help please

hi , apparently my b12 is very low and I’ve got appointments etc next week ,I just wondered if anyone had any self help tips to get it up and running please......

hi , apparently my b12 is very low and I’ve got appointments etc next week ,I ju...

Hazel1010

•1 year ago

4 Replies

neuropathy, pins, and needles in the face!! Has anyone else had this?

I have been experiencing this randomly and faintly over the past 7 months. Now I have been receiving b12 shots for 8 weeks, along with hot aching pins and...

I have been experiencing this randomly and faintly over the past 7 months. Now I...

brenanddave

•1 year ago

29 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(77)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2023

Versandapo has panpharma depot

help with diagnosis b12 215 vs 211 reference range GP refuses to treat.

Hello, looking for advice please

Palpitations

Anyone getting gout?

Why don’t I notice an increase in energy? Have had three b12 injections.

Myelin Sheath Repair

Does anyone else feel buzzing and hyper and dizzy at the same time? My neuropathy is also bad.

B12 Injections

GP comments about B12 levels after injections started?

Asthma and B12

Consistent with b12 absorption problem?

Help with blood test interpretation for my daughter

Help with B12/Iron/thyroid results

interesting find

Antineutrophilic cytoplasmic antibody (ANCA) Vasculitis

B12 Ampoules back in stock

b12 and Anxiety

Iron low

?Allergy

COVID

Codeine

How many injections before scarring

Help! How do people get Sheaths off 1/2” needles??

Everything you always wanted to know about vit B12 metabolism but were afraid to ask

Update and Feeling Kicked…..

B12 levels over 2000

1.5mg vs 1mg pascoe

little help please

neuropathy, pins, and needles in the face!! Has anyone else had this?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive