Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,440 members • 23,719 posts

All posts for November 2022

Infection and b12

Hi all, Quick question, my ultrasound results came back and they said my 2 swollen lymph nodes (in neck)were a natural reaction to my body fighting an...

Hi all, Quick question, my ultrasound results came back and they said my 2 swol...

Hidden

•2 years ago

2 Replies

Dementia or Folic Acid Deficiency ?

I too was dx with low folic acid. It really messed with my head. I have also been prescribed folate acid tablets to raise my levels. Mine were not being...

I too was dx with low folic acid. It really messed with my head. I have also bee...

MrJustatip

•2 years ago

9 Replies

IBS and raising potassium level

Trying to raise my potassium levels some advice makes my IBS much worse such as coconut water and V8 juice. I’m trying bananas and kiwi as well. Any ideas?...

Trying to raise my potassium levels some advice makes my IBS much worse such as ...

smg1950

•2 years ago

7 Replies

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Dr stopped my b12 injections

Good Morning can I ask how I can try explain to my GP that having blood tests for b12 is pointless and not necessary as I have PA diagnosed 2015 been having...

Good Morning can I ask how I can try explain to my GP that having blood tests f...

Hidden

•2 years ago

35 Replies

Alternative pharmacies that might deliver Panpharma to the UK & currently have stock

EDIT: Turns out these pharmacies will NOT will ship to the UK. I'm sorry for getting hopes up. :/ I googled the pzn number for panpharma hydroxy & came...

EDIT: Turns out these pharmacies will NOT will ship to the UK. I'm sorry for get...

jade_s

•2 years ago

29 Replies

Versandapo: Constant order delays and cancellations.

I’ve just received an email stating that my order of 100pk Pascoe b12 has been delayed. Wouldn’t surprise me if the order is canceled & refunded in the next...

I’ve just received an email stating that my order of 100pk Pascoe b12 has been d...

MikeyO

•2 years ago

3 Replies

Hevert vs Panpharma vs Pascoe: Hydroxocolombin brands. Difference in effectiveness?

I’ve been SI-ing for about a week now and I must say I notice a difference between the Panpharma and Hevert B12. I feel much better when using the Hevert...

I’ve been SI-ing for about a week now and I must say I notice a difference betwe...

MikeyO

•2 years ago

11 Replies

Free shipping of B12 with prescription

I just ordered B12 from versandapo and got the confirmation through, when translated found this, that if I submit a prescription I'd save the 9euro postage....

I just ordered B12 from versandapo and got the confirmation through, when transl...

jointpain

•2 years ago

9 Replies

where to buy ampoules please, and why does it sting more when I SI than when nurse does it?

Hiya all. Just tried to order B12 ampoules from versandApo and apparently they are out of stock. Does anyone know if this is normal and they'll be back in...

Hiya all. Just tried to order B12 ampoules from versandApo and apparently th...

luckymaria

•2 years ago

12 Replies

result

hi if a person is deficient b12 can they get odd normal result or will they always be outside normal peramiters ?

hi if a person is deficient b12 can they get odd normal result or will they alw...

Darwin196

•2 years ago

20 Replies

Not sure about next steps

Hi, I've recently been diagnosed with a Vitamin D and folate deficiency and have been given supplements by my GP. I don't know the exact results though. My...

Hi, I've recently been diagnosed with a Vitamin D and folate deficiency and have...

MyrtleTurtle

•2 years ago

14 Replies

New Hevert packaging

Has anyone ordered Hevert hydroxocobalamin & received 10 in a small box, 2 layers of 5 ampoules instead of the flat larger rectangular pack? Expiry date is...

Has anyone ordered Hevert hydroxocobalamin & received 10 in a small box, 2 layer...

MorningMist

•2 years ago

4 Replies

Feeling hopeless and also gross skin issues to put a cherry on top

Hello hive Does anyone else suffer with any skin issues they deduce is related to PA? I've got very sore rash under my armpit and anything I put on it to...

Hello hive Does anyone else suffer with any skin issues they deduce is related t...

ozwald28

•2 years ago

11 Replies

Side effects of B12 injections

Hi. I had loading doses of B12 about 10 years ago after several years of fatigue and neuro symptoms. I felt amazing afterwards and when I went onto 3 monthly...

Hi. I had loading doses of B12 about 10 years ago after several years of fatigue...

Hayley31

•2 years ago

9 Replies

Almost Clear

Hello everyone, Yesterday I had a ultrasound for a swollen lymph node on my neck, the person scanning said its nothing to worry about and was asking whether a...

Hello everyone, Yesterday I had a ultrasound for a swollen lymph node on my nec...

Hidden

•2 years ago

2 Replies

Bosniak 2F - Family History of Nephrectomy and PA

Hello, I am struggling to find information specific to the development of Cycsts in Kidneys, I am finding that the B12 does affect the function, but I am...

Hello, I am struggling to find information specific to the development of Cycs...

LeaKolo

•2 years ago

2 Replies

Folic Acid….need new advice/nice guidelines

I have just replied to smg1950 question re folic acid and now doubting my own reply. I have happily bobbed along talking 5mg folic daily. for a few years, then...

I have just replied to smg1950 question re folic acid and now doubting my own re...

