Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for June 2023

Does anyone else get ill before their next round of B12 treatment?

Hi all, I have recently been diagnosed with PA, after a very long time of not know "what was wrong with me". My symptoms are mostly the neuro ones, paranoia,...

Hi all, I have recently been diagnosed with PA, after a very long time of not ...

LittleMikiStark

•11 months ago

5 Replies

oral supplements

Would 250mcg b12 in a daily b complex raise blood levels significantly over a period of a couple of years? Is there anyone who has tried long term...

Would 250mcg b12 in a daily b complex raise blood levels significantly over a pe...

MorningMist

•11 months ago

10 Replies

Timing blood tests for folate/B12

Sorry for asking what must be a common question..Do you need to stop folate 2 days before testing? Is it 2 or 4 months for B 12 please? Thank you

Sorry for asking what must be a common question..Do you need to stop folate 2 da...

fluffyhat

•11 months ago

3 Replies

Want to take advantage of all our features? Just log in!

Does the pill have the same effect as the injection?

I am from Argentina. My son has been struggling with depression and anxiety for years. 2 years ago we found out he had high homocysteine, low B12 and he has...

I am from Argentina. My son has been struggling with depression and anxiety for...

MarianaCD

•11 months ago

24 Replies

Wake up very cold around 230 to 330 am . Any suggestions?

Wake up very cold and was wondering if any supplements might help this. Taking iron pills and b12 injections currently.

Wake up very cold and was wondering if any supplements might help this. Taking i...

84withb12d

•11 months ago

3 Replies

COVID Fatigue compared to B12 Deficiency Fatigue.

I tested positive for COVID 12 days ago took Paxlovid for 5 days. Thank you Pfizer scientists including creating a way for some applied scientist/medical to...

I tested positive for COVID 12 days ago took Paxlovid for 5 days. Thank you Pfiz...

WIZARD6787

•11 months ago

4 Replies

B12 defficiency

Could one of the administrators on this site please tell me if macrocytic anaemia is the same as Pernicious Anaemia. Thank you.

Could one of the administrators on this site please tell me if macrocytic anaemi...

Meerkat1234

•11 months ago

47 Replies

Communicating to GP about treatment needs

Hi, so i have positive on my diagnostic intrinsic factor test more than a decade ago. But because my b12 levels have been healthy i havent had shots since...

Hi, so i have positive on my diagnostic intrinsic factor test more than a decade...

Dandeli0nsroar

•11 months ago

8 Replies

Versandapo Cancelled Order :(

Hi everyone, I managed to order some more of the Rotoxmedica Hydroxy B12 depot last week, but after a couple of emails from Varsandapo saying it had been...

Hi everyone, I managed to order some more of the Rotoxmedica Hydroxy B12 depot ...

KBird01

•11 months ago

8 Replies

Can to much B12 cause IBS? SI

Hello 👋 I SI every day, but after eating lunch, I get terrible IBS 😫 If I'm not on the toilet, I am in bed as I'm so fatigued.😔 I take Imodium just...

Hello 👋 I SI every day, but after eating lunch, I get terrible IBS 😫 If I'm ...

Onlyme75

•11 months ago

28 Replies

Sensory Pins and Needles in head

Hi, I hope you are all having a good day. Does anybody suffer with pins and needles in the head daily? Also I have pins and needles in legs, arms, face,...

Hi, I hope you are all having a good day. Does anybody suffer with pins and n...

bubbatetley

•11 months ago

9 Replies

Why cyanocobalamin?

I have just been looking at the documentation (SPC and PIL) for a number of Folic Acid products. It appears they contain the following words – or similar:...

I have just been looking at the documentation (SPC and PIL) for a number of Foli...

helvella

•11 months ago

42 Replies

Overnight drop of mood and sudden fatigue

Does anyone experience a sudden drop in mood work accompanying sudden fatigue? Im still working with my GP to get the regime correct and working. I did the...

Does anyone experience a sudden drop in mood work accompanying sudden fatigue? I...

BkrJo

•11 months ago

8 Replies

b12 loading dose pain

hi, I’ve on my 5th loading dose of b12, and I have really bad nerve pain in my hands and feet, I’m really struggling with the pain, I’m on 3 pain killers and...

hi, I’ve on my 5th loading dose of b12, and I have really bad nerve pain in my h...

Flowerspink

•11 months ago

13 Replies

keeping well?

Hi, Not been on page for a wee while as developed another health issue which I’ve had to deal with, but doing well. Pernicious anaemia fine and I remain on 8...

Hi, Not been on page for a wee while as developed another health issue which I’...

Miss-guineapig

•11 months ago

2 Replies

Other supplements that help me

I have tapered down to one hydroxocobalamin injection per week to no detriment (3 years+ after initial loading doses & EOD 40 days & 2 per week for the...

