Neurothopy and low B12

[Kwal123]

Neurothopy

[Nackapan]

Neuropathy and B12 deficiency/PA definitely linked.A list of Symptoms on PAS website and on plenty of posts here.

[Sleepybunny]

Hi,

Is there anything you'd like to ask forum members?

There are lots of forum members who have neuropathic symptoms including myself.

Symptoms of B12 Deficiency (folate deficiency also mentioned)

pernicious-anaemia-society....

b12deficiency.info/signs-an...

cks.nice.org.uk/topics/anae...

b12-institute.nl/en/symptom... (from B12 Institute Netherlands)

Symptoms of Peripheral Neuropathy (damage to peripheral nerves)

nhs.uk/conditions/periphera...

Peripheral neuropathy can be associated with B12 deficiency and sometimes with folate deficiency.

If you have a PA diagnosis or suspect you have PA, it's worth joining and talking to PAS who can offer support and pass on useful information.

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

PAS membership is separate to membership of this forum.

Link about "What to do next" if B12 deficiency suspected or recently diagnosed

b12deficiency.info/what-to-...

Unhappy with Treatment (UK info)?

Letters to GPs about B12 deficiency

b12deficiency.info/b12-writ...

Some UK B12 documents/articles

NHS article about B12 deficiency (simply written)

nhs.uk/conditions/vitamin-b...

BSH Cobalamin and Folate Guidelines (detailed and aimed at health professionals)

b-s-h.org.uk/guidelines/gui...

BNF link outlines two patterns of treatment for B12 deficiency in UK

1) for those who don't have neurological symptoms

2) for those who have neurological symptoms

BNF Hydroxocobalamin

bnf.nice.org.uk/drug/hydrox...

NICE CKS B12 deficiency and Folate deficiency

(aimed at health professionals but quite easy to read)

cks.nice.org.uk/topics/anae...

Local B12 deficiency guidelines

I think it's helpful to find out what's in the local B12 deficiency guidelines for your ICB (Integrated Care Board) or Health Board.

Two useful B12 books

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

Martyn Hooper started PAS (Pernicious Anaemia Society).

BNF treatment info in book is out of date. See BNF hydroxocobalamin link.

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (US authors)

Very comprehensive with lots of case studies.

Copies of these books may be available from your local library service.

GPs and other health professionals sometimes lack understanding of B12 deficiency.

Wrong ideas about B12 deficiency

Misconceptions about a B12 deficiency

(From Dutch B12 website - units, ref ranges, treatment patterns may vary from UK)

stichtingb12tekort.nl/engli...

UK blog post that mentions wrong ideas about B12 deficiency

b12deficiency.info/a-b12-se...

I am not medically trained.

Keep asking questions and I'm sure someone will try to answer them.