Oh heck I think I am turning into a s... - Pernicious Anaemi...

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Oh heck I think I am turning into a smurf !

Jillymo profile image
13 Replies

My Dr has diagnosed me with Raynauds.

The slightest change in temperature and my toes turn blue. 😱 I have had pain and numbness in my feet but now getting the same in my fingers. Blue was never my colour as it didn't suit me. 🤣#

I cant help wonder if the symptoms are linked to my B12 deficiency and APs.

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Jillymo profile image
Jillymo
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13 Replies
Nackapan profile image
Nackapan

I was diagnosed with Raynauds disease in my early 20s .I was told maybe lack of magnesium.

Stress!

And poor circulation.

I was however living in s very cold flat at the time .

Cold enough in winter to freeze the water in the toilet cistern.

I don't think connected to b12 deficiency az I haven't had it for years snd years.

Anc keep your feet moving.

Helpss prevent cramps too

I wear thermal socks and use wool insoles in low temp..

My feet are skinny that doesn't help.

The only place I dont put on weight !!

Jillymo profile image
Jillymo in reply to Nackapan

I wondered about magnesium due to having to take diuretics because of my heart failure. I feel that having to take three a day is robbing me of various nutrients.

The sooner I am seen by a gastrologist the better. I have also been on lansoprazole for many years which I am sure is adding to the picture.

It will be interesting to see how my Gp reacts to my B12 and folic acid results seeing as the surgery has been prescribing me for over two years. 🤔

I will let you know as and when I get the results.

Asselchen profile image
Asselchen

Can be due to b12 deficiency. A friend of mine got rid of it with injections.

Jillymo profile image
Jillymo in reply to Asselchen

I wasn't aware it could be cured but will most certainly look into it.

Pickle500 profile image
Pickle500

I've always had Raynauds tendencies and I think its more about the genetic makeup of your nervous system than a specific 'thing'. But my Raynauds went out of control when I became deficient - both tops of my hands went purple. Up to that point I'd had intermittent white fingers and numbness in hands if it were cold or I was carrying heavy shopping bags that stopped the circulation.

I believe some people have higher requirements for B12 intake and for protecting their nervous system. My Raynauds hasn't fully gone yet after 2 years of injections and treatment. I still get blue/purple hands and one is worse than the other. It is about circulation because, after all, we need B12 for proper blood cell formation and for those cells to move to the extremities.

'Raynaud's disease I think is only a fraction of a diagnosis. I think it's more of a vagus nerve dysfunction that could be caused by a wide range of disruptions to the nervous system - B12 being one of them. I've always had very red hands, feet and knees when I'm hot so I think it's something that's always been there but became 100% worse through B12 deficiency.

Don't be blue. With enough B12 it could go back to what it was

Technoid profile image
Technoid in reply to Pickle500

"Don't be blue" 🤣 this cracked me up Pickle.

Technoid profile image
Technoid in reply to Technoid

m.youtube.com/watch?v=4iwHb...

Jillymo profile image
Jillymo in reply to Technoid

Trust you..... Da Ba Dee 🎵🎶 😂🤣

Jillymo profile image
Jillymo

I also have it in the hands and fingers ! Gout is another thing I am suffereing with, the pain is horendous at present. 😩

I thought Raynauds was more to do with a vascular issue ? I have APs ( sticky clotting blood ) and put it down to small vessel problems. I am on both lansoprazole and diuretics which niether help with the gout issue.

What are these injections your receiving ? I have had injections in my left foot in the past for chronic pain. My feet are so numb I injure them without realising ! Something has gone horribly wrong here.

My gp has done blood tests ( inclueding B 12 and folic acid ) which is prescribed. When will these loonys learn our levels will be high if on therapy? I havn't been given anything for the excuciating pain.

I have got to the point where I dont know what to do next.

WhyAmISoTired profile image
WhyAmISoTired

When I first started injecting with B12 I got a LOT of new symptoms and one of them was Raynaud's in my toes when walking outside in cold weather. It was almost gone this past winter.

Jillymo profile image
Jillymo in reply to WhyAmISoTired

I am still experiencing a lot of symptoms even though I have been injecting for two years ! My feet and toes are numb but I am now getting used to the blueing but the gout is a very different story. I am sat here drinking apple cider vinigar, ginger,and cinamon because it's reported that it helps.

Oh yum yum. ☹ I cant even get a wretched Drs appointment !

WhyAmISoTired profile image
WhyAmISoTired in reply to Jillymo

Good luck Jillymo! Improvement can take a long time sadly.

But if you feel like there is no improvement at all, it could also be something else :-(

Jillymo profile image
Jillymo in reply to WhyAmISoTired

I think mine is more likely to be vascular due to my APs sticky blood. I'mpretty sure the gout is due to the diuretics prescribed me for heart failure. If I could get to speak to a Gp perhaps my meds could be reveiwed ! But hey ho no chance of getting to talk to anyone these days. I have spent all morning sat listening to nauseating music without anyone picking up the phone. 😡

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