I have tapered down to one hydroxocobalamin injection per week to no detriment (...

Scotlad76

•11 months ago

4 Replies

High Eosinophils

I'd be interested to hear if others that have been diagnosed with autoimmune gastritis/PA and/or Hashimoto's Thyroiditis have consistently higher than normal...

I'd be interested to hear if others that have been diagnosed with autoimmune gas...

Rexz

•11 months ago

12 Replies

Can I get needles in England

I'm travelling to England from Canada - I will bring my B12 with me, but want to know if I can purchase needles in England without a prescription (that way I...

I'm travelling to England from Canada - I will bring my B12 with me, but want to...

chill234

•11 months ago

13 Replies

Success!!!

I almost feel badly posting this as I am in the US and I know these tests are not readily available or used very frequently in other countries. I wish they...

I almost feel badly posting this as I am in the US and I know these tests are no...

EiCa

•11 months ago

32 Replies

I figured out why I couldn't tolerate antibiotics (caused severe burning) after developing SFN from B12 Deficiency

TL;DR I was able to succesfully use Uva Ursi and Antibiotics by combing them with an antihistamine (Uva Ursi and the antibiotics previously caused severe...

TL;DR I was able to succesfully use Uva Ursi and Antibiotics by combing them wit...

Whoa182

•11 months ago

3 Replies

SC in Australia

Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'....

Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) a...

greenscarf

•11 months ago

13 Replies

re awaking

Hi , new member , suffering from pernicious anemia and diagnosed with cirrhosis , yes im a drinker , been self injecting for a month now and taking folic acid...

Hi , new member , suffering from pernicious anemia and diagnosed with cirrhosis ...

wp69

•11 months ago

5 Replies

B12 advice

I'm new to this forum - have been on the thyroid one for a few years, and it has been suggested that I may have PA. However I supplement with a B complex so...

I'm new to this forum - have been on the thyroid one for a few years, and it has...

Molly161018

•11 months ago

8 Replies

Red Blood Cell production

As b12 injections increase the no of red cells does anyone know what regulates this?

As b12 injections increase the no of red cells does anyone know what regulates ...

MorningMist

•11 months ago

12 Replies

B12 deficiency

I have large red platelets and nearly every symptom of B12 deficiency. Dr stopped injections three years ago as he said B12 has gone too high. I can’t eat...

I have large red platelets and nearly every symptom of B12 deficiency. Dr stoppe...

Meerkat1234

•11 months ago

56 Replies

Hi , new member

Just a quick question , is pernicious anemia related liver problems , as ive got both , but leading a quite normal life without many issues , thanks , Will.

Just a quick question , is pernicious anemia related liver problems , as ive got...

wp69

•11 months ago

4 Replies

Folate deficiency

Not had blood tests since before the pandemic. Just recieved my April 23 blood test results. My Serum Folate is 3.6 ug/L Deficient being <3.9 ug/L...

Not had blood tests since before the pandemic. Just recieved my April 23 blood ...

LynneG

•11 months ago

36 Replies

B12 depot available at Versandpo now

I got an email (for the first time) from Versandpo telling me Pan Pharma is in stock. I did not try to order as I am in the US and it is too hot to ship now (I...

I got an email (for the first time) from Versandpo telling me Pan Pharma is in s...

EiCa

•11 months ago

3 Replies

Weekly shots forever?

Does anyone have information about the possibility of being unable to replenish the B12 store in the liver? I have been self administering hydrocobalamin and...

Does anyone have information about the possibility of being unable to replenish ...

HappyMonk

•11 months ago

45 Replies

Travelling and SI B12

Advice please. The government guidelines are that you need a letter from your doctor to carry needles. But my doctor doesn’t know I SI. Do I have to put it...

Advice please. The government guidelines are that you need a letter from your ...

MrsTuft

•11 months ago

17 Replies

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(76)

All things Pernicious Anaemia Society(76)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2023

Does anyone else get ill before their next round of B12 treatment?

oral supplements

Timing blood tests for folate/B12

Does the pill have the same effect as the injection?

Wake up very cold around 230 to 330 am . Any suggestions?

COVID Fatigue compared to B12 Deficiency Fatigue.

B12 defficiency

Communicating to GP about treatment needs

Versandapo Cancelled Order :(

Can to much B12 cause IBS? SI

Sensory Pins and Needles in head

Why cyanocobalamin?

Overnight drop of mood and sudden fatigue

b12 loading dose pain

keeping well?

Other supplements that help me

High Eosinophils

Can I get needles in England

Success!!!

I figured out why I couldn't tolerate antibiotics (caused severe burning) after developing SFN from B12 Deficiency

SC in Australia

re awaking

B12 advice

Red Blood Cell production

B12 deficiency

Hi , new member

Folate deficiency

B12 depot available at Versandpo now

Weekly shots forever?

Travelling and SI B12

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive