I used to find that a B12 injection once a week would stop me being incontinent of urine at night. I missed a couple of weeks injections and it seemed that the B12 stopped working for this after . I have been injecting every other day for a couple of months since and it has just got worse. I am incontinent during the day as well now.
All thoughts on what might be going on. I am due to have bloods taken next week. Should I ask for anything in particular to be checked?
you may simply have an infection could you maybe take a sample down when you go for your blood tests and ask them to check it. Best wishes x
Thank you. I hadnt thought of that.
in the meantime if it’s giving you pain you could take lemon juice in warm water it’ll help neutralise the acid to stop burning when passing water. Have you also checked it’s not a flare up of atrophy downstairs as this mimics uti,s,if it’s atrophy then cold pressed organic coconut oil from health food store ,wee blue jar around £2-3 pounds, will help with healing and protecting.. best f luck I do sympathise with you x
thank you. there is no burning but I will try lemons juice anyway and coconut oil.
have tour back checked for ex herniated disc ex.
babe are you sure it’s not menopause related too? Definitely get yourself checked out for uti too. I had like loads in the space of a year. But I’m allergic to penicillin so the antibiotics available were very limited. One of them had a contradiction about B12 and after a few courses I started to get this weird tingling in my fingers. Eventually I went private - though stupid doctor gave me antibiotics that didn’t agree. Even the pharmacist questioned it because I was allergic to penicillin - I spent Christmas morning in hospital because of it. Anyways he did a little op to widen a tube down there and I haven’t suffered a uti since. But it hasn’t helped with the incontinance. I wear a pad every day incase. We have literally just had to replace our mattress. How my partner puts up with it is beyond me. For the record I am 52 years old. Had hysterectomy about 6 years ago. Haven’t had a B12 jab since lockdown started after having them for 15 years. Just been back to stupid GP with my partner this week because he is so concerned about me - getting bloods done rah rah rah but I have been taking tablets so you can bet your bottom dollar it will come back my levels are fine and for some bloody reason the NHS don’t know what an active B12 test is.
Anyhow I hope you get sorted lovely and I wish you all the best x
Hi Msjalien,
Might be something in threads below that could help you.
Some links may have details that could be upsetting.
Links to forum threads where I left detailed replies with lots of B12 deficiency info eg causes and symptoms, UK B12 documents, B12 books, B12 websites and B12 articles and a few hints on dealing with unhelpful GPs.
healthunlocked.com/pasoc/po...
healthunlocked.com/pasoc/po...
Link to thread about Patient Safety, has useful links for those in UK having difficult health experiences.
healthunlocked.com/pasoc/po...
Thank you lovely. I will have a read. I actually spoke to Martin Hooper some years ago. I really should start self injecting again but I’ve kind of lost where to source it etc etc. I think I definitely improved when I was doing it every other day but I also had a very very stressful job that I got promoted into and it kind of fell by the wayside especially during lockdown. I’ve took voluntary redundancy recently so got a bit more time on my hands x
Also for the record at the beginning of my diagnosis many moons ago I did see a neurologist and was told categorically B12 was not the cause of my neurological issues. He was a beardy stroker type lol. He diagnosed something called Hereditary Spastic Paraplegia despite no one having symptoms in our family at the time. I had a genetic blood test at the time which believe it or not took a year to come back and of course it was negative. I saw a geneticist and she reckoned it was a genetic fault I was born with. I do not believe it at all. I was also told B12 deficiency does not run in families either. Fast forward about 5 years ago my youngest half sister gave birth to her daughter. Gas and air. She wasn’t right at all afterwards - you can guess the outcome. One of my colleagues had a sister that had to move back in with her parents for 8 months with her child she was so ill. It’s pretty disgusting tbh. If you could send links for sourcing B12 I would very much appreciate it x
Hi,
I think it might be helpful for you to start a new post on the forum with an outline of your story and asking about sourcing supplies. You should get more replies that way.
Click on box with blue pencil (top right of screen on computer).
There can be so many reasons for it. Low hormones. Pelvic floor dysfunction. Neurological issues. Structural issues. Infection. Get the doctor to check you. X
Thank you. Am seeing onTuesday.
I have get urge incontinence when I am not getting my B12.
B12 symptoms can be funny old things and can take time to settle, but if it's getting worse, the yes, could well be something else. Hope you sort it.
Agree with lots of previous comments re PeriMenopause/Menopause, Atrophy etc (I had hysterectomy in 2006 and had a battle with my Then 50+ Female GP as I was bleeding 😞, which private Gynae (paid for in desperation 🤐) confirmed angrily, was due to extreme dryness and atrophy from lack of oestrogen, prescribed me hrt & It and incontinence went away.
Also, I was recently getting symptoms of uti type pain and discovered I had SIBO which was causing bloating and lots of painful gas, and This was irritating my bladder. Maybe something else to consider. I took activated charcoal capsules to absorb the gas, it did help xx
Thank you.I am seeing GP on Tuesday with urine sample, if not helpful I know a good doctor at local drop in gyne clinic in Bristol. All the battles we have to face.
Are you also taking folate/folic acid as a cofactor for B12 injections?
I am taking folate 400mcg.
Mke sure you don't have a bladder infection. Kegel exercises may help: medlineplus.gov/ency/patien...
I agree with the other replies, and like you were, I am relying on b12 injections to help control peeing.
After keeping a food diary for other reasons, I discovered that eating green leaves veggies had the unfortunate effect of causing significantly less control during the day and repeated night time dashes often with no real pee. It was not an infection as I had it checked. I stopped the green leaves …all of them for about 4 weeks and it definitely helped. The functional practitioner believed the urinary tract was irritated but not infected. I now do eat some but avoid others. I wonder if this might be worth a try for you.
I hope you find the answers that work for you
Thank you. I will watch out for the green leaves, maybe I should keep a food diary. I am loads better now I have reverted back to previous brand of B12 but not perfect.
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