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Pernicious Anaemia Society

32,090 members • 23,236 posts

All posts for November 2022

Positive GP experience!

I had my first meeting with my GP following private consultation and initiation of B12 SI treatment 8 weeks ago. He accepted what was said in the letter the...

I had my first meeting with my GP following private consultation and initiation ...

Beccy_123

•2 years ago

8 Replies

Does anyone else SI every day?

Would be glad to hear thoughts / experiences …

MrsTuft

•2 years ago

35 Replies

Pernicious Anaemia and Covid Treatments

I was recently newly categorised as extremely vulnerable (potentially for needing longer term steroid treatment for allergic reactions rather than my recently...

I was recently newly categorised as extremely vulnerable (potentially for needin...

CroquetQueen

•2 years ago

37 Replies

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muscle fasciculations from low b12

I had low b12 and received the b12 injections, currently I now have muscle fasciculations. Has anybody else had these as a lasting affect ? have had these...

I had low b12 and received the b12 injections, currently I now have muscle fasci...

PaulWalker12

•2 years ago

10 Replies

B12 re-testing intervals UK

I had my B12 level checked 30/8. It was 189 which was within "normal" range. I tested at 534 2.5 years ago after 1 year of injections, starting at a baseline...

I had my B12 level checked 30/8. It was 189 which was within "normal" range. I t...

Hidden

•2 years ago

5 Replies

Freezing cold feet

So have PA and I have really bad circulation in my feet too due to other health issues. Does anyone else get cold feet and Iean ice cold, and no matter how...

So have PA and I have really bad circulation in my feet too due to other health ...

LittleA

•2 years ago

24 Replies

Ampoules damaged in delivery. UPS

I’ve just had a frustrating day. I placed an order with a German pharmacy - Apohealth for two boxes of 100 pack b12 ampoules. UPS delivered my order and to my...

I’ve just had a frustrating day. I placed an order with a German pharmacy - Apoh...

MikeyO

•2 years ago

11 Replies

IFA negative, Low Active B12 - advice please.

Hi - a brief update and request for advice on B12. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to...

Hi - a brief update and request for advice on B12. I have autoimmune hypothyro...

GW1000

•2 years ago

10 Replies

Anemia

dealing with iron deficiency anemia of chronic diseases and suspect a B12 deficiency too but I almost think my immune system has attacked something else, to...

dealing with iron deficiency anemia of chronic diseases and suspect a B12 defici...

SouthernBell50

•2 years ago

2 Replies

Supplements & sleep patterns.

Hello group. I have started taking the Jarrow brand B12 1000 mcg supplement. Could it be possible that this can give you deep sleep and bad dreams. I have been...

Hello group. I have started taking the Jarrow brand B12 1000 mcg supplement. Cou...

Natural1970

•2 years ago

21 Replies

sharps

I’d be interested to know how members doing SI dispose of their used needles?

I’d be interested to know how members doing SI dispose of their used needles? ...

Skimmingstone226

•2 years ago

32 Replies

Psychiatric symptoms of B12 deficiency

This is an abstract: the abstract is in English, while the article is written in French. The abstract is unusually thorough. It's not uncommon for posts on...

This is an abstract: the abstract is in English, while the article is written i...

WiscGuy

•2 years ago

37 Replies

Another article with secondary associations to several factors pertinent to B12

I am not feeling so well today and simply skimmed this article. It seems to have secondary relevance to B12 issues. I hope it is not something that has already...

I am not feeling so well today and simply skimmed this article. It seems to have...

WiscGuy

•2 years ago

1 Reply

Reverse damage heart palpitations and pain

Just wondering how long would one possibly do B12 injections to start helping with the heart pain and palpitations? Edit; I have had a stress test( Normal...

Just wondering how long would one possibly do B12 injections to start helping wi...

LeaKolo

•2 years ago

6 Replies

B 12 injections from abroad

Hi guys, I live in England. Where can I get B 12 injections over the counter in the UK or from abroad with UK delivery service? Thanks

Hi guys, I live in England. Where can I get B 12 injections over the counter in ...

Asad2

•2 years ago

19 Replies

Low Iron and Mental Health

Hi, I have been recently diagnosed with very low iron levels. I am now taking iron supplements, I am about a month in and not feeling much improvement yet....

Hi, I have been recently diagnosed with very low iron levels. I am now taking ir...

Pheebs93

•2 years ago

7 Replies

Has anyone been having problems with haemolysing ferritin/iron results and suggest any reasons or other companies please?

hi, I’ve completed many fingerprick iron panels & individual ferritin tests before and never had any problems getting results. Recently I’ve tried my usual...

hi, I’ve completed many fingerprick iron panels & individual ferritin tests bef...

Jo5454

•2 years ago

8 Replies

b12 retested by GP after loading dose.