Miss-guineapig

•2 years ago

18 Replies

Long-standing nerve damage

Is it too late after 10+ years to hope that I may reverse the nerve damage to my right foot by increasing my injections to alternate days? I first had...

Is it too late after 10+ years to hope that I may reverse the nerve damage to my...

Cattywampus

•2 years ago

2 Replies

PA- I'm from South Africa and I was diagnosed with Pernicious Anemia

I was diagnosed early this year. I inject myself monthly, but my symptoms wereEye sight Stuttering Pins and niddles At some point I couldn't walk my feet...

I was diagnosed early this year. I inject myself monthly, but my symptoms wereEy...

Mandosin_76

•2 years ago

6 Replies

Advice again -sorry

is it normal to feel really much worse at beginning of treatment ? I feel v dizzy as I had 6 months ago. Had loading doses plus 3 SI this week. Should I cut...

is it normal to feel really much worse at beginning of treatment ? I feel v dizz...

smg1950

•2 years ago

4 Replies

Where to buy B12

Hi guys You've been very helpful, compassionate and very kind to me in the past - so I just want to begin with saying a very big THANK YOU to you all for that...

Hi guys You've been very helpful, compassionate and very kind to me in the past ...

LouBee73

•2 years ago

12 Replies

Ordered the wrong stuff

I don’t know how, except B12 deficient brain, but My delivery from Panpharma is cyanocobalamin instead of hydroxocobalamin. It is in the same colour and design...

I don’t know how, except B12 deficient brain, but My delivery from Panpharma is ...

Frogit

•2 years ago

6 Replies

Having trouble sourcing terumo agani 25g x 1” needles in USA

Hello, friends. I’m having trouble sourcing terumo agani 25g x 1”, 1 ml needles in the USA. In the past, I’ve ordered them on Amazon or through private health...

Hello, friends. I’m having trouble sourcing terumo agani 25g x 1”, 1 ml needles ...

Ratherbewalking

•2 years ago

6 Replies

Methylcobalamin - sources please?

Hi there I've read that methylcobalamin can work better for some, I currently use Hevert cobalamin I wanted to try but I can't find it anywhere and I trawled...

Hi there I've read that methylcobalamin can work better for some, I currently u...

pamelaegg

•2 years ago

3 Replies

muscles

hi How is everyone? Just want to know if having b12 affects your muscle tone, the reason I’m asking is that lately my inner thigh muscles are like jelly ,...

hi How is everyone? Just want to know if having b12 affects your muscle tone, ...

Prettywoman73

•2 years ago

10 Replies

Folic Acid

I am SI daily and thought I was taking 5 mg Folic Acid but realised I am taking 500 ug-not the same amount? Looking on line I can’t see any with that amount....

I am SI daily and thought I was taking 5 mg Folic Acid but realised I am taking ...

smg1950

•2 years ago

36 Replies

I’M SAD TO INFORM THE FORUM THAT A MEMBER , Beginner 1 and of late Beginner 2 , as she was known on here,PASSED AWAY ON THURSDAY .

Rosemarie was well-known for her amusing cartoons featuring “Dr. NO” . I made friends with her after joining this forum . We found that we lived 1/2 mile away...

Rosemarie was well-known for her amusing cartoons featuring “Dr. NO” . I made fr...

wedgewood

•2 years ago

139 Replies

sub cutaneous

Hi Ive just read that for subq best to do at 45 degree angle. Is this right? Also my injection site is quite red but I’m not sure if reacting to cleaning...

Hi Ive just read that for subq best to do at 45 degree angle. Is this right? Als...

smg1950

•2 years ago

8 Replies

so confused and defeated

i still have the msg i first sent here about 6yrs ago desperate for help over the change in my behaviour . Id had my small bowel removed as a child age 4 ....

i still have the msg i first sent here about 6yrs ago desperate for help over th...

Medium73

•2 years ago

6 Replies

Neurothopy and low B12

Neurothopy

Kwal123

•2 years ago

2 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2022

Infection and b12

Dementia or Folic Acid Deficiency ?

IBS and raising potassium level

Dr stopped my b12 injections

Alternative pharmacies that might deliver Panpharma to the UK & currently have stock

Versandapo: Constant order delays and cancellations.

Hevert vs Panpharma vs Pascoe: Hydroxocolombin brands. Difference in effectiveness?

Free shipping of B12 with prescription

where to buy ampoules please, and why does it sting more when I SI than when nurse does it?

result

Not sure about next steps

New Hevert packaging

Feeling hopeless and also gross skin issues to put a cherry on top

Side effects of B12 injections

Almost Clear

Bosniak 2F - Family History of Nephrectomy and PA

Folic Acid….need new advice/nice guidelines

Long-standing nerve damage

PA- I'm from South Africa and I was diagnosed with Pernicious Anemia

Advice again -sorry

Where to buy B12

Ordered the wrong stuff

Having trouble sourcing terumo agani 25g x 1” needles in USA

Methylcobalamin - sources please?

muscles

Folic Acid

I’M SAD TO INFORM THE FORUM THAT A MEMBER , Beginner 1 and of late Beginner 2 , as she was known on here,PASSED AWAY ON THURSDAY .

sub cutaneous

so confused and defeated

Neurothopy and low B12

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