I had blood test end of August this year due to feeling unwell with fatigue, pallor and faintness , exercise intolerance. Previously fit and regular runner. I...

I had blood test end of August this year due to feeling unwell with fatigue, pal...

Dartyfact

•2 years ago

12 Replies

PPI’s

I’ve been on 40mg daly of protium for the past 25 years prescribed by my GP for GORD , I’m now feeling like my body is beginning to suffer the consequences of...

I’ve been on 40mg daly of protium for the past 25 years prescribed by my GP for ...

Musicrockdog

•2 years ago

6 Replies

VersandApo Delivery

confirmation of B12 delivery after initially out of stock notice (100 Hydroxocobalamin) UK

confirmation of B12 delivery after initially out of stock notice (100 Hydroxocob...

Suchadrain

•2 years ago

5 Replies

Hypothyroidism and body numbness.

Hi, Looking For Some advice. I have been given Folic Acid 400mcg by GP 1 daily, been taking this for 4 months now and don't feel any better, also take...

Hi, Looking For Some advice. I have been given Folic Acid 400mcg by GP 1 daily,...

bubbatetley

•2 years ago

11 Replies

Is this PA? Results attached. I also have SIBO and Hashis.

Hey everyone, I'm a brand new member here, having a long list of symptoms. I also have Hashimotos disease (I take Armour thyroid), SIBO (will be treating it...

Hey everyone, I'm a brand new member here, having a long list of symptoms. I als...

Incoguto

•2 years ago

8 Replies

ampoule size

I have ampoules from Hevert but they are 2ml size 1000ug.Do I use half an ampoule per dose. My fault In ordering probably.Thankyou .

I have ampoules from Hevert but they are 2ml size 1000ug.Do I use half an ampoul...

Mrsannabbott

•2 years ago

25 Replies

Question after first im self injection

My first s.i today but what i worried about afterwoods was it did not have that 10 second muscle ache that i got when the nurse did the injection in my arm. I...

My first s.i today but what i worried about afterwoods was it did not have that ...

Marlboro123

•2 years ago

9 Replies

Raised heart rate

My resting heart rate is much higher than it used to be. I’ve had a lot of stress lately and thought that was the reason but reading the symptoms I see that...

My resting heart rate is much higher than it used to be. I’ve had a lot of stres...

smg1950

•2 years ago

9 Replies

Hydroxocobalamin injection frequency

Hi, I've messed up and forgotten to book my B12 Jab (8 weekly) and now they can't do it until three weeks after my due date. I will be on my knees by then!...

Hi, I've messed up and forgotten to book my B12 Jab (8 weekly) and now they ca...

Lettie_WP

•2 years ago

8 Replies

Psoriasis help

Hello I'm in need of advice if possible I'm waiting for a call of a doctor anytime today as I've have been begging for someone to hear me out. I'm pretty new...

Hello I'm in need of advice if possible I'm waiting for a call of a doctor anyti...

Green4me

•2 years ago

10 Replies

Low B12 raised CRP - new to this

hi all. I was recently diagnosed with B12 deficiency (level of 67), and am about to have my last of 5 loading doses today. I can’t say I’ve felt too much of an...

hi all. I was recently diagnosed with B12 deficiency (level of 67), and am about...

Sparkleprincess

•2 years ago

9 Replies

versandapo have it back in stock!

Hi guys! Just to say it's back in stock and I have just ordered. Yippee and thanks for your help !!

Hi guys! Just to say it's back in stock and I have just ordered. Yippee and than...

luckymaria

•2 years ago

7 Replies

Blood cell stabilize?

If using B12 sublingual or injections does hypersegmentated neutrophils, or macroovalocytes blood cells normalize over time? If so how long would the...

If using B12 sublingual or injections does hypersegmentated neutrophils, or macr...

LeaKolo

•2 years ago

12 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(77)

All things Pernicious Anaemia Society(77)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2022

Positive GP experience!

Does anyone else SI every day?

Pernicious Anaemia and Covid Treatments

muscle fasciculations from low b12

B12 re-testing intervals UK

Freezing cold feet

Ampoules damaged in delivery. UPS

IFA negative, Low Active B12 - advice please.

Anemia

Supplements & sleep patterns.

sharps

Psychiatric symptoms of B12 deficiency

Another article with secondary associations to several factors pertinent to B12

Reverse damage heart palpitations and pain

B 12 injections from abroad

Low Iron and Mental Health

Has anyone been having problems with haemolysing ferritin/iron results and suggest any reasons or other companies please?

b12 retested by GP after loading dose.

PPI’s

VersandApo Delivery

Hypothyroidism and body numbness.

Is this PA? Results attached. I also have SIBO and Hashis.

ampoule size

Question after first im self injection

Raised heart rate

Hydroxocobalamin injection frequency

Psoriasis help

Low B12 raised CRP - new to this

versandapo have it back in stock!

Blood cell stabilize?